Has anyone out there in Her2 land ever been diagnosed with lymphangitic carcinomatosis?
Would appreciate any info anyone has. Cheers, CathyB

What are the symptoms? Have not heard of it. Hugs, Sandy

symptoms are shortness of breath, pleural efflusions that come right back after draining generally due to spread of cancer into the lymphatics of the lungs as I understand it. Don't know too much more. cathyB

I've had pleural efusion to the left lung lobe, as a resut of lenlarged Ca nodes under my chest wall. It was not drained, but was progressing rapidly during A/C chemo which I stopped taking after 3 cycles. I asked the Onc to go on to herceptin instead, my next line of therapy. I was then given herceptin-taxol and the fluid literally evaporated 3-4 days later. It was unbelievable, but truely a relief. Hope herceptin works as well for you. Hugs, Christine