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-   -   Hi from madubois63 (https://her2support.org/vbulletin/showthread.php?t=40256)

madubois63 06-30-2009 08:07 AM

Hi from madubois63
 
Well, this hasn't exactly been an easy year for me. I've been in and out of the hospital several times over the last few months for many reasons. Because of all the heavy steroids I've take, my hips have died - physically/literally. The blood flow to the bones has been cut off and the femur heads are cracked in several places and are collapsing. Originally, I needed one hip replaced but now it shows that I need both hips replaced. I was scheduled to get the first one done during the first week of June. I was breathing heavy and very exhausted. Turned out I had pneumonia. I took my first ride in an ambulance from the cancer clinic to the hospital. They didn't want to move me without oxygen. They drained my left lung (all my problems have been on the right side). I stayed for a week then got to go home. Rested, rested and then did some more resting. My liver enzymes started to go up so they wanted to put me back in for a liver biopsy last week. Since it was my daughter's prom and graduation, I asked if we could hold off until all was done and they said yes. We increased the steroids and I got to see my daughter off to the prom and attend graduation. It was amazing and another milestone for me just to be there. I came in all packed Yesterday morning to be drained and have the liver biopsy. After more blood work, they decided not to do the biopsy because my numbers are going down in response to the extra steroids (almost normal in just a few days). I am now waiting to get my lung drained and I could possibly go home today or more likely tomorrow!!! I've lost another 20 lb over the last month even though I am eating. When I went to get dressed for my daughter;s graduation, nothing fit. I was excited, but everyone is yelling at me. I truly have the weight to loose, but it needs to stop really soon. I can't afford a new wardrobe. I can't eat this morning and am starving. So that's a pretty big nutshell. Thanks to all that have missed me. I hope everyone get s some sort of relieve or a big huge miracle. Love to you all....

Shobha 06-30-2009 08:32 AM

Wonderful to hear from you, Maryann!! I am so happy to note that you attended your daughter's prom and graduation. You have fought so hard and what a proud moment it must have been to see her graduate!

We missed you.

hugs,
shobha

chrisy 06-30-2009 08:41 AM

My gosh, Maryann,

Even for you, that seems like an awful lot!!!! You sure deserve a break (and I don't mean bones).

How wonderful that you were able to see your daughter's graduation, I know that was another huge milestone for you.

Please take care of yourself, we do miss you and need you.

Much love
Chris

hutchibk 06-30-2009 09:47 AM

Thanks for the update Maryann~ wow! Take care of yourself, and I hope you get to eat soon!

Please keep us updated... what do the docs attribute the weight loss to?

Jean 06-30-2009 09:49 AM

Hi Maryann,
As usual I am always left with my jaw hanging when I read your posts...from the prom to graduation to a ride in a ambulance! You are just one amazing lady.

I always keep you in my prayers and our green lady is watching over you. Please keep us updated and I hope our hip surgery goes forward smoothly.

Sending huge hugs to you!
Jean

Mary Anne in TX 06-30-2009 10:03 AM

Maryann! Your life is a whirlwind of one more battle, then one more battle. I'm so sorry that it's going to take two hip replacements to get you fixed. I know the weight loss is good when you need it, but don't keep it up! What do they need to do to help you stop it? Your kids are the luckiest ever to have you! Keep chasing your dreams, Maryann. Lots of love and wishes for better health and No Events!!!! ma

Julie2 06-30-2009 01:47 PM

Maryann,

Thanks for the update. Please take care of yourself.

Julie

Faith in Him 06-30-2009 01:56 PM

Like others have said, you are amazing. You are an inspiration to me. I remember when your son graduated and now your daughter. What a wonderful feeling to have seen both kids graduate. That is my goal. I need ten years so I hope I get it.

I hope you are feeling better soon. Sorry that you have to go through so much.

Tonya

Patb 06-30-2009 02:23 PM

Thanks for the update and best of luck with your
hips. I was thinking of you last night since you had
not posted lately. Take care.
patb

tricia keegan 06-30-2009 03:17 PM

It's always wonderful to hear from you Maryann simply because you're such an inspirational brave lady!
You'll be in my thoughts and hope all goes well for you:)

Ellie F 06-30-2009 03:23 PM

Wow you are one brave lady. Hope things soon settle down for you.
Ellie

flynny 06-30-2009 03:49 PM

Glad to hear from you, but sorry about everything you have been going through. I hope things turn around for you soon! My thoughts are with you.

Bill 06-30-2009 04:30 PM

Madame DuBois! It's good to hear from you, but I'm sorry to hear about your hip problems. You are one tough Lady. If anyone can overcome these obstacles, you can!

DonnaD 06-30-2009 05:16 PM

Dear MaryAnn,
I am so sorry to hear you are struggling so.

You always have such a positive attitude and inspire us! Many prayers are with you.

I am sure you enjoyed every moment of your daughters prom and graduation. It is now time for you to get better and no more weight loss!

Please let us know how you are doing.
Donna

Jackie07 06-30-2009 09:57 PM

So good to hear from you, Maryann.

Sorry that you are having problems with your hips. My Father-in-law has had two hip surgeries on the same side. Please be very careful and use the walker as instructed by the medical staff (Father-in-law ignored the caution and pretty much broke it again because of it.)

Take care and don't forget to give us updates whenever you can.

harrie 07-01-2009 12:36 AM

WHEW!!! Boy that was a postfull!!! SO good to hear from you MA!!!
Aloha,
MA

Lori R 07-01-2009 05:08 AM

Maryann,
I'm so glad you posted. I've been wondering what you've been up to. Obviously, a lot.

I am sure that with the pneumonia diagnosed and with relief for your lung that you will feel much better.

Get those hips replaced and you'll be dancing on the table tops.

Please send us a picture!!

I am thrilled that you were able to participate on such a major milestone for your daughter.

Lori

Sheila 07-01-2009 05:12 AM

MaryAnne
OK...you have more lives than any cat, which is a good thing....the hurdles you overcome amaze me!...Now that prom and graduation are over, please concentrate on yourself and getting the hip taken care of and stopping the weight loss. Do we need to come spoon feed you chocolate? It is always wonderful to hear from you...you are an inspiration to us all!

sarah 07-01-2009 06:41 AM

Bonjour!
So good to see your post. You've been so much but you're so brave and strong, I know that you will soon get through all of this.
As always, you are a great inspiration.
hugs and love
sarah

IRENE FROM TAMPA 07-01-2009 09:54 AM

So good to hear from you
 
Maryann -

How happy I was to see you posting although you are going to one H..... of a time.

You are such an inspiration to us - you never seem to miss anything going on in your life regardless of what is happening to you.

I am so sorry to hear of all you are going through but you are always in my prayers my friend.

Stay strong


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