Stage IV Metsters
 

FYI: If you are interested in a private facebook page that ONLY allows metsters living with active disease, let me know via PM. While we are all in this together and pain is pain, a lot of what a metster in treatment goes through is different than what an early stage person goes through. And, sometimes it is hard to find somebody to talk to - do you know there are only about 30 groups for BC metsters in the entire US?

We talk about our treatments, our scans, our successes, our failures, new tx's just for metsters, etc. (It is not limited to HER2 so tell your friends). If you are lucky enough to have been NED for many years, I don't think this group is for you as it is to share treatment stories and current experiences but you obviously are what we dream about becoming!

So, let me know and I'll connect you. It's private and nobody will read it but others with mets. It's a quiet group so far but maybe we can get it more active.

Re: Stage IV Metsters
 

Hi CB I also administer a group for women with stage 4 - there are nearly 40 of us - we are mainly Australian but have some UK snd US members too. We wise our group is skewed toward the ore menopausal with most in late 30s 40s. We have had some losses over the past month which has been very hard but it is good to support each other.

Re: Stage IV Metsters
 

Hi Amanda. Well, let me know if you have room for an American with liver mets. :) No pressure, if you are at the right number, I'm okay with that.

*hugs*

Ann

Re: Stage IV Metsters
 

https://www.facebook.com/groups/256824651085503/

Hopefully the link works - you can request to Jin. We would love to have you in our group.
Amanda

Re: Stage IV Metsters
 

bumping it up in case anyone else might be interested in these groups. :)