I am glad this drug is working for you and it is giving you a good quality of life too. Most of all, I thank you for participating in a clinical trial that will eventually help many women. It is a very brave thing to do.

Very glad to hear of your progress. I am interested in this trial, as both myself and my daughter are BRCA 2+. I googled PARP but didn't come up with much. Do you have any information or a link that I could use? Thanks in advance, Kim

Kimberly, you should check out www.facingourrisk.org
It is a site designed for those with an increased risk of br ca including BRCA positive. Soccermom is very involved with this site and knows a lot more about it. I have only recently begun to ck it out. I am also BRCA 2 positive.
Best wishes to you and your daughter.
Maryanne

Just so F___ing Happy for you Swanky (Leea). Hope this new path works for a long, long, long, long , long, long, time. Peace to you and your energic family. Karen
PS: Thank you for your participation in the trial. I am still looking for a trial to participate in.

Kudos Pharmaceuticals - KU-0059436
 

IRB# Pro00011828 at Cedars- Sinai Medical Center

Here is some info from the consent form, maybe this will help find it.

Thanks!
 

I am doing some calling around and the info you sent has helped me get going in the right direction - Kim

Just want to add my thanks to a pioneer. Long life to you. May your grandchildren drive you crazy.