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jones7676 11-19-2008 09:08 AM

Support Needed
 
Hi,

I actually noticed that I posted in the wrong category last night. Due to the serious situation I am "rattled".

Monday moringing I am having a brain met removed surgically in the language area. They tried treating it with Gamma Knife and it didn't work. I am so scared. They will be putting in Gliadel wafers to kill any cancer that they have to leave to avoid damage.

Usually, I am posivitive and confident and ok....this time I'm SCARED.

I haven't been writing everyone back on here as I did faithfully as I have been going through all kinds of tests etc and must admit I've been concentrating on myself and at a loss for words.

I am particularly bummed because I had a clear PET scan right before the dreadful MRI and it appears they finally found a chemo mix that is working for me.

Thanks for even reading my message.

Barb

Becky 11-19-2008 09:29 AM

Oh rats Barb

One thing that is never needed is a set back, especially of this kind. However, you have a plan forward and it seems to me, a team that is aware not to cause more harm that good.

I will be praying that when the surgery is over that the first thing that you do is yell at the nurses for a warm blanket. My thoughts will be with you on Monday. What time is the procedure so we all can pray together for you in unison?

Big hug to you

SoCalGal 11-19-2008 10:11 AM

Hi Barb-
I've got to admit that when I was DX w/a brain met it was the scariest of all 12 years of fighting for me - and I've been thru a lot including in '02 watching my cancer spread and not responding to chemo after chemo and basically knowing I was on my way out right in front of my cherished kids. So I became very present and focused on each day it seemed like I had some peace. And then some luck - finally with herceptin working.

With the brain met - I felt like the only thing "I have" is myself/my brain and how in the world can I cope if that is somehow compromised - and the "me-ness of ME" is not there? I was so scared.

I think it's a scary scary thing and all you can do is decide to have faith that somehow everything will be okay.

Many here are praying for you (Bill will be paraying) and try to imagine the abundance of strength that exists in this community - imagine all of us standing around you and supporting you through this scary time. Try and really imagine us - it will help I think.

Wishing you an easy time.
Flori

Faith in Him 11-19-2008 10:24 AM

Prayers for you
 
I am praying strong prayers that you can get some peace over this. I feel your fear but know we collectively lift you up in prayer.

Take care of yourself.

Tonya

tricia keegan 11-19-2008 10:27 AM

Barb, so sorry you have to face this surgery and it's something that would scare most people so can understand your worries. I just want to wish you a sucessful surgery and quick recovery. You'll be in my thoughts and prayer's on Monday.

jones7676 11-19-2008 10:41 AM

Surgery is starting at 7:30 a.m. my time Monday (almost 1 right now). MRI with stickers very early in the a.m.

BonnieR 11-19-2008 11:51 AM

Barb, of course you are scared. It will be good to have it DONE and behind you. Anticipation is terrible. I like what Flori said about envisioning us surrounding you with support. Your Higher Power there too. Keep the faith.

Yorkiegirl 11-19-2008 12:18 PM

Barb many prayers going out to you for a very successful surgery on Monday.

Hopeful 11-19-2008 12:37 PM

You will be in my thoughts. Best of luck to you,

Hopeful

rinaina 11-19-2008 01:21 PM

I am so sorry you are dealing with this and I can understand your worry. I am sure your doctors are very capable and know what they are doing. You are in good hands. I am praying for you that all goes well and that they get everything they need to without disturbing anything they shouldn't.

schoolteacher 11-19-2008 01:38 PM

Barb,

I will be praying for you too.

Amelia

Jackie07 11-19-2008 01:43 PM

Barb,

Prayers from Central Texas! I was going to share my craniotomy experience. But then I noticed that you've had the experience already. So your concern is mainly on the language area, I guess.

The PBS film on brain plasticity talked a lot about how flexible the human brain is. From my own experience, I learned that exercise - blood circulation - improves my brain function. I had a whole month worth of speech therapy after my craniotomy and have been talking non-stop ever since.

With the new technique and instrument doctors possess these days, I am very hopeful that your language ability will not be affected much, if affected at all.

Remember it's a 'use it or lose it' situation with our nervous system. With proper rehabilitation and/or prevention effort, the outcome is bound to be much better than you have feared.

Shobha 11-19-2008 02:16 PM

You will be in my prayers! Praying for successful surgery on Monday and great results!

Mary Jo 11-19-2008 04:08 PM

Hi Barb,

I'm so glad Becky asked you the time and said we would all pray in unison.......................we will Barb.......right ladies and gents?

May you feel those prayers at 7:30 Monday morning sweet sister.

Love to you,

Mary Jo

Bill 11-19-2008 04:15 PM

Barb, we will be there and paraying for you, sweetheart! Please give us a shout when you feel up to it.

Barbara H. 11-19-2008 05:59 PM

My thoughts will be with you,
Barbara H.

Patb 11-19-2008 06:05 PM

My healing thoughts are with you all weekend and
especially Monday morning. Take care and know
that we care. We all have our journeys and our
fears and its good to share these.
patb

kcherub 11-19-2008 08:05 PM

I will be saying HUGE prayers, thinking HOPEFUL thoughts, and waiting to hear how well you came through it. :)

Big hugs and take care,

sassy 11-19-2008 08:10 PM

Barb,

I will be keeping you in my thoughts and prayers. Feel our strength upholding you.

caya 11-19-2008 08:23 PM

Barb,

Prayers coming to you from Canada.

all the best
caya


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