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Posts Made By:
SoCalGal
Forum:
her2group
09-05-2022, 02:25 PM
Replies:
11
AndiBB
Views:
6,758
Posted By
SoCalGal
Re: AndiBB
Re: AndiBB
I met Andi and her husband Paul a few times when they were in Los Angeles. Their daughter Pammy and fam was living out here. Andi and I sat in my living room and talked our heads off....
Forum:
her2group
06-13-2021, 10:47 PM
Replies:
12
Hello from Flori
Views:
8,081
Posted By
SoCalGal
Hello from Flori
Dropping by to say hello - it's now 14 years that I'm living with her2+MBC. This was my tweet from Friday, and I thought I'd share here, back to my her2 roots!!
In ‘96 was diagnosed w Her2+...
Forum:
her2group
03-14-2020, 09:20 PM
Replies:
22
ENHERTU aka DS8401A
Views:
17,644
Posted By
SoCalGal
Re: ENHERTU aka DS8401A
I can't believe these crazy times...hope everyone is staying safe, germ free, and social distancing. It 'aint easy, with the run on food and toilet paper, people seem to have lost their minds.
...
Forum:
her2group
02-25-2020, 10:22 AM
Replies:
22
ENHERTU aka DS8401A
Views:
17,644
Posted By
SoCalGal
ENHERTU aka DS8401A
Good morning,
In October 2019, I applied to join a phase 1 clinical trial at UCLA of DS8401a w nivolumab for her2+ MBC (Enhertu/Opdivo). Clinical trials are arduous to join. There are so many...
Forum:
her2group
12-03-2019, 06:32 PM
Replies:
9
Looking for hope
Views:
6,487
Posted By
SoCalGal
Re: Looking for hope
@scottmac I don’t know if it’s confirmed but tucatinib is certainly expected out the first quarter of next year.
Forum:
her2group
12-02-2019, 11:42 AM
Replies:
9
Looking for hope
Views:
6,487
Posted By
SoCalGal
Re: Looking for hope
Well you’ve been on two of the top trial drugs. One is now approved (kadcyla) and tucatinib is supposed to be out first quarter of 2020. Also due first quarter is ds8201. So you’ve picked a good time...
Forum:
her2group
12-01-2019, 10:18 PM
Replies:
9
Looking for hope
Views:
6,487
Posted By
SoCalGal
Re: Looking for hope
What trial are you on and how are you doing, are you NED or stable or what?
Forum:
her2group
10-30-2019, 10:58 PM
Replies:
9
Add me to the Thirteen Year Club!
Views:
6,790
Posted By
SoCalGal
Re: Add me to the Thirteen Year Club!
excellent news! Keep going...
xoxo
Forum:
her2group
09-07-2019, 08:14 AM
Replies:
72
Whack-a-mole next...
Views:
46,844
Posted By
SoCalGal
Re: Whack-a-mole next...
Good news on brain/cervical MRI—NOTHING NEW in head and spinal cord met has shrunk way down. Brain met also shrinking — no swelling in cerebellum and nothing to correlate or cause vertigo so with...
Forum:
her2group
09-03-2019, 08:27 PM
Replies:
72
Whack-a-mole next...
Views:
46,844
Posted By
SoCalGal
Re: Whack-a-mole next...
My apologies for not responding sooner, it’s very difficult to find the words. I’ve been given an average lifespan of 6 mos. and I’m just trying to deal the best I can. Feel free to friend me on...
Forum:
her2group
09-03-2019, 11:58 AM
Replies:
72
Whack-a-mole next...
Views:
46,844
Posted By
SoCalGal
Re: Whack-a-mole next...
Hi Lovely people,
Sorry I’ve been so remiss in updating - my emotional state has been garbage. After so many years of coping with this beast of a disease, to wind up with LMD and CNS and not...
Forum:
her2group
06-22-2019, 01:13 PM
Replies:
72
Whack-a-mole next...
Views:
46,844
Posted By
SoCalGal
Whack-a-mole next...
Welp...after 12 years of MBC and constant treatment, my slow progression has finally sped up. Latest PETscan showed mucho metabolic activity in sternum, manubrium and lungs.
BRAIN MRI
Brain...
