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-   -   COMPASSIONATE CARE brings a chance at life (https://her2support.org/vbulletin/showthread.php?t=59429)

Andrea Barnett Budin 10-31-2013 01:59 PM

COMPASSIONATE CARE brings a chance at life
 
I recently saw a post on FB about a woman with ovarian cancer seeking compassionate care of BioMarin. She'd been denied. She was told if they made an exception for her, blah, blah...

A flood of calls went into Rep Huffman's office in Texas.

Supporters started an aggressive lobbying campaign and a dear friend posted a petition on CHANGE.ORG

I signed that petition last month. I, and apparently, many others, found her story compelling.

In cancer drug battle, both sides appeal to ethics - CNN.com

And the pharmaceutical company has changed it's mind.

BioMarin denies 'compassionate use' of experimental drug, considers adding cancer patient to clinical trial - Marin Independent

As Lani's thread INTERESTING ARTICLE FROM NYT indicates...

We must never give up. Sometimes, we must find a way around...




Andi


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