HER2 Support Group Forums - Brain mets Help! Turned down for Temodar

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Brain mets Help! Turned down for Temodar

I have 10 brain mets. Am so scared. They want to start me on Xeloda/Tykerb in a few days. My insurance won't ok the Temodar, which is what i want. Does anyone have any data to support Temodar that i can give them? Can you take Boswella along with the steroid for brain swelling? I want to get some, but don't know if I can take it together. I want to avoid wbr, going to a specialist Wed to see if he can do the srs with 10 mets. Please help me. I don't know what to do.

Thank-you everyone,
Julie

Re: Brain mets Help! Turned down for Temodar

Hi Julie
Please read the thread from midwest alice about Leslie. Courtney has replied sharing her experiences which are inspirational!
Good luck
Ellie

Re: Brain mets Help! Turned down for Temodar

http://her2support.org/vbulletin/showthread.php?t=47198

looked up via search temodar Lani and found the following threads:

Starter Last Post Replies Views Forum

More Brain Mets - New Plan Thoughts? ( 1 2 3)
CourtneyL
11-02-2010 07:41 PM
by flynny
41 1,573 her2group

Lani, propeller heads, and WBR sisters/brothers ~ looking for info and ideas ( 1 2 3)
hutchibk
09-09-2009 09:00 AM
by hutchibk
46 860 her2group

Update: Spinal Fluid me ( 1 2)
pattyz
08-27-2009 02:17 PM
by hannah
21 515 her2group

for Mighty Oak and all those battling brain mets
Lani
07-21-2009 11:27 PM
by Believe51
4 163 her2group

~Too Many Brain Mets To Count~Mighty Oak's Saga Continues... ( 1 2 3 ... Last Page)
Believe51
06-24-2009 01:13 AM
by Believe51
91 1,636 her2group

Need to help my mom! [In desperate need of Tykerb]
Bobby