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COMPASSIONATE CARE brings a chance at life
I recently saw a post on FB about a woman with ovarian cancer seeking compassionate care of BioMarin. She'd been denied. She was told if they made an exception for her, blah, blah...
A flood of calls went into Rep Huffman's office in Texas. Supporters started an aggressive lobbying campaign and a dear friend posted a petition on CHANGE.ORG I signed that petition last month. I, and apparently, many others, found her story compelling. In cancer drug battle, both sides appeal to ethics - CNN.com And the pharmaceutical company has changed it's mind. BioMarin denies 'compassionate use' of experimental drug, considers adding cancer patient to clinical trial - Marin Independent As Lani's thread INTERESTING ARTICLE FROM NYT indicates... We must never give up. Sometimes, we must find a way around... Andi |
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