update
 

well it wasn't the news I had hoped and prayer for.. but the spots on the liver have grown, lymph nodes larger, ?? spot on kidney just have to pick my stomach up and put it back where it belongs.... will see my onc tomorrow am and figure out what to do next....

Re: update
 

Sorry to hear this, but I am sure your onc. will have a plan of attack. I am praying for you.

all the best
caya

Re: update
 

MrsD, my thoughts and prayers are with you and your doctors. It seems like there are still some weapons in the arsenal for you! You hang in there and please keep your head up. Love, Bill

Re: update
 

Progression is so hard to deal with. Would a lower dosage of Xeloda be possible since it worked so well? I know you had bad side effects so it might not be possible.

I'll be praying that the onc gives you just the right combo to knock out those mets.

Tonya

Re: update
 

Sorry to hear about the progression. It's so hard to have to switch gears again. I was wondering too if you could try xeloda at a reduced dose. Hang in through this regrouping of correct treatment to work for you. I hope you get started on your new combo with little side effects and great results.

Re: update
 

Thanks all... Tonya and Pam I do believe that will be plan B..?? not sure but I am at the point of using the biggest gun I can... if we do go with the Xeloda I am hoping I can participate in the clinical trial here using Tykerb.. remember I live in Canada and I think we are a few years behind you all in the US when it comes to approved drugs...

Re: update
 

Mrsd-

I want you to know that you are in my thoughts and prayers. I look forward to the post...that I know will be coming from you...that says your onc found the magic combo and you are back in NED land.

Feel the well wishes coming your way...

Hugs,
Maureen

Re: update
 

Please hold onto your hope. As you can see from my signature, I just finished 8 weeks of Taxol and Herceptin and I am now clear. Not an easy regime, but very doable.
Please know we are all thinking of you and your struggle with this relentless disease.
Stay strong,
Emelie

Re: update
 

mrsd,
I agree, Xeloda might be a promising therapy if you can manage the side effects - I've heard some evidence that reducing the dosage does not impact the effectiveness. "Maximum tolerated dose" is not necessarily the optimum dose. If you can get this in combination with Tykerb that could be a good option - be sure to check into the trial and ask about the potential need for dose reduction on the Xeloda. Sometimes in trials they are very picky.

Anyway, sounds like there are some good options out there for you, do not lose heart.
Chris