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fullofbeans 12-13-2012 06:25 PM

my new Unicorn
 
Dear Ladies,

The biopsy an blood results are back and this coming Monday(17th) Iwill receive my first dose of the shinogi and if I react well to this Japonese drug on phase 1b then this is to become my new Unicorn. I say unicorn as oppose to Trojan horse because it carries a lot of my dreams..

The results are good I think for a phase 1a. A small half of patients are showing some sort of responses (at escalating dose) with one complete response from a Her2 BC patient (out of 19 patients trialled) with 2pts on it over> 12 months. I am now on the phase 1b (i.e we know the dose)

http://www.asco.org/ASCOv2/Meetings/...stractID=93825

I am always so tired now and in turn I find it quite isolating, lucky I have the sweetest and funniest dog in the world with me. So I pray that this give me a break, a long break, a long long break... Please send me good words and wishes and healing thoughts that this will work for me because sometimes it's hard to keep my hopes up and I always used to have limited faith in inhibitors.. I want to be proven so very wrong.

Laurel 12-13-2012 06:33 PM

Re: my new Unicorn
 
Prayers and good wishes coming from across the pond! Hoping this is your magic bullet!

Pamelamary 12-13-2012 07:02 PM

Re: my new Unicorn
 
Fingers and toes crossed for you! Hope your energy levels improve - that dog looks like it needs a bit of walking....
Best wishes from Australia..... Pam

'lizbeth 12-13-2012 07:25 PM

Re: my new Unicorn
 
Beans,

I am wishing you the best results. I hope this is a miracle for you! NED is what we would love to happen.

Mandamoo 12-13-2012 08:12 PM

Re: my new Unicorn
 
Fob - may your unicorn carry you and your dreams to fulfillment!

Mtngrl 12-13-2012 08:17 PM

Re: my new Unicorn
 
I see for you now a pink unicorn with purple sparkles crushing your cancer with its tiny, sharp hooves, then galloping around doing a unicorn happy dance that makes you laugh.

Bunty 12-13-2012 10:38 PM

Re: my new Unicorn
 
Sending you huge positive wishes FOB for this drug trial. It's great that you are able to participate in the trial - I certainly know nothing about this drug, so I'll be interested in reading of your experience.

I think having a dog in your life is one of the most wonderful things and your little munchkin looks adorable. When I'm feeling a bit low, I try and find some good comedy on TV, and you Poms have the best comedians and comedies. My favourites are Rob Bryden and David Mitchell at the moment I think, but there are so many......

Best wishes, Marie

KsGal 12-14-2012 04:15 AM

Re: my new Unicorn
 
Prayers coming your way. I've heard unicorns are magical creatures, and Im sure this one is going to work its magic for you. Big hugs...

Ellie F 12-14-2012 12:10 PM

Re: my new Unicorn
 
Dear Fob
As always your Brit sister is hoping for the best for you.please let us know how the trial goes. I am praying for NED!
Ellie

Shobha 12-14-2012 12:23 PM

Re: my new Unicorn
 
Praying your unicorn will indeed come through for you and wishing you NED status!!

hugs,
shobha

fullofbeans 12-17-2012 07:00 AM

Re: my new Unicorn
 
I am on the Unicorn right now attached to various monitors and getting blood test every hour for 12 h (a long day). I took the first dose today.

Thank you for all your kind words, prayers and wishes

suzan w 12-20-2012 06:21 AM

Re: my new Unicorn
 
Hey, Full of Beans!!! I have a vision of you riding that Unicorn of Hope, and "your little dog too" (from the Wizard of Oz)!!! You GO GIRL!!!!!!! XOX

Laurel 12-20-2012 03:44 PM

Re: my new Unicorn
 
Hey, Beans, how are you feeling post your first "unicorn" infusion? Is it tolerable? Hoping you are feeling well.

tricia keegan 12-20-2012 03:44 PM

Re: my new Unicorn
 
Beautiful furry friend that will help you through this, sending all the Irish luck and healing thoughts I can muster and will be keeping you in my prayers! xx

StephN 12-20-2012 05:07 PM

Re: my new Unicorn
 
Dear K -
You are another leader on this board with your throrough research and "listening to the Dalai Lama" attitude.

I, too, am hoping you do well on this - in every way!

Jackie07 12-20-2012 07:44 PM

Re: my new Unicorn
 
Full of Bean,

Love your Unicorn analogy. I'm lifting you up in my prayers while visualizing the Unicorn...

Pray 12-21-2012 01:07 AM

Re: my new Unicorn
 
Hoping and praying you are doing well.

caya 12-21-2012 11:07 AM

Re: my new Unicorn
 
FOB

Good luck with this new treatment! I am hoping your Unicorn will ride you into the sunset with NED!

all the best
caya

fullofbeans 12-25-2012 08:26 PM

Re: my new Unicorn
 
thank you all for the support. it really helps.

It's tablets treatment. last week they monitored only how I was dealing with a single dose but now since yesterday I have to take it daily, so far so good no side effects to report..

karen z 12-25-2012 10:56 PM

Re: my new Unicorn
 
I am hoping too for a great response.
All best wishes,
karen z


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