Forum:
her2group
05-24-2019, 09:45 PM
Replies:
111
ZW25 clinical trial - day one
Views:
42,585
Posted By
SoCalGal
Re: ZW25 clinical trial - day one
Lucy thanks for the reminder, you are right, my mind is racing. Big hugs, Flori
Forum:
her2group
05-24-2019, 05:44 PM
Replies:
111
ZW25 clinical trial - day one
Views:
42,585
Posted By
SoCalGal
Re: ZW25 clinical trial - day one
My scan showed quite a bit of progression. Going for brain mri tomorrow plus cervical. Next week thoracic and lumbar spine MRI’s. I dont have pain but have random numbness on my NON-cancer right...
Forum:
her2group
04-23-2019, 04:34 PM
Replies:
111
ZW25 clinical trial - day one
Views:
42,585
Posted By
SoCalGal
Re: ZW25 clinical trial - day one
Thanks everyone...will update after scan results and doctor visit on Friday. xoxo
Forum:
her2group
04-23-2019, 04:32 PM
Replies:
7
Could this be Skin Mets?
Views:
4,136
Posted By
SoCalGal
Re: Could this be Skin Mets?
Highly unlikely, especially since your surgeon saw and was unconcerned - seems like a surgeon would recognize mets when he/she saw them. I had skin lymphatic involvement way back in 2004, and mine...
Forum:
her2group
04-17-2019, 07:29 AM
Replies:
124
Treatment after Kadcyla?
Views:
43,972
Posted By
SoCalGal
Re: Treatment after Kadcyla?
Heartbreaking news. I am so sorry for your loss, Iain. Your mom will be sorely missed, she was a sweetheart, kind and supportive to all. Thanks for letting us know. May her memory be a blessing to...
Forum:
her2group
04-12-2019, 05:37 PM
Replies:
111
ZW25 clinical trial - day one
Views:
42,585
Posted By
SoCalGal
Re: ZW25 clinical trial - day one
Hi Gals,
Well...I'm not going to continue with the trial. My decision for a variety of reasons, but rising markers and just can't take the USC Norris environment and the lack of proper medical...
Forum:
her2group
03-06-2019, 12:31 PM
Replies:
16
7 years stage IV
Views:
5,358
Posted By
SoCalGal
Re: 7 years stage IV
I'm almost 12 years stage 4 so try to catch up with me!! Also, you might want to take advantage of recently approved Herceptin as a shot!! NO more infusions. Congrats on the 7 years...keep going :) ...
Forum:
her2group
03-06-2019, 12:27 PM
Replies:
3
herceptin injection approved!!!!
Views:
3,030
Posted By
SoCalGal
herceptin injection approved!!!!
Lani posted the links and info in a separate thread - but subcutaneous herceptin is now approved in the USA!!!!
For those who are on herceptin only or herceptin with an oral agent, this could be...
Forum:
her2group
03-06-2019, 12:22 PM
Replies:
124
Treatment after Kadcyla?
Views:
43,972
Posted By
SoCalGal
Re: Treatment after Kadcyla?
Hello Juls--Am thinking of you. [[[hugs]]]
Forum:
her2group
03-06-2019, 12:12 PM
Replies:
111
ZW25 clinical trial - day one
Views:
42,585
Posted By
SoCalGal
Re: ZW25 clinical trial - day one
Had treatment yesterday - ZW #10.
Had to push it up a week bc sponsor didn't have my drug lot ready on time and trial hosts called me to reschedule. Well, first they asked me to reschedule a day...
Forum:
her2group
02-04-2019, 07:57 PM
Replies:
110
almost 14 years NED breast cancer and apparently it's back in my lungs
Views:
44,580
Posted By
SoCalGal
Re: almost 14 years NED breast cancer and apparently it's back in my lungs
Just saying hello! Thinking of you...
Forum:
her2group
02-04-2019, 07:56 PM
Replies:
16
Pericarditis Query
Views:
5,772
Posted By
SoCalGal
Re: Pericarditis Query
Just catching up, Marie, hope you're feeling better!!
Forum:
her2group
02-04-2019, 06:56 PM
Replies:
124
Treatment after Kadcyla?
Views:
43,972
Posted By
SoCalGal
Re: Treatment after Kadcyla?
Juls
Not sure why your onco doesn't seem forthcoming with info. I am frustrated on your behalf!!
Can you search with this link from breastcancer.org? they have a good metastatic search engine. ...
Showing results 1 to 25 of 500
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