Flori UPDATE and a MIRACLE...
 

#1. My rash disappeared. I don't know where it went but I don't care. It was not welcome on me.

#2. MIRACLE...My Brain MRI = NED!!!!!!!!!!!!!!!!!!!!!
I am still amazed by that Gamma Knife. Granted - the drilling into my head required a lot of anti-panic focus on my part, but all in all it was one of the least invasive cancer treatments I've endured. All I took was a 1mg ativan. In at 7 am and home by 11 am. Faster than my dry cleaning.

#3. When I saw my uber-surgeon today (for the invisible rash exam) he asked if I've had a biopsy of the PET active Sternum mets. He is now throwing necrosis into the mix. How do I know it's not necrosis? Well, I guess I don't. BUT - WHY would necrosis show up as metabolically enhanced on the PET? Wish I had thought to ask that. I did say, well, I'm one person, it's weird having to see a different doctor for each part of me. So who can I see about these mets and the necrosis theory? So, I am seeing the radiation oncologist next week for more info. Meanwhile...

#4. Still searching for TDM1. And...

#5. Will get my triple drip on Wednesday.

God Bless all of you who help me tremendously in managing this disease. Your support is such a strong part of my personal survival. Your messages, friendship and words of hope and sanity help me on this path. xxoo --Flori

You deserve those miracles! I am so happy! Sending a hug to you and Beau.

Flori UPDATE and a MIRACLE
 

Congratulations on the brain MRI NED !!
Way to go Flori. Keep up the good work !!

Happy Miracle Day, Flori!

Good news! So happy for you---keep the reports coming.
Love,
Dana

I'm all teary, Flory! This is just the best way to start my day! You absolutely are beloved of God, and blessed among women! I tell myself that whenever I get to feeling a bit why me-ish, even though in the dark times, like what you are walking out right now, it seems a bit hard to believe. Well, you just go on and believe, Girlfriend! Here's to hopin' for NECROSIS!

Dear Flori

I am very happy about all your wonderful news. Keep the faith.

Hugs from me!

Is that Flori and Beau I see running in happy circles?
I am so happy for your news! What a treat for such a neat lady!
Here's to more happy circles coming up!
ma

Flori,

I am so glad to hear your good news this morning. I hope you have many more miracles and blessing coming your way.

Amelia

Flori,

Great day. I'm very happy for you about the exam results and the disappearing rash. I'm sending prayers your way for the sternum spots to turn out to be necrosis.

Big hugs to you.

Joan

Great news Flori am keeping my fingers crossed and praying that the sternum mets turn out to be necrosis.

Flori thats fantastic and looks like we have two miracles posted on the board today..(hermiracles):)
My very best wishes and long may the good news continue for you.

Oh Flori
 

Soooo happy for you,Flori!

That was me above ...Marcia Soccermom ...on borrowed laptop...many hugs dear girl!

The economic news might stink...
 

but on HER2 Suppport, it is ALL GOOD NEWS!!! Keep it coming:)

I am so happy to hear your good news, Flori! I hope you have more and more good news to post! You have battled this long and hard and as I have said before, you deserve the victory!

I am praying for you...you are an inspiration for me since I am still so new to this insanity...

Thanking God for your miracle and praying for no cancer on the sternum. Flori, maybe you could put in a good word for me so that my rash would disappear also. LOL.

Tonya

Dear Flori-who-is-NOT-going-to-let-a-little-cancer-get-her-down,

News in our world does not get much better that what you just posted.

About your necrosis question. Dying tissue can also have PET activity as showed with my gamma-knifed cerebellar tumor. The second followup MRI showed activity in the old tumor bed that freaked out my brain team. They were sure the tumor was active again. I had a brain PET, which showed enough uptake that they thought tumor was confirmed.
Well, when they opened up my head back there, all they took out was 100% necrotic tissue. This has also happened to Barbara H. and others here with brain mets.

Seems someone else here had necrotic bone tissue in hip, but seems to have been a while ago. Don't know if you can search and find that post.

The scans are just not perfected to the point of distinguishing what is causing the PET uptake in some cases. If you have no other signs of cancer - necrosis could be your nemesis.