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-   -   The UofW Vaccine trial (https://her2support.org/vbulletin/showthread.php?t=20408)

susie 06-18-2005 09:57 AM

Thanks you all for everything. If it were't for this group I would know liilt about the new therapies and clinical studies, not to mention everything else we need to know---and the comfort of being advisors and encouragers to each other.

I have spent the past two months getting scans, tests, ect. for the UofW tumor vaccine study. Now I have found that I do not qualify for #120 (1st recurrance, six months or less on Herceptin) because I've had TWO recurrances. Okay, so now I'm getting the ALA-A blood test to find out if I am HLA-A positive. If so, I quailify for that. As it stands, I have what they call "stable" disease. Now, if I am HLA-A negative, I can try to get in a study in a couple months. I have talked to both Patti and Dr. Webster and though I fit the criteria, I have to be put in the right catagory.

The biggest drawback to a couple months is that I will again have to have scans to prove that I still have stable disease, so if you will, PRAY for a positive outcome on the HLA_A blood test! I know, I have learned to be patient. LOL. That's why they call us "patients" right?

al from canada 06-18-2005 06:39 PM

susie,
My thoughts are with you and good luck,
Al

Rozebud 06-20-2005 08:28 PM

Praying for positive results for you!

susie 06-24-2005 11:12 AM

Well, it has been established that I am HLA_A NEGATIVE. Therefore, I am not eligible for the 118 study either. Though I am told that I will be for the forthcoming vaccine study. I told my son the other day that it has taken more patience (3 months) to get into this study than it would take him to stop drinking beer. I don't think he gets it. LOL.
Susie


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