Less than 10 hours to TDM! - Detroit update
 

Hi All,

TDM1 Update from Carolyn-
I am here all tucked into my hotel room in Detroit. I was able to go to the hospital and get the blood drawn and see if I would be good to go for tomorrow. It will save some time because they have to have the counts back before they can order the meds... so should save me about a half hour.

The nurse was so nice. She had a dinner ready for me... wow I actually cleaned the plate with the dinner roll getting every last drop. Meatloaf, mashed potatoes, and carrots... I think my Grandma in heaven was sending me a signal. They don't feed you on flights anymore and I have been too nervous to eat.

So, the blood work came back fine and we are a go for tomorrow at 7AM. Since I did the blood work I can take a corner of my Valium tonight.

Thank you so much for your support.

Love, Hope, Peace, Carolyn

Re: Less than 10 hours to TDM! - Detroit update
 

Best to you. I am so glad all systems are go for you.
Rest well and my prayers are with you tomorrow.
patb

Re: Less than 10 hours to TDM! - Detroit update
 

Carolyn wishing you the best tomorrow and also for a great success in this trial.

Re: Less than 10 hours to TDM! - Detroit update
 

Carolyn, good luck tomorrow - I know you will do fine! You should bring some snacks as it may be a long day, unless you can get that nurse to bring you some more goodies!

Re: Less than 10 hours to TDM! - Detroit update
 

Thanks for the update, Caroline.

I will be thinking of you tomorrow. Hope everything goes well.

Re: Less than 10 hours to TDM! - Detroit update
 

Carolyn
I am so happy for you....good luck today, you will be in my thoughts...hoping this is your golden ticket at taking the reigns on this disease!

Re: Less than 10 hours to TDM! - Detroit update
 

My, that treatment room is going to be very full because we are all right there with you!!

Sending you loads of encouragement!!

Re: Less than 10 hours to TDM! - Detroit update
 

Carolyn,

Thanks for the update. Let us know how things went today.

Amelia

Re: Less than 10 hours to TDM! - Detroit update
 

Hi All -

I am on hold. It seems that I got some sort of infection that showed up in the form of a fever and vomiting on TDM! day. Therefore, no treatment and I have been admitted to the hospital until at least Monday. Everyone must where a mask when they come in although the cultures for swine flu came back negative.

Carolyn

Re: Less than 10 hours to TDM! - Detroit update
 

Hope and pray you are back on track for your new treatment soon. Your TDM journey is very exciting and glad you don't have the swine flu!!

Hugs, Alice

Re: Less than 10 hours to TDM! - Detroit update
 

I mean I have never been the one to take the easy way but this is getting a little much... ha, ha.

So far everything is back to normal and I feel almost myself again. No fever, no virus and everything is back to normal. Just some wild crazy one day bug on TDM! day. Go figure... I guess this hasn't been challenging enough just a few more speed bumps - ehhh?

Anyway, I will be going home again and wait to see when I can try again. 3 trips and still no meds. Anyway, I am sure there is a reason for all of this and I guess as they say - this will just make me stronger.

I am feeling much better and I hope to break out and go home soon.

Thanks, Carolyn

Re: Less than 10 hours to TDM! - Detroit update
 

Gods speed, what a trip you have been on.
Take care
patb

Re: Less than 10 hours to TDM! - Detroit update
 

Following your route - so sorry that you had a glitch - I was so with your Grandma - pulling for you!

Hope you are feeling better and can get back for meds soon!

Karen

Re: Less than 10 hours to TDM! - Detroit update
 

Hi All,

I am home safe and sound. Now I just have to wait and see when I can try again. I am begining to wonder...

Thanks for all of your support.

Love, Hope, Peace, Carolyn

Re: Less than 10 hours to TDM! - Detroit update
 

Dear Carolyn -
How is it going this week??
Will they let you try again for this trial in Detroit?

Sure hope so.