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Posts Made By:
Donna H
Forum:
her2group
02-10-2024, 01:42 PM
Replies:
3
Pink eraser
Views:
3,116
Posted By
Donna H
Re: Pink eraser
Thanks for the intel. I have an oncology appointment Friday and will ask my doctor about it.
Forum:
her2group
02-05-2024, 06:16 PM
Replies:
3
Pink eraser
Views:
3,116
Posted By
Donna H
Pink eraser
Has anyone heard of or know about the Pink Eraser trials? It is more of a vaccine than treatment, from what I understand
Forum:
her2group
12-08-2023, 01:00 PM
Replies:
4
Tukysa
Views:
2,887
Posted By
Donna H
Re: Tukysa
Forgot to say, yes my side effects are the same as what your wife is experiencing. I was cautioned about the peeling and blistering palms of hands and soles of feet....trying to stay head of that!
Forum:
her2group
12-08-2023, 11:44 AM
Replies:
4
Tukysa
Views:
2,887
Posted By
Donna H
Re: Tukysa
My progression was shown on bone scan and ct scans.
Forum:
her2group
12-06-2023, 08:57 AM
Replies:
4
Tukysa
Views:
2,887
Posted By
Donna H
Tukysa
Is anyone on Tukysa? I had progression on Enhertu, so have switched to Tukysa and capecitabine. Both are oral chemos.
Forum:
her2group
10-31-2023, 06:43 AM
Replies:
7
Her 2 climb with doxil (doxorubicin)
Views:
2,861
Posted By
Donna H
Re: Her 2 climb with doxil (doxorubicin)
I am also on Enhertu but have no experience with this trial. But I am interested to hear any comments. I had progression while on Enhertu, so my dose was increased and I had 10 radiation...
Forum:
her2group
04-29-2023, 06:48 AM
Replies:
1
18 years
Views:
2,658
Posted By
Donna H
Re: 18 years
Congrats on 18 years!
Forum:
her2group
04-17-2023, 08:09 AM
Replies:
3
Evusheld
Views:
3,002
Posted By
Donna H
Re: Evusheld
I was told the trial has been canceled because it didnt seem effective against the new variants. Maybe an updated version is being worked on? I need to ask if I should get another booster when...
Forum:
her2group
03-27-2023, 09:08 AM
Replies:
3
Evusheld
Views:
3,002
Posted By
Donna H
Re: Evusheld
I started Evusheld the beginning of this year. So far so good! And no apparent side effects.
Forum:
her2group
02-22-2023, 02:19 PM
Replies:
26
Enhertu
Views:
8,415
Posted By
Donna H
Re: Enhertu
I get echos every 3 months, and I also get bone and ct scans every 3 months. So far the echos have always been good. The other scans have been stable since I started on Enhertu.
Forum:
her2group
02-17-2023, 09:12 AM
Replies:
26
Enhertu
Views:
8,415
Posted By
Donna H
Re: Enhertu
I dont have chills as such but I am cold most of the time. I layer up like Im living in at the north pole.
I have been on Enhertu for over a year now. Crazy it has been so long. Last scans...
Forum:
her2group
09-24-2022, 07:32 AM
Replies:
26
Enhertu
Views:
8,415
Posted By
Donna H
Re: Enhertu
I have bone mets and am on Enhertu - just had 11th treatment. Bone mets (left femur, spine and pelvis) are either stable or slightly reduced according to last scan. I have next scans on Oct 17th.
...
Forum:
her2group
07-27-2022, 01:26 PM
Replies:
26
Enhertu
Views:
8,415
Posted By
Donna H
Re: Enhertu
Got my scan results. All look good - either stable or reduction in tumor size. I see my oncologist Friday to discuss in detail and get another treatment of Enhertu. BTW - I had to shave my head...
Forum:
her2group
07-11-2022, 12:32 PM
Replies:
26
Enhertu
Views:
8,415
Posted By
Donna H
Re: Enhertu
Not my hands, but my eye lids have gotten darker - almost like I have eye shadow on when I dont (and not a very attractive color!!). My digestive tract is still having a difficult time adjusting. ...
Forum:
her2group
06-11-2022, 12:48 PM
Replies:
26
Enhertu
Views:
8,415
Posted By
Donna H
Re: Enhertu
I just had my 7th Enhertu yesterday. Felt really off last night - exceptionally tired - yet I woke up at 3:30 this morning! My dose and pre-meds have been adjusted to better manager side effects....
Forum:
her2group
05-18-2022, 09:37 AM
Replies:
14
radio-embolization
Views:
6,373
Posted By
Donna H
Re: radio-embolization
Turns out i needed a second Y90 radioembolization. Doc found 2 new tumors while doing the first procedure and those were in the other lobe of the liver so couldnt be addressed at the first...
Forum:
her2group
05-18-2022, 09:31 AM
Replies:
26
Enhertu
Views:
8,415
Posted By
Donna H
Re: Enhertu
Just Enhertu plus premeds and at home anti nausea meds.
Forum:
her2group
03-11-2022, 07:44 AM
Replies:
26
Enhertu
Views:
8,415
Posted By
Donna H
Re: Enhertu
Hi Smim-
I dont know how to access the group on facebook. I have never been a facebook user. I get treatment #3 next Friday. So far, the worst side effects have fatigue and constipation. And...
Forum:
her2group
01-26-2022, 08:16 AM
Replies:
26
Enhertu
Views:
8,415
Posted By
Donna H
Re: Enhertu
Thanks. I'm not on facebook.....but I might have to join just for that.
Forum:
her2group
01-24-2022, 11:56 AM
Replies:
26
Enhertu
Views:
8,415
Posted By
Donna H
Enhertu
I had my first treatment with Enhertu on Friday. So far the side effects are minimal - I have a stomach ache and the usual fatigue. Of course, both could still be a result of the second Y90...
Forum:
her2group
01-18-2022, 09:45 AM
Replies:
5
No more 10 years
Views:
4,433
Posted By
Donna H
Re: No more 10 years
Hi-
I will be starting Enhertu this Friday. The Herceptin/Perjeta combo wasn't working so on to a new option. I am glad to have options - just wish they weren't needed! I will let you know how it...
Forum:
her2group
11-24-2021, 12:02 PM
Replies:
6
Goodbye Herceptin?
Views:
6,009
Posted By
Donna H
Re: Goodbye Herceptin?
My insurance (here in the US) only covers bio-similars as well.
Forum:
her2group
11-05-2021, 07:49 AM
Replies:
14
radio-embolization
Views:
6,373
Posted By
Donna H
Re: radio-embolization
I had the Y90 treatment on Tuesday. SO far so good - although Tuesday night and Wednesday morning were rough. Strange thing, on the doctors report of the procedure said the 2 new tumors he saw...
Forum:
her2group
10-27-2021, 09:08 AM
Replies:
14
radio-embolization
Views:
6,373
Posted By
Donna H
Re: radio-embolization
The procedure is scheduled for Tuesday. During the mapping procedure, the onc discovered 2 new tumors on my liver. So if the first procedure goes well, I will need a second to take care of the 2...
Forum:
her2group
10-04-2021, 11:28 AM
Replies:
14
radio-embolization
Views:
6,373
Posted By
Donna H
Re: radio-embolization
Mapping procedure is scheduled for the 14th. Any thoughts on taking the risk of the actual procedure (assuming I am a candidate)? My husband and friends all think I should absolutely do it. But as...
Showing results 1 to 25 of 257
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