Andi and Others? An idea!
 

Hi Amazing Group,

Andi seems to have dropped off the radar of our group - her circumstances were heart rending at her last posts.

I have been thinking that maybe we need a registry or inclusion in our member profile for real names and contact information so that we can be of assistance when and if it is needed. Only at the option of the member, of course. I just feel like this is one of my extended family groups and I would not want to neglect a family member in a time of need. Also her friends and family should know how much she - and each of us - means to this extended family.

Anyone else?

Donna
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Are you talking about Andi who posted today under the, "Hear me out" thread?

Karen

Andi In Iowa Needs Our Prayers
 

Andi in Iowa - taken off all chemo - progression
 

No, this is in reference to Andi in Iowa. She posted on 6/7 that she had been taken off all chemo due to progressions and that her time was now short. The last time she came to the group was 6/19. She had fallen through the cracks and we have no way to check on her that I know of.

Donna

I Know
 

Donna, I know. I have been praying for her ever since she was stopping all treatment. I tried to urge her to do otherwise. Not to surrender. You know me. But after several back and forth PMs I backed off and respected her right to live her life as she chose. Still, I warned her -- I would be praying for a miracle. And I still am.

Just wish there was a CONTACT PERSON listed for each of us, w/their own email address and permission of course -- so even if one of us is down and unable to post -- we can learn what's happening. We all feel so helpless not knowing, and sending our love and support all the same...

ANDI in Boca

Contact Info
 

I agree that having a spot to check for additional contact info by email and/or phone # would be beneficial. Joe, can this be added to our profiles?

Contact info
 

I have been thinking of Andi non-stop and not knowing how she is doing is hard. I agree that I feel so connected to all the brave souls on this web site.
I would love to have a place to list contact info. "just in case".

Me Too!!!
 

I posted that question, "Has anyone heard from her since she stopped treatment. I too have been wondering about her and her family. That has to be the hardest thing to go through and I dread even saying the words!!

That is a good idea to ask Joe, I too think of her and her loving family and feel they should know what she means to us. Also, if they need anything they should be able to contact anyone here.

I cannot imagine what it must feel like to tell us that "I am stopping treatment due to progression'. But I feel YES to the family should be able to contact us and YES we should be able to send our best wishes. I know that PRIVACY might be an issue, but maybe Joe could set up a special section on the site like you suggested to let us have voices for the people who we have grown to call family.

Thank you Donna for the nice idea. We need to have that voice for our own special reasons, whether it be to ask if help is needed, to express our devotion to that individual, or to even mourn with their families. I am not so sure that all of the families affected with breast cancer even know what they mean to US!!!

Waiting For A Miracle...and getting ready to demand one!!>>Believe51

The lack of personal contatct information has been problematic to us also. If there is a genuine interest, we can add an extended registration form to our website. There are programs that can accomplish this with a high degree of security.

Regards
Joe

Contact Persons
 

Joe,

How would we (who are already *registered*) add a contact person to our info, giving their name, email address, phone # -- with their permission and prior notification of course.

It's a grand idea, I think most if not all of us embrace.

Please lead the way...

ANDI

Thank You, Joe
 

Hi Joe and All,

I think that most of us would want to participate in this. I know that many of us live near each other and this would allow the possiblity of creating actually meeting each other face to face or perhaps to lend a hand when it is needed. I also think how much it would mean to my husband and son if they heard from my friends here if something happened to me (god forbid).

Let me know if there is anything I can do to facilitate this list.

Thanks so much!

Donna