HER2 Support Group Forums

HER2 Support Group Forums (https://her2support.org/vbulletin/index.php)
-   her2group (https://her2support.org/vbulletin/forumdisplay.php?f=28)
-   -   10 yrs brain mets - still NED ... (https://her2support.org/vbulletin/showthread.php?t=63391)

StephN 06-25-2015 01:43 PM

10 yrs brain mets - still NED ...
 
... in my head and everyplace else.

With all that has been happening in my life I was late with my annual screening brain MRI. I had to cancel my appt in May as I was gone, but had it yesterday.

Good news once again - no new spots, and the old ones do not show activity.

Had my test in the new machine. It is wider but LOUDER. Same cacophony of noises and sounds but louder even with headphones, music and foam wedges to hold my head still.

suzan w 06-25-2015 02:50 PM

Re: 10 yrs brain mets - still NED ...
 
That is great news...keep up the good brain waves!! I don't know why those machines are so LOUD!!

Carol Ann 06-25-2015 03:27 PM

Re: 10 yrs brain mets - still NED ...
 
YAY StephN!!

So happy to hear this, thanks for posting. :)

CA

Laurel 06-25-2015 05:43 PM

Re: 10 yrs brain mets - still NED ...
 
You inspire many here I am certain, Steph! Loved the "cacophony of noises!" It is so true and such a good discription! I never get used to it! Thanks for sharing the wonderful news. Glad you are enjoying life and living each day to its fullest!

annettchen 06-25-2015 07:31 PM

Re: 10 yrs brain mets - still NED ...
 
Thank you so much for sharing! It gives so much hope! Very, very happy for you!

Pamelamary 06-25-2015 08:34 PM

Re: 10 yrs brain mets - still NED ...
 
Great news Steph! You are one of our forum's heroes.
Best wishes..... Pam

michka 06-26-2015 01:15 AM

Re: 10 yrs brain mets - still NED ...
 
Your post brings a big smile on my face! 10 years...it seems long but it is only the beginning. Many more years to come!
Staying on our forum and sharing this good news gives hope to many. Thank you for that Steph!
Felicitations! J'espere vous revoir tous les deux Ã* Paris....

LeahM 06-26-2015 04:41 AM

Re: 10 yrs brain mets - still NED ...
 
Happy to read this news! Best to you always

thinkpositive 06-26-2015 07:42 AM

Re: 10 yrs brain mets - still NED ...
 
That is such great news! I often read your posts and your signature when I feel scared or worried about having my cancer come back. Knowing that you are doing so well even gives us all hope!

I hope you continue to have many more years of NED!!!

Take Care,
Brenda

snolan 06-26-2015 08:19 AM

Re: 10 yrs brain mets - still NED ...
 
Great news, hope for many many more years!

tricia keegan 06-26-2015 03:27 PM

Re: 10 yrs brain mets - still NED ...
 
So pleased for you Steph, you were one of the first people to reply to me when I was first joining this site and I'm so glad you're still doing well and long may it continue. xx

JillaryJill 06-27-2015 04:44 AM

Re: 10 yrs brain mets - still NED ...
 
Your story is amazing. I just read your entire signature. Wow!
So happy for you. You are an inspiration to us all.

forher 06-27-2015 10:39 AM

Re: 10 yrs brain mets - still NED ...
 
StephN, Congrats! And hoping for decades more for you. Thank you for posting this. It really helps me, being stage IV brain mets, hearing about your successful longevity of NED. I will be thinking of your StephN Superpowers in the next few weeks when I go in for my brain MRI.

BonnieR 06-27-2015 12:20 PM

Re: 10 yrs brain mets - still NED ...
 
So glad to hear your news and grateful that you are always here to share it with newcomers. Hope is everything!
Keep the faith

Becky 06-27-2015 01:34 PM

Re: 10 yrs brain mets - still NED ...
 
God bless you Steph. I remember it all so well. Stage 4 liver mets and NED then the brain mets discovered with no symptoms. And all goes well and continues to. As with Tricia, you were one of the first ones on this board to greet me. You are one great woman. A thousand hugs and kisses to you.

lkc Gumby 06-27-2015 04:47 PM

Re: 10 yrs brain mets - still NED ...
 
wonderful milestone. so happy for you.

Kkmom 06-27-2015 06:16 PM

Re: 10 yrs brain mets - still NED ...
 
Good good news - inspiring and always so good to read.

Mtngrl 06-28-2015 06:01 PM

Re: 10 yrs brain mets - still NED ...
 
Fantastic, Steph!

And thank you for posting. It does people a world of good to know anything is possible.

Love and light,

carlatte7 06-28-2015 06:02 PM

Re: 10 yrs brain mets - still NED ...
 
Wonderful news!

KathyT 06-30-2015 11:36 AM

Re: 10 yrs brain mets - still NED ...
 
StephN,
Hi! Congrats!! I have a question about your brain mets....did you have any symptoms? I have been getting headaches regularly but not constantly. I feel sometimes it is from sinus congestion or tension from my neck but don't want to overlook any symptoms. I don't want to overreact....
Thanks,
Kathy


All times are GMT -7. The time now is 03:21 AM.

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021