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The following email was sent into us by Janelle, we both thought we should share it with all of you.
Hugs Christine Dear breastcancer.org member, There is a special opportunity that many of you might like to participate in. The U.S. National Cancer Institute's ("NCI") highest priority is to eradicate cancer by year 2015 -- or sooner, if at all possible. The NCI knows that this critical goal can only be accomplished by learning from people like you who have been personally affected by cancer. As a group, people affected by cancer are referred to as the "cancer advocacy community." With the NCI Director, Dr. Andrew Von Eschenbach, through my position on the NCI Director's Consumer Liaison Group, I have led the effort to strengthen communication between NCI and the cancer advocacy community. Together, we have developed a Web site called "NCI Listens and Learns" which will present questions to the cancer advocacy community and the public for ideas and suggestions. Comments will be synthesized, reported on the Web site, and given to NCI for a response that will also be posted on the Web site. We would appreciate your help in pre-testing "NCI Listens and Learns." You are invited to visit the site at http://dialog.cancer.gov, and "test drive" it. You can explore its sections, comment on the question that is posted for this pre-test, and get a general feel for the purpose, design, and function of the site. We encourage you to log on while you are on the site and post your comments to the question that is there. After visiting "NCI Listens and Learns" we invite you to provide us with feedback about the perceived strengths and weaknesses of the site. We would appreciate it if you could take a few minutes and answer the following questions. 1) What overall comments do you have about the Web site? 2) Are there specific aspects of this online forum that you particularly like? 3) Are there specific aspects that you particularly dislike? 4) What would you need to see to be confident that NCI is listening to and acting upon the feedback it receives from the online forum? 5) Can you recommend ways in which this Web site could be improved? 6) Was anything missing from the Web site? What features or approach would you like to see added? Please email your comments by September 6, 2004 to the Office of Liaison Activities at The National Cancer Institute at liaison@od.nci.nih.gov. You may also feel free to phone Devon McGoldrick at (301) 435-6756. Thank you for your participation. We hope that through your constructive feedback we can build "NCI Listens and Learns" into a valuable tool for all members of the cancer community. Best Regards, Marisa Weiss, M.D. NCI Director's Consumer Liaison Group & President and Founder breastcancer.org Elisabeth A. Handley Acting Director, Office of Liaison Activities National Cancer Institute |
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