New mets!!..... already??!!
 

I dont know I guess it must happen... but a bone scan I had last week showed up post-operative extension of the mets to my femur and new activity in my third rib and my sternum http://her2support.org/vbulletin/images/icons/icon9.gif - and I only just had my last bone scan in November.

I'm currently on Taxotere and Herceptin every three weeks and am about to start one of the bone strenghteners on Tuesday. I had this recent bone scan as I have been getting extra pain along my thigh. It just all seems to be happening so quickly.

Maybe the treatment takes a bit longer to have some effect?? I dont know... I have yet to talk with my Onc. re the results.

Sorry I dont post too much ladies... I am so tired... but I do read nearly every day and share in your joys and challenges!

Thanks so much for listening.
Blessings all
Hermiracles (Who are 10 months old now!http://her2support.org/vbulletin/ima...ons/icon10.gif)
http://i14.photobucket.com/albums/a3...ling10mths.jpg

Hermiracles, so sorry to hear that you have more bone mets. Perhaps your onco can give you some news about this that will make it sound not so bad. I think of you often and will pray for you. Your babies are adorable.

Hello ~

I'm sorry about the progression of bone mets. Also, I wanted to say that "your miracles" are truly precious. Thanks for brightening my day with those beautiful faces.

Mary Jo

Hermiracles, I hope you get to see your oncologist soon.
And I just wanted to say how beautiful those babies are!

Spoke with the oncologist
 

Hi Sheila, Becca, Marejo and Bonnie... thanks so much for your responses. I got to speak with Oncologist today on the phone.. and I feel.. well.. dissapointed.http://her2support.org/vbulletin/images/icons/icon9.gif
I just dont feel confident this guy is going into bat for me.. he is very laid back about it all. Not really concerned about these new mets at all. He is the only oncologist in town and very busy.
He said 'oh well they could have been there before and only just showing up now. The chemo doesn't seem to be working for you.. of course we would continue the Herceptin'... with no suggestion of trying anything else....what we are moving onto Palliation now??? I just feel its like he thinks 'oh well.. she's stage 4... not much we can do' I want to aim to get to NED if I can but I feel like the Onc has given up on me already.
Maybe I'm just paranoid about the medical system... never did have much faith in them anyway.... I dunno http://her2support.org/vbulletin/images/icons/icon9.gif I could ring the woman I got the 2nd opinion from but I feel I have to try and clarify things with him 1st.... just what is his attitude??? I feel so anxious now and think why should I have to worry about this.
Blessings all
Hermiracles

Yep, lots of questions and listening in order here. No matter what....it's a big deal because it's YOU!!! Maybe you could write out all the questions and suggestions you have and go thru it all with both. Geez, sometimes they have no idea how their words and tone of voice impact us. I'm praying for you and lovin' those little miracles! ma

Hermiracles,

I'm so sorry to hear about your progression. I would write a list of questions down on a paper for your oncologist. I know if I don't write a list I leave and then find I forgot to ask something. There are many treatments available to Stage IV women and it's just a matter of finding the one that's right for you. Your babies are so beautiful -- I love looking at them.

I agree about the list of questions. And you deserve a face to face, sit down meeting with this doctor when you ask them. Is there anyone you might bring with you to help "hear"? I found that was really helpful. It's good you have the 2nd opinion person in the wings too. Kep the faith.

I am saddened to read your last posts. You need a little time to absorb things. But don't wait to long. Bonnie R and Kate had a good suggestions. If possible take someone with you when you go in to talk with your onc face to face with your list of questions. Another set of ears has been so helpful for me.

Remember it is like a puzzle and you need someone who is going to find the right piece. That piece (treatment) will stop the progression.

You are in my prayers. The twins are beautiful and growing! I wish we were closer.
Donna

Your babies are so beautiful and precious. I am an identical twin. :)

You and your babies deserve a dr who is going to fight like hell for you. I'd urge you to find another doctor (I know it involves travel) OR do whatever it takes to get the message to this guy.

Thanks so much friends for all your suggestions. I spoke with the Breast Care nurse today - at least she was concerned about the new mets - she said - "it must be your tumour is very aggressive" - which is what I've been thinking all along.
She connected me up with the nurse in charge of clinical trials - who at least listened to me - but said there really aren't any trials available that I would fit the criteria. I did say to her - I dont feel Im up to clinical trials yet - that there must be a few more chemos I could try. She agreed.
Anyway she emailed my Onc. who emailed back saying.... continue with Taxotere for one more dose (next Thursday) and then we'll have another scan. So.....?? Im still none the wiser and not too good at negotiating the system at the moment.
Had my 1st dose of Aredia today so I guess that will help some.
Still feeling anxious and worried.... trying to refocus on the positive.
Im alive... and sober http://her2support.org/vbulletin/images/icons/icon7.gif.. today! And my bub bubs sure are gorgeous eh?
Thanks so much for being here friends.
Blessings all
Hermiracles

I am glad to see that the nurse is listening and taking charge...sometimes we need to "tune up" these Dr.'s, it is OUR life ya know! Looking at the picture of your little miracles takes me way back...32 1/2 years ago when my twins were born.....2 girls, what a true gift.....I was so busy as you must be, but I received so much love it made every struggle worth it...there are many new drugs out there for you, don't take no for an answer....your little ones are depending on you.
Sending love and hope.

Keep up the fight for those beautiful babies. You are in my prayers.

Hi Hermiracles,

First, your babies are soooo cute!

I too have bone mets and am on Zometa. I need to get more educated on the bone mets part but my doctor has explained to me that the bones react more slowly than other parts of the body. She says that the scans are more difficult to read and interpret. 2 years ago I had increased activity in the bones and it turned out to be flare effect and actual healing from the meds.

I recently asked about trials for bone mets and was told that between the chemo, Herceptin and Zometa we are doing all that we can.

It sounds like you are doing a good job of fighting for the attention that you deserve even though you shouldn't have to do that now.

Love, Hope, Peace, Carolyn

Yes, your bub bubs are beautiful! As Shelia says there are drugs out there. Just hard to know how to go about getting them. You are strong and will find the answer.

Give those little ones a squeeze from a grandma in IL.

Remember prayers are with you.
Donna

I hope they can find the right mix and stop those nasty bone mets....actually I hope your next scan shows improvement before the change. The babies are beautiful!

Hermie, your babies are so beautiful! Thanks for sharing the wonderful pictures. I'm sorry to hear the latest news, but please keep on those docs for new treatments, and like said before, typically, bone mets are slow to progress, and often the scans are hard to interpret. Try not to let yourself get too down, and whenever you go into a doctor's appointment or treatment, you just picture all of your sisters and brothers gathered around you making sure everything goes right ( and that goes for all of you!) You're in my thoughts and prayers, Love, Bill

I just wanted to let you know that I said a special prayer for you. Your babies are definately miracles. They are beautiful. Too bad we all don't live closer. I'm sure you would have lots of babysitters from this site. They're too cute. Mine are getting bigger now.
I am praying that the right treatment for you will be figured out quickly to slow down the bone progression. Like the others, I have heard that progression in the bones is slow and can be managed quite well.

Hang one, my dear, the right treatment is coming.

Hugs,
Tonya

Beautiful babies!! I am sure that their mommy is just as beautiful!

I am hoping that you will find just the tx to stop the bone mets in their tracks. Stay strong.

Hugs and Prayers,
Lexi