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Showing results 1 to 25 of 57
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Posts Made By:
KaiM
Forum:
Herceptin / Tykerb
01-08-2020, 11:30 PM
Replies:
10
After 9 years on Herceptin,heart ef crash
Views:
11,221
Posted By
KaiM
Re: After 9 years on Herceptin,heart ef crash
Diana, I have been on Herceptin since 2011 and did experience a significant drop in my EF about two years ago. The cardiologist put me on Cardivolol and Lisinopril and I took a six week break on...
Forum:
her2group
04-13-2019, 04:22 PM
Replies:
12
Will be 8yrs NED from Stage IV in April
Views:
4,737
Posted By
KaiM
Re: Will be 8yrs NED from Stage IV in April
Congrats Kim!! I will be joining the 8 year club with you this year! Diagnosed stage 4 de novo in 2011 with a three month old and Mets to my liver, lungs and throughout my bones I am on vitamin H and...
Forum:
her2group
03-19-2019, 11:24 PM
Replies:
16
Anyone Stage IV De Novo With 10+ Years NED?
Views:
15,783
Posted By
KaiM
Re: Anyone Stage IV De Novo With 10+ Years NED?
Diagnosed Stage 4 de novo in 2011 with a 3 month old baby. After surgery and a course of TCH, I have been stable on a cocktail of Herceptin and Tykerb since, almost 8 years! So much has changed since...
Forum:
her2group
03-19-2019, 11:12 PM
Replies:
3
herceptin injection approved!!!!
Views:
2,946
Posted By
KaiM
Re: herceptin injection approved!!!!
I have been following the approval of this new Vit H shot and I am wondering if anyone knows how they cater the volume of drug in the injection to your body weight?
Forum:
her2group
03-06-2017, 10:45 PM
Replies:
40
15 years stage IV - no drugs in 8yrs - still NED
Views:
20,698
Posted By
KaiM
Re: 15 years stage IV - no drugs in 8yrs - still NED
Steph, what wonderful news! I do not visit this site as often as I did the first couple years after my diagnosis. Your story has always stuck with me and given me hope. Please never stop sharing your...
Forum:
her2group
03-08-2016, 09:05 PM
Replies:
17
discovering why some Stage IVs are exceptional responders to herceptin/lapatinib(long
Views:
6,370
Posted By
KaiM
Re: discovering why some Stage IVs are exceptional responders to herceptin/lapatinib(
I am not sure if I qualify as a long term responder yet, but I sure do plan on getting there. I believe the reason I have been stable/NED since I finished my initial chemo and switched to Herceptin...
Forum:
her2group
02-13-2016, 11:27 AM
Replies:
389
Calling all stage iv sisters
Views:
168,609
Posted By
KaiM
Re: Calling all stage iv sisters
I haven't posted here in a long time, but wanted to check in to give hope where I can. I need to update my signature, as my latest scan (Jan) still shows all is stable for me. I have been on...
Forum:
her2group
01-19-2015, 09:06 PM
Replies:
16
How many of us are taking some kind of medication for depression?
Views:
3,181
Posted By
KaiM
Re: How many of us are taking some kind of medication for depression?
I was having such bad anxiety attacks after diagnosis I would hardly sleep, and then after several rounds of chemo was experiencing intense hot flashes a dozen times a day. My doc put me on Paxil to...
Forum:
her2group
12-23-2014, 09:29 PM
Replies:
19
More Good Results on Perjeta
Views:
3,351
Posted By
KaiM
Re: More Good Results on Perjeta
Yay! That sure is the best gift! May NED be just around the corner for you in 2015 :)
Forum:
her2group
12-12-2014, 08:42 PM
Replies:
14
Alcohol
Views:
4,121
Posted By
KaiM
Re: Alcohol
I'm in the same boat as Amy, stage 4 from the get go, not worried about reaccurance. I have never been a big drinker, but I do enjoy a drink here and there. I stopped completely when I was first...
Forum:
her2group
12-12-2014, 08:32 PM
Replies:
19
Six Year Anniversary
Views:
3,316
Posted By
KaiM
Re: Six Year Anniversary
What a beautiful post! Congrats Alice! And many many more to come!
Forum:
her2group
12-12-2014, 08:24 PM
Replies:
6
Reconstruction Re-do?
Views:
2,348
Posted By
KaiM
Re: Reconstruction Re-do?
