New Study for Her2
 

Ladies,
I'm getting ready to start a Phase II Study using Herceptin/DM1. Anyone done this treatment or know of anyone who has? Thanks for any comments.
Hugs-Verna

hey verna.. congrats... the tras-dm1 study is going very well.. right now, 5 ladies from this board are using tras-dm1... barb, mpb, chrisy,lily.. and someone else who escapes me at the moment. i think eric's wife caryn is checking out this study also..

lilly did well on it for the last 4 months ,but now had a hiccup..

ky home starts next week on the 13th....

please keep us posted.. since you are in florida .. i presume you are doing the every 3 week dosing schedule..

run to live

Run to Live,

Is that what it's known as...tras-dm1? I've heard some call it Super Herceptin. I'm just excited to be part of it. I will get my first treatment Monday, and I will keep you all posted on the results. This is very exciting to me. I feel this might be the miracle treatment. Yes, it will be every 3 weeks.
Hugs-Verna

Vera,

I am so happy for you.

Hugs, prayers and positive thoughts being sent to you.

Karen

Good luck with your new treatment. I will keep you in my thoughts and prayers.

verna.. when are u scheduled to begin treatment.

run

Verna, you probably have had your first treatment now. Hope to hear how it went for you.
Best wishes. Keep the faith.

verna.. how was your first treatment.

Trial
 

Hi Verna,
Go to the clinical trial message section to learn more about how members are doing on this trial.
Best wishes,
Barbara H.

Hope you have great results with this new treatment. Let us know how it is going.

Hi all,
Just wanted to check in with you all and let you know I've had my 2nd treatment a week ago. The first was just like the first time I did Herceptin...flu like symtoms, the second one, piece of cake.
Sorry I have not responded sooner, been so busy.
More updates after I get my PET scan.
Hugs-Verna

verna.. how has the new treatment been going.. did u have the pet scan yet..

run to live

verna, in my treatment center all the lady's that are enroll are doing fine with DM1

lily .. how many tras-dm1 are being treated at your site in NC...

run to live

maybe 4 they are doing well

Ladies, my 3rd treatment was Monday. I have a PET scan tomorrow. Hope to have results on Friday to share. All has been good so far. Just a few things; dry mouth, hands & feet feel like the old Taxol treatment (numbness & tingling)and, hard to focus on my vision.
Hugs-Verna

verna, how has the trial been going...

run

Update on T-DM1 study:
Had 5th treatment Monday. All going good. PET/CT scan good, cancer out of my liver and back nodes. I have another one on the 18th. Anyone ever hear anything about these scans being harmful?

Verna,

Glad to hear your treatments with the tras-dm1 are going well.

Dana

HI Verna,

Glad to hear you're doing so well! I'm in the same study and just had my 6th treatment Wednesday...so I'm due for another set of scans.

I too am not happy about the number of scans, it just doesn't seem good to have all that radioactive stuff over and over. I'm now on a 28 day dosing schedule instead of the 21 days, so at least I will get to have an 8 week interval instead of 6 weeks!

On one hand, they want to be sure they can tell what's going on with the efficacy of the treatment...but geez!