brain mets
 

I can hardly type those words. Dx yesterday with brarin mets. 5-8 spots they could see on MRI. Largest 2.6 cm in cerrubellum sp. Had 1st rad tx yesterday too wbr - also on decadron. I think 4 weeks of wbr. I was feeling woozy and had headaches and thought it was from the oxycodon after surgery on my leg 2 weeks ago but after a week of not having the drug I knew it was something else. Thinking back I've been really off tired and weak for over a month probably it was this all along.

I'm kind of emotionally numb, scared, thinking is this the end now but holdibg on to all the success stories with brain mets on this site.

I also had my first eribulen tx on Monday but have to quit now til rads are done.

Re: brain mets
 

Oh Pam,
I am so sorry that you had to join my club. I am rooting for all of us to beat down the mets. The success stories are what's giving me hope -- StephN, Joan, Barbara H, Brenda, CourtneyL, Kavvy (and others I probably forgot). Just know that I am praying for you that you can beat this one too.
Hugs and Love,
Kris...

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Dear Pam, I am so sorry and upset after reading your post. You went through so much already with a lot of courage. I hope you will get rid of these mets real fast. Keep fighting. I am sending you hugs. Michka

Re: brain mets
 

Oh Pam just had the brain met dx too awaiting a consult with the radiation oncologist on Tuesday. I am very upset and scared as it was such a shock. Hope to hear some positive postings about some success stories need something to cling on too right now. Not sure what will be recommended for me as yet but also having to wait to start chemo again until I have had radiation to the brain. I expect that I will start Tykerb/Xeloda soon as possible after radiation. Anyone had experience of this combo and if it worked for them?

Re: brain mets
 

Dear Pam,
I'm sorry to hear about the brain mets. Hopefully, your doctors will do the right treatments and you will end up being like a number of other incredible women on this board living with brain mets.

You have had such a tough go of things this past year.

Truly, I am praying for you and am with you in spirit.

Blessings,
Jane
(Your unusual-autoimmune-disease colleague in Pittsburgh)

Re: brain mets
 

Re: brain mets
 

Diane - I had really good luck with xeloda/herceptin then xeloda/tykerb for 3.5 years a few years ago. I was on xeloda/tykerb again most of 2010 and just tykerb nov. 2010 til feb 2011. Obviously it did'nt prevent the brain mets.

Everyone - thanks for your good thoughts & prayers.

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Thanks Pam I needed to hear that about Tykerb/Xeloda. I am thinking of you please keep in touch in how you are going and I will do the same.

XX

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So sorry to hear about the brain mets Pam. I'm sure many other brain mets survivors will chime in with suggestions. Sending prayers and good vibes from Canada...

all the best
caya

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Pam I am so sorry for your DX. Thankyou for the feedback on Tykerb/Xeloda I needed to hear that. Please let me know how you are getting on and I will do the same.

Love & hugs

Diane
x

Re: brain mets
 

Boy Pam !! This latest news is a real bummer !!!!!!!!Talk with some of the other members who had brain mets and find out what they did to treat them.
Can your oncologist give you something to treat and protect the rest of your body while you get radiation?
Please hang in there and keep putting one foot in front of the other. Think about the pleasant things you want to do after you get finished with radiation and recover from the bone surgery. Keep working towards those goals.
As always I am keeping my fingers crossed for you.

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Pam, I am so sorry to hear this. You have really been through so much and now this. I am praying for you and sending you my Best Wishes. Mary L

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Dear Pam! Naturally everyone is upset at this news, but we know that you have an unshakable faith and enough knowledge from real life stories here that this will pass.
You may need to have Gamma Knife or something to finish off the larger met.

Wanted to make sure you are aware of the side effects of the Decadron. Besides being awake like a light bulb going on in the middle of the night, there is the weakness in the legs. You already have less than normal strength in your legs, so if you feel like the rehab isn't working, be aware that is a SE of decadron.

This drug can be muscle wasting, so make sure you get plenty of protein and maybe try the Ensure with muscle building nutrients.

On the plus side - I am so glad you were able to slip in the first dose of Halaven!

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Just wanted to send lots of love your way, fighter girl! ma

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Thanks for the update, Pam. Sending good vibes to both you and Diane.

By the way, Kris left out the founder of this web support group - Christine - who's been NED for many years after being diagnosed with brain mets in her BC recurrence.

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Dear Pam,
I'm so sorry you have received this diagnosis. I'm sending all my best wishes for great success for the WBR and will be keeping you in my prayers. Gentle hugs.

Barb A.

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We will survive it just means a little bit of hard work. I'm on the same page as you but I've already started. So far I've had 6 wbr at a lower dose with a further treatment of VMAT at a very high dose. Spent one night in hospital (vomiting) .

I'm on decadron I've just lowered this dose seems to take two days to kick in on a lowered dose.

I've got 20 rads in total and plan on being like Christine as I'm sure you are to. And we will get there.

Please be strong you have been through alot and your not alone I'm there with you every step of the way.

As i go through this i know i have others with me to give me strength.

Rest is good look after yourself. oooxxx

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Pam,

Sending you a big hug and my prayers for you to beat this fast. Lots of love.

Paty

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Pam,
I don't know what to say - other than what has already been said.

Wrapping you in hugs love and prayers.

Re: brain mets
 

Pam
I must chime in and tell you how sorry I am you are facing this latest setback. It is just not fair at all! You should only be recovering from surgery not something else. At least you were quick to discover the brain mets and start treatment. My prayers and a big kick cancer hug from me!
Elizabeth