6 year survivor today!
 

With all the sad news lately on our board, I thought some good news might be nice...

I am happy to change my signature to 6 years NED today. I finished treatment this past July 2012, took my last Femara pill, and was discharged by my oncologist.

I could not have made it through without so many of you on this board... it truly is a Her2 Support group!!

all the best
caya

(I'll be eating some chocolate today, for sure!)

Re: 6 year survivor today!
 

Congratulations and Many Blessings for continued good health!
Thank you for sharing this happy news :)

Re: 6 year survivor today!
 

I am so happy for you! Congratulations.

Re: 6 year survivor today!
 

Yeah Caya. I am right there with ya!!!!

Re: 6 year survivor today!
 

Yay Yay, Caya!

Keep the Faith~

Jessica
Dx-5/17/02 - 33 yo; Stage IV - L IDC w/single liver met
1) Herceptin + Navelbine x 8 weeks - No response; progress to innumerable,immeasureable liver mets
2) ISIS 2504 + Herceptin - 6 mos, partial response
3) Taxol + Herceptin x 13 weeks to NED!
NED for 1 year
9/04 - Single liver lesion recurrence
Taxol + Herceptin - on/off to beat back lesion
12/05 - R Hepatectomy; Liver NED until 2009
3/06- Local recurrence - Left breast, IDC & DCIS, but holding treatment while continue to heal from Hepatectomy.
12/06 - L mastectomy + reconstruction through 8/07
10/07 - Recurrence - supraclav nodes
4) Gemzar + Herceptin - on/off controlling nodes thru
9/08 - 7wks Rads to supraclav nodes
10/08 - Acute Renal Failure - nodes in belly stricturing kidneys. placed permanent ureteral stents
Back on Gemzar + Herceptin, but no longer responding.
5) 05/09 - Tykerb + Xeloda - partial response x 5 mos
6) 10/09 - Xeloda + Herceptin - no response, disease progresses
7) 2/10- Ixempra + Herceptin - partial response x 12 wks.
Discovered single brain lesion x 4mm & liver lesions growing while screening for TDM1 + PI3Kinase study.
6/10 - Novalis to treat brain met - SUCCESSFUL!
8) 6/10 - Chemo-embo w/Adriamyacin to de-bulk liver lesion.
9) 8/10 - Screened & Started TDM1 EAP
Immediate response, disease in belly responds dramatically.
2/11- questionable progression of lung nodules
Discontinue TDM1
10) 3/11 - PI3Kinase + Herceptin - intial good response in 1st 6 weeks but LFT's elevated.
11) 7/11-Discontinue PI3Kinase + Herceptin study;
Disease progression - 2 small lesions in colon – docs have never seen this before in BC
11) 8/11 –Start new combo Halaven+Herceptin
10/14/11 -Completed 3 cycles (9 wks)Halaven+Herceptin...
10/18/11 - Scanxiety time -1st scans since starting this regimen
Good interval response, continue on H+H!
10/25/11 – new 2mm questionable spot in brain? Due to Novalis or new disease?
Re-scan in 8 weeks.
1/3/12- Disease progression; 50%increase size & SUV-R lung, middle lobe 6cm lesion.
R supraclav node multiple, miscellaneous nodes in belly. Colon lesions fired up.
12)Herceptin+ metronomic Cytoxan + Methotrexate.
…on a hope & a prayer. Only chemo I haven’t been on is Taxotere.
Hurry up Pertuzumab & TDM1!
Follow Up Brain Scan on 1/18/12…pleasepleaseplease be okay. I can’t take much more.
1/18/2012- 8 new spots in 8 weeks since last Brain MRI
one 2cm spot in brain stem, one 2cm spot in R temporal lobe.
No symptoms, THANK GOD!
1/25/12 – Start WBR x 15 rounds
2/10/12 – Oral Cytoxan WORKING! Melted supraclav node & undetectable by US!
2/14/12 – FINISH 15 rounds WBR;)
6/12/12- Continuing on oral Methotrexate BID & Cytoxan qpm, but on chemo break
for 3rd week due to low counts.
6/15/12 – Yay! Resume chemoJ
6/25/12 – Chemo break again due to low counts L
6/28/12 – PET Scan & Brain MRI this week…
NED IS BACK!!! NED in the HEAD, NED in the BODY!
10/26/12 – Still NED in the HEAD, but single troublesome node in chest, precariously close
to superior vena cava/heart. Not a perfect scan, but pretty darn good.
Maintain current treatment and Echocardiogram on 11/1 to keep an eye on node.

Re: 6 year survivor today!
 

Fantastic news Caya! I think I will have some chocolate today as well to celebrate with you!

Re: 6 year survivor today!
 

Congratulations - such wonderful news! You deserve that chocolate indulgence today :)

Re: 6 year survivor today!
 

Congratulations I am right ahead of you but still
taking Femara and seeing the Dr. Have more
chocolate, wine, whatever your choice as I will
when I get the nerve to cut the cord.
patb

Re: 6 year survivor today!
 

Congratulations Caya and I'm so happy for you and love these good news threads!!!:)

Re: 6 year survivor today!
 

Congratulations Caya! I hope to reach this milestone some day too!

Re: 6 year survivor today!
 

Such great news. Congratulations.

Re: 6 year survivor today!
 

Such wonderful news...so happy for you! Congratulations :) xxx

Re: 6 year survivor today!
 

Congratulations!

[I've been going more than two weeks without using my compression glove and sleeve for lymphedema. Yes, I think it is reversable.]

Re: 6 year survivor today!
 

Good for you! Now go enjoy looking at cancer only in the rear view mirror. Or better yet, not at all.

Remember, even as you graduate from cancer land, we are always here for you, and I hope you will continue to check in with us as you can!

Chris

Re: 6 year survivor today!
 

Many congratulations to you!!!!!!!!!!!!!!!!!!
Best best wishes.
karen z

Re: 6 year survivor today!
 

How wonderful for you! Gods blessings, and good health and happiness to you and your family!

Re: 6 year survivor today!
 

Awesome.....awesome.......awesome.

Praise God from whom all blessings flow.

Mary Jo

Re: 6 year survivor today!
 

What a wonderful day!!! 6 years and many many more!!! Yay!!!

Re: 6 year survivor today!
 

Caya, This is great news....go! Go with God, Caya. Ceesun

Re: 6 year survivor today!
 

Congratulations Caya!! Hugs and more hugs!