I agree with everyone, it is you who have to live with and in your body for the rest of your life, so it is very important you discuss your feeling with your PS. It is not vain, especially if it is...
Forum:
her2group
12-12-2014, 08:12 PM
Replies:
15
Sheila gone 2 years but never forgotten..
Views:
3,675
Posted By
KaiM
Re: Sheila gone 2 years but never forgotten..
I miss Sheila, her warmth and intelligence remain with me.
Forum:
her2group
12-12-2014, 08:09 PM
Replies:
6
Simple cheap drugs already approved vs. osteoporosis may prevent, reverse her2+breast
Views:
4,575
Posted By
KaiM
Re: Simple cheap drugs already approved vs. osteoporosis may prevent, reverse her2+br
Very interesting! I have been on biophosphates (zoo meta and Xgeva) since my initial diagnosis three years ago and as Gumby said 'all is good'!
Forum:
her2group
12-10-2014, 10:04 AM
Replies:
2
Emotional Rollercoaster
Views:
2,004
Posted By
KaiM
Emotional Rollercoaster
The last week was quite a ride for me. I had my routine 3 month scan on Monday, and then on the way home stopped for some lunch. As I was leaving I heard my name and turned around to see a mom from...
Forum:
her2group
12-08-2014, 10:38 AM
Replies:
38
Sign Petition to Stop Delay of the GP2 Vaccine
Views:
13,609
Posted By
KaiM
Re: Sign Petition to Stop Delay of the GP2 Vaccine
Signed. Thanks Phil!
Forum:
her2group
12-01-2014, 05:13 PM
Replies:
49
Prayers for Kristin Schwick
Views:
10,334
Posted By
KaiM
Re: Prayers for Kristin Schwick
My heart is breaking at this news. I shared a bond with Kristin, being a mom with young ones and a stage IV diagnoses from the gate. I pray for peace and strength for her family.
Forum:
her2group
11-08-2014, 07:18 PM
Replies:
7
Arizona Voters " Overwhelmingly " pass Right To Try
Views:
2,296
Posted By
KaiM
Re: Arizona Voters " Overwhelmingly " pass Right To Try
A big thank you for sharing this wonderful news and for all you do for our community.
Forum:
her2group
11-08-2014, 07:14 PM
Replies:
389
Calling all stage iv sisters
Views:
168,609
Posted By
KaiM
Re: Calling all stage iv sisters
Just checking in and hopefully giving hope to new members. I just passed my 3 year mark since being initially diagnosed stage IV. I am living a full life and raising my kiddos. I wasn't even sure my...
Forum:
her2group
11-08-2014, 07:04 PM
Replies:
49
Prayers for Kristin Schwick
Views:
10,334
Posted By
KaiM
Re: Prayers for Kristin Schwick
Kristin, I am holding you and your family in my heart. Sending prayers for strength and comfort.
Forum:
her2group
05-26-2014, 07:54 PM
Replies:
41
Ten Years Stage 4 … and still A-OK
Views:
8,935
Posted By
KaiM
Re: Ten Years Stage 4 … and still A-OK
Yay Kim! Your story gives me a bucket of hope, thank you! And Happiest of Birthdays!
Forum:
her2group
03-23-2014, 09:33 PM
Replies:
7
Chronic pain- who's got it?
Views:
2,563
Posted By
KaiM
Re: Chronic pain- who's got it?
No Evidence of Dead! That's my new definition of NED, thanks Kristin! ((Hugs))
Forum:
her2group
03-23-2014, 09:30 PM
Replies:
3
The Support of Friends in the Battle
Views:
1,770
Posted By
KaiM
Re: The Support of Friends in the Battle
Amazing display of friendship!
Forum:
her2group
03-23-2014, 09:29 PM
Replies:
2
Safe zometa interval for bone metastases
Views:
1,522
Posted By
KaiM
Re: Safe zometa interval for bone metastases
I have always gotten my bone strengthening meds at six week intervals too. I started two years ago on zoo meta and just recently switched to Xgeva only because it is given as an injection and cuts...
Forum:
her2group
03-19-2014, 07:59 PM
Replies:
7
Chronic pain- who's got it?
Views:
2,563
Posted By
KaiM
Re: Chronic pain- who's got it?
Kristin, I have bone mets to my spine, pelvis and sternum. I totally understand the pain, and have used different over the counter and prescrip meds to deal with the pain. The weird thing now is that...
Showing results 1 to 25 of 57
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