I May Have Made The Team!
 

After waiting since June for admittance to the Tykerb trial, yesterday I signed the acutal Consent Form. So now, even though I've had most scans within the last month, I must have a bone scan, brain scan, CT and echo within 2 weeks of starting the actual med. If all looks good, I will be stay on the Xeloda, put pulled off the Herceptin. I'll stay on the Zometa monthly for bones.

Turns out my onc is heading up the trial for whole state of Colorado. He may have known a bit more than he was letting on about time, but he didn't want me to jump ahead of the waiting game in case something changed. Yesterday, he told Mel and I that all of my torso pain in obviously the cancer progressing. So we must do all in our power to help the Tykerb work!

Love and light,

Lisa

Wow!!! This sounds excitiing. I hope that you receive this treatment soon.
Best wishes,
Barbara H.

Lisa,

Great news. Definitely seems so promising! I hope it is approved quickly and you will kick this cancer to the curb!


Hugs and Prayers,
lexi

Dear lisa


Thank god - I am so glad you are to start tykerb soon.

love
linda

Lisa, I'm so happy for you.

Praying all works out, BB

Dear Lisa, I'm SO glad to hear this! You and Mel are in my thoughts and prayers.

<3 Lolly

Lisa,
Wonderful News !

My prayers are with you.
Hugs
Christine

Lisa,

This is wonderful new.

Hugs and healing prayers.

Karen

Lisa, I am so excited to hear your news! Again you are an Amazon warrior in the forefront of the battle. We will all be praying for you and looking for your posts! Hugs, Tricia

Congratulations and thank you for being a pioneer for all of us.

great news Lisa.
Hope it starts soon.
hugs and love
sarah

Early Access??
 

Dear Lisa -
I am glad you have gotten that far, but I was thinking you would get Tykerb on Compassionate Use/Early Access. Thus I was puzzled by needing to repeat all the scans.

Am wondering why your med onc is making you wait for the trial since he says you have progression. Don't mean to raise doubts, just am wondering "what's wrong with this picture?" Especially since you have symptoms.

Anyway, carry on with all our best wishes and prayers behind you.

Great news, all the best with this new attack on your cancer.

Good luck with the Tykerb. I will keep you in my thoughts and prayers!

Reply to Steph
 

From what I understand, I'm actually the first patient (or close to it) for the trial in Colorado. The confusion I believe is the difference between the "Compassionate Care" group and the trial. I'm certainly no expert. I'm just a hopeful, grateful guniea pig.

Happy Thanksgiving!

Love and light,

Lisa

Dear Lisa,

I'm really happy to hear your news about finally getting the Tykerb.

Take care and have a wonderful Thanksgiving with your family!

Love, Kim in CA