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-   -   getting dosed in UK (https://her2support.org/vbulletin/showthread.php?t=20590)

Roz 07-15-2005 11:59 PM

Hi,
I plan to arrive in UK from Australia in September and will stay 3 weeks. My oncologist has agreed to let me take "raw' herceptin over, and I will have to get it made up and administered over there. He will write me a lteer to a hospital so i can get it administered. Is there anyone in UK who could suggest a London hospital and has anyone else had the experience of being dosed in another country.
Cheer
Roz

Gina Popp 07-16-2005 02:35 PM

Hi, Congratulations on getting access to Herceptin. If you are Her-2 positive, it will work like magic. I can not help with London hospitals, although I was in Scotland last year for two weeks and they seem to have a LOT of places you can get it, so I am sure London will also. I have received all my herceptin treatments in the U.S.A. in Alexandria, VA. I am one of the longest surviving users of Herceptin, having used it regularly and successfully now since early 1999, just shortly after its release in this country by the FDA in 1998. It really works--even on someone with a poor prognosis like I had (Breast cancer mets to liver/bones/pelvis--turmor 5cm ER- PR - and Her-2 3+). If you want it to work really well, be sure to increase your dietary uptake of oleic acid such as that found in olive oil, canola oil, walnuts, etc. as the latest research is showing that herceptin combined with adequate levels of oleic acid can reduce her-2 receptors on cells up to over 90% as compared with just under 50 per cent for either used alone. To read more about the oleic acid studies just type in oleic acid and her-2 into Google and it will take you right to them. Goodluck. Gpopp@comcast.net

al from canada 07-16-2005 06:43 PM

Thanks for the perspective Gina,

The members of the board have been advocating oleic acid for a lond time. It is also found in large amounts in flax seed oil.
Thanks,
Al

*_Christine MH_* 07-17-2005 08:59 AM

Hi Roz,

I correspond with a woman whose daughter had to come back to Britain for treatment because she was living in a country where the doctors seemed pretty useless. The daughter is being treated by a Harley Street oncologist, who seems to be quite on the ball, but unfortunately the woman only knows her as 'Dr Susie!' I'll try to find out more.

Best wishes,

Christine
(living in West Yorkshire in the North)

Roz 07-19-2005 01:41 AM

Thanks to those who replied. I am actually quite happy with my oncologist in Sydney, but as i am travelling to the UK, and I am having Herceptin weekly at present, I was hoping to slot in to being dosed over there, with the Herceptin which my oncologist will supply to me to bring with me. I have made contact with St Marys in Paddington, so perhaps I will pursue my enquiries with them.


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