HER2 Support Group Forums

HER2 Support Group Forums (https://her2support.org/vbulletin/index.php)
-   her2group (https://her2support.org/vbulletin/forumdisplay.php?f=28)
-   -   Latest scans, markers, etc. (https://her2support.org/vbulletin/showthread.php?t=23449)

StephN 04-17-2006 04:40 PM

Latest scans, markers, etc.
 
Well, friends, I got the WORD today that I am "PERFECT!"
Don't take that TOO seriously, but those words from my med onc did mean good news for me. CT of chest/abdoman did not show anything new or worrysome. MUGA was up at 61 and heart function looked good. Tumor markers continue to stay low where they have been.
Only thing that was the slightest bit "off" was my calcium level, but I know what to do about that.
At my next quarterly med onc visit I will have been off chemo, after some fierce mets, for FOUR YEARS. I would never had imagined this four years ago, even though I was showing some good progress against the mets at that time. God has been very good to me.

The next thing is to pass a couple more requirements for the U of W DNA vaccine trial. I am almost "there." My med onc is all for me doing this and I think they are waiting now for a FISH test to be done on my tumor block (I was HER2 plus 3 by IHC). FISH is required by the FDA, even though I have been successfully maintained on Herceptin all this time.

Just wanted to share these happy results with you. The only thing now is to do well on my brain followups next week. But, I feel this will be fine, too.

This message lets those of you out there who are struggling along know that it IS possible to overcome your metastases and live a reasonable life afterwards. http://www.her2support.org/vbulletin...ons/icon12.gif Guess you have to have some of those stubborn ancestors' genes - they always said I got them all! And I think I am just a pussy cat ..

tammymarie1971 04-17-2006 05:10 PM

Yeah!!!! Oh Steph I am so thankful with you that all is well....It really does give the rest of us something to hold on to!!! Thank you very much for posting It was just what I needed today!
Tammy

Becky 04-17-2006 05:29 PM

I am so happy for you Steph. You give hope to all of us on the board. I also admire your wisdom and also your pragmatic approach to life. You never freak out (even when it appeared your brain mets returned) and have a steady step that I really like.


If anyone deserves a break, its you and I am thankful for your results.

Warm regards

Becky

Mgarr 04-17-2006 05:36 PM

Yahoooo!!!

Cathya 04-17-2006 06:38 PM

Steph;

Absolutely fantastic!!! It really is just what I needed to hear as well this evening......there really IS hope and YOU are showing us the way!!!

Cathy

AlaskaAngel 04-17-2006 07:15 PM

Congrats, Steph, on finding your own path through the maze successfully in spite of serious odds again and again. Now you can truly enjoy your travels together with joy. Thanks for putting up signposts for others to follow as you go...

DELIGHTED,

AlaskaAngel

michele u 04-17-2006 08:42 PM

Congrats Steph, You looked so good when i saw you last month, i knew everything would turn out ok!! Did you hear i get to go to Washington DC next weekend! Wish you were going!!!

Lolly 04-17-2006 09:36 PM

Steph, it's amazing that you've been off chemo for 4 years now! And things can only get better if you receive the vaccine, so we'll be waiting for you post saying you've gotten the go-ahead, and in the meantime a BIG CONGRATULATIONS on your fantastic test results!

<3 Lolly

Lisa 04-17-2006 09:37 PM

What an inspiration you continue to be. Did you apply for Oprah? I hope so!Muy congratulations on all your tests. And you seem pretty perfect to me!

Love and light,

Lisa

lisahammo 04-18-2006 01:47 AM

Congratulations Steph! I am so happy for you. You truly are an inspiration. I also have liver mets, and when I read about how bad yours were, and where you are at now, it gives me so much hope. Good luck for next week. And celebrate!!!!

Take care.

Love Lisa

RhondaH 04-18-2006 02:36 AM

Awesome news Steph!!!!
 
I am SO happy for you. Now to get such great news from all the OTHERS on the board who are struggling.

Rhonda

Maggie 04-18-2006 04:05 AM

Steph, what wonderful news for you and your family! You are giving us all hope!

Maggie

Lee 04-18-2006 08:26 AM

Fantastic!
 
I am always so glad to see happy news here. Way to go! My last CT scan was also free & clear and I hope that, 4 yrs from now, I can continue to report the same.

Awesome!

Ann 04-18-2006 08:31 AM

Steph,

Congratulations to you and continued good health.

Ann

sherri 04-18-2006 08:44 AM

Dear Stephanie,

I'm so happy for you. This was the best news for all of us. I think you are planning for some trips now! Good for you. I'll go again in June for my Vaccine, I hope I can see you and we can celebrate this wonderful news.
Big hug,

emmasmom 04-18-2006 10:26 AM

Congratualtions Steph! I am so happy for you! You are an inspiration to me who is just starting this fight!

Lisa

janet/FL 04-18-2006 03:54 PM

I just want to ditto all the congratulations. You really are inspiirng. Thanks for all your posts.
Janet

jhandley 04-18-2006 07:09 PM

Great news
 
Way to go Steph....by the way wht supplements do you take?

Cheers
Jackie

kristen 04-19-2006 03:51 AM

Steph, I think your perfect! I think that is great news. Congrats. I am so happy for you.

brittd01 04-19-2006 06:09 AM

Steph!!! What wonderful news. I will pass this along to my Mom. Your response to treatment gives her so much encouragement.

xoxo,
Britt


All times are GMT -7. The time now is 04:29 AM.

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2026, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021