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Posts Made By:
Barbara H.
Forum:
her2group
03-05-2015, 09:34 AM
Replies:
44
Sticky:
Kadcyla Side Effects
Views:
112,911
Posted By
Barbara H.
Re: Kadcyla Side Effects
I believe that I was the first member on this website to go on the TDM-1 trial in Sept. 2007. At that time it was called Phase 1, open does escalation study of the safety and pharmacokinetics of...
Forum:
her2group
03-04-2015, 02:11 PM
Replies:
49
Ugh Brain Mets!
Views:
25,247
Posted By
Barbara H.
Re: Ugh Brain Mets!
Hi DizzyDo,
I had surgery and stereotactic radiation for a 3 cm tumor to my pre-frontal cortex in 2004. I also hated the Dex. I am on Tykerb and Herceptin and continue to be NED. My thoughts are...
Forum:
her2group
03-04-2015, 02:01 PM
Replies:
36
Adriana Mangus has her wings
Views:
6,185
Posted By
Barbara H.
Re: Adriana Mangus has her wings
I was upset and sad to read that Adriana is no longer with us. I enjoyed reading her posts and will miss her. My thoughts go out to her friends and family.
Thinking of you!
Barbara H.
Forum:
her2group
01-30-2014, 04:00 PM
Replies:
12
How long have I go left? "I can’t go on. I’ll go on.”
Views:
2,921
Posted By
Barbara H.
Re: How long have I go left? "I can’t go on. I’ll go on.”
It will be ten years in May that I was diagnosed with with a 3cm brain met as will as mets in other areas. I was originally diagnosed in 1998. I am currently NED. Tykerb (4 pills in the morning)...
Forum:
her2group
01-16-2014, 07:14 PM
Replies:
16
Our Sweet Sheila
Views:
4,745
Posted By
Barbara H.
Re: Our Sweet Sheila
Thank you for sharing. Sheila was so giving of herself. I will never forget her.
Barbara H.
Forum:
her2group
12-30-2013, 12:00 AM
Replies:
189
NEDenise Has Died
Views:
39,747
Posted By
Barbara H.
Re: NEDenise Has Died
I was not shocked, but shaken when I logged on and learned about Denise. I was waiting to be unhooked from my Herceptin at 7:30 a.m. I then had to leave for school and teach for the rest of the...
Forum:
her2group
06-23-2013, 05:56 PM
Replies:
68
Hema
Views:
13,113
Posted By
Barbara H.
Re: Hema
You are a wonderful husband. My thoughts are with you, Hema and your Family.
Barbara H.
Forum:
her2group
06-16-2013, 01:24 PM
Replies:
26
Kadcyla & Perjeta, Thank You, But It's Over Now
Views:
4,253
Posted By
Barbara H.
Re: Kadcyla & Perjeta, Thank You, But It's Over Now
KDR,
I am very sorry to hear that you are going on to a new treatment. I am in awe of your positive nature. I hope that your next trial works for a long time and that it is easy to tolerate,
Best...
Forum:
her2group
06-16-2013, 01:19 PM
Replies:
49
Steroid Smackdown Round 3!
Views:
10,620
Posted By
Barbara H.
Re: Steroid Smackdown Round 3!
Hi Denise.
I am hoping that you hear good new. I do not have to drink the white stuff, although I did at the beginning. They offer other flavors that taste like juice. You should request that, ...
Forum:
her2group
06-14-2013, 04:44 PM
Replies:
49
Steroid Smackdown Round 3!
Views:
10,620
Posted By
Barbara H.
Re: Steroid Smackdown Round 3!
Hi Denise,
I look everyday for your posts, and am so glad to hear this positive news. I "hated" that drug and was manic when I was on it. One night I woke up and told my husband, " I could be...
Forum:
her2group
06-07-2013, 05:10 PM
Replies:
43
Remembering jml our Jessica
Views:
26,406
Posted By
Barbara H.
Re: Remembering jml our Jessica
My heart just goes out to Jessica's family. This news just shocks me, in spite of the fact that I knew that she was not doing well. In addition, I feel for all of our HER2 families (and I say...
Forum:
her2group
05-30-2013, 02:23 PM
Replies:
25
Doxil...q28 days -time is of the essence
Views:
3,508
Posted By
Barbara H.
Re: Doxil...q28 days -time is of the essence
Jessica,
My thoughts are with you. I hope the Doxil works for you and gives you more time. Enjoy each day as best as you can. I am glad your mom is with you for support.
Please continue to write...
Forum:
her2group
05-29-2013, 06:14 PM
Replies:
60
Not ready
Views:
7,184
Posted By
Barbara H.
