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-   -   Muga scan-How often with herceptin? (https://her2support.org/vbulletin/showthread.php?t=26792)

momdeeco 01-20-2007 09:08 PM

Muga scan-How often with herceptin?
 
I had a Muga scan prior to AC. It was a 64. Prior to herceptin it was 51. The oncologist wants to repeat it 6 mo. after Herceptin was started. I thought every 3 months was better. What has your doc recommended or what is the "standard" concerning muga scans and Herceptin? Thanks!

Bev 01-20-2007 10:18 PM

I thought the protocol was every 3 mos. When mine went up to 70 from 56 on Herceptin, we went to the 6 month plan. I think if you are in the low 50's I would stick to the 3 month plan. I'd try the COQ10 if you're not doing rads for the fun of it as well. BB

Chelee 01-20-2007 11:48 PM

As Bev just said...I have always heard the stardard protocol on MUGA/ECHO's was every 3 months. My onc goes just a bit over three months which is fine with me. But I would be uncomfortable waiting every six months. I think I would just express your concerns about waiting that long. Your onc will probably understand and ok it.

Chelee

Mary Jo 01-21-2007 10:39 AM

I had an echo before chemo began. Then wasn't given a MUGA until 4 months into herceptin. That Muga was fine so oncologist doesn't do any more unless symptoms warrant. I questioned this protocol and was told that "TYPICALLY" adverse effects of herceptin occur within the first 4 months. If I was feeling fine and all else checked out she didn't do MUGA'S. I was a bit leary of this approach but went along with her thinking. Thankfully, I was fine and handled herceptin well.

God Bless -

Mary Jo

kari 01-21-2007 11:31 AM

Hi,Karla,
The MUGA I had done after chemo and rads showed a LVEF of 55%. But I had no pre-chemo MUGA done, so it's not certain if the AC lowered it, or if it is normally low (at least to me, 55% seems low). My onc will do them every three months. I go for my next one Feb 13. Will be interesting to see if it has dropped any more.
Blessings, Karen

Patb 01-21-2007 03:10 PM

Hi all
My pre-chemo muga was 72. After four A/C's it dropped to 59 and after
Herceptin for 11 weeks 55. I will have muga and echo in two or three months.
They think the first muga was inaccurate, a little too high. I had radiation
after the A/C and now Herceptin.
patb

tousled1 01-21-2007 05:50 PM

Karla,

Protocol for either a MUGA or electrocardiogram and every three months while you're on Herceptin. I would insist on every three months.

momdeeco 01-22-2007 06:46 AM

Going to insist on Muga every 3 mo. Don't know why oncologist said every 6 mo. Thinking about going back to Chicago for opinions and treatment.


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