Re: Not ready
I will be thinking of you. These procedures are not fun.
Barbara H.
Forum:
her2group
04-29-2013, 03:24 PM
Replies:
38
Remembering Chrisy
Views:
6,801
Posted By
Barbara H.
Re: Remembering Chrisy
My thoughts go out to Chrisy's family. I was just heartbroken to hear this news. We were pioneers of the The TDM-1 trail, and when she continued on the trial into the third year, I just expected...
Forum:
her2group
04-17-2013, 01:53 PM
Replies:
39
Passing
Views:
4,630
Posted By
Barbara H.
Re: Passing
I am so sorry to hear of your mother's passing and of your loss. She was loved and highly regarded here. She had so much wisdom to offer us. I think of her often and will miss her.
Kind regards,...
Forum:
her2group
04-11-2013, 09:16 AM
Replies:
13
the day has finally come--- benefit evaluated of herceptin+lapatinib WITHOUT CHEMO!!
Views:
2,740
Posted By
Barbara H.
Re: the day has finally come--- benefit evaluated of herceptin+lapatinib WITHOUT CHEM
I have been on Herceptin and Tyberb since I went off the TDM-1 trial at the end of 2009. I only take 4 tablets. I find this combination very easy to tolerate and it is working for me.
Best,...
Forum:
her2group
04-07-2013, 11:28 AM
Replies:
165
update I hate to give (with a little more positive spin)
Views:
26,970
Posted By
Barbara H.
Re: update I hate to give (with a little more positive spin)
Hi Chris,
I have been checking in everyday to hear how you were doing, and like others have said so eloquently, this is also not the news that I wanted to hear. You have been such a kind and...
Forum:
her2group
03-29-2013, 05:41 PM
Replies:
24
Haven't been on this board for nearly 3 years
Views:
4,794
Posted By
Barbara H.
Re: Haven't been on this board for nearly 3 years
As a parent my heart goes out to you. I also agree that it is good advice to listen to her and to acknowledge her fears and sadness. I also understand that her oncologists need to be honest with...
Forum:
her2group
03-29-2013, 04:51 PM
Replies:
14
Happy Birthday Mom (Sheila)
Views:
1,893
Posted By
Barbara H.
Re: Happy Birthday Mom (Sheila)
Thank you for reminding us of your mom's birthday, Jen. After reading your post, I thought of her all day. She was such a support to me. I will never forget her.
Thinking of you,
Barbara H.
Forum:
her2group
03-28-2013, 03:53 PM
Replies:
113
Chemo Failure #3...now I'm doing what???
Views:
17,075
Posted By
Barbara H.
Re: Chemo Failure #3...now I'm doing what???
Chris,
My thoughts continue to be with you. You are a a role model to me, and I am impressed with your determination.
Sending you positive thoughts!!
Barbara H.
Forum:
her2group
03-28-2013, 03:46 PM
Replies:
47
Progression or Necrosis in the brain?
Views:
5,949
Posted By
Barbara H.
Re: Progression or Necrosis in the brain?
I had necrosis twice after brain surgery, and did have the surgery twice to have it removed. It does grow so it is highly possible that you have necrosis instead of progression. I wouldn't recommend...
Forum:
her2group
03-08-2013, 03:31 PM
Replies:
113
Chemo Failure #3...now I'm doing what???
Views:
17,075
Posted By
Barbara H.
Re: Chemo Failure #3...now I'm doing what???
Chris,
Your post just broke my heart. I remember when you went on TDM-1 and it was working so well for you. We were on it for a while at the same time.
TDM-1 was working so well for you that I...
Forum:
her2group
02-23-2013, 06:02 PM
Replies:
54
T DM-1 Approved !!
Views:
7,154
Posted By
Barbara H.
Re: T DM-1 Approved !!
I jumped for joy when I heard this news. I believe that I was one of the first to be given this drug on this website. It was truly a miracle drug for me. I was on a stage one trial and received it...
Forum:
her2group
02-09-2013, 12:15 PM
Replies:
14
Acrylic nails
Views:
5,139
Posted By
Barbara H.
Re: Acrylic nails
I am also in the same situation. I am currently on Tykerb and Herceptin as long as it continues to work. I know that we are not supposed to do our nails, but they also break and bleed. My fingers...
Forum:
her2group
12-27-2012, 08:08 PM
Replies:
9
working while on taxol?
Views:
2,807
Posted By
Barbara H.
Re: working while on taxol?
I was first diagnosed in 1998. I had AC and then Taxol. I started AC during the summer and finished Taxol on Dec. 24th. I teach and worked the entire time. I actually found Taxol to be more...
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