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fauxgypsy 11-21-2015 03:28 PM

Bone scan
 
I should know better than to schedule a scan on a Friday, and the Friday before Thanksgiving. Waiting is awful. I have been having pain in my upper arm and shoulder for quite a while. My oncologist tried to say it was Fibromyalgia and was planning on sending me to a pain manage specialist (since I can't take most pain medicines, I don't know if that would have helped). He did not do any blood work and kind of blew me off. I reminded him that there was a spot on my humerus that that they have watched for some time. So he sent me for a bone scan. I had the bone scan on Friday and they let me glance at it. My right shoulder lit up. A lot. I know that there are other things that can cause that but I am worried. They did close ups of my skull too but said that they did that anytime they did a bone scan for a person who had previously had cancer. I did not see those. I may be able to see the radiologist's report tonight or Sunday night online. I will call the oncologist Monday. Just worried. I have been NED since 2007, but there was a real screw up and I may have been stage 4 or maybe stage 2. We just moved to another state and I love my position there. I am teaching at a very small college. Things are going well. I hope...well you all know what I hope. : (

LeahM 11-21-2015 03:53 PM

Re: Bone scan
 
I had terrible Rib pain for a while. Bone scan lit up, X-ray the same. It was small tho so I waited six months and repeated it. Healing fracture.

fauxgypsy 11-21-2015 04:16 PM

Re: Bone scan
 
Glad it was not bone mets. I know that it might be something else. I just have a lot pain. Whatever it is, I want it to go away. The one thing I do know is that it is not fibromyalgia.

Carol Ann 11-21-2015 09:28 PM

Re: Bone scan
 
Waiting and hoping right along with you that it isn't .... same as what you hope it isn't.

Carol Ann

fauxgypsy 11-22-2015 07:31 AM

Re: Bone scan
 
Thank you, Carol Ann.

Lucy 11-22-2015 08:52 AM

Re: Bone scan
 
I agree, waiting is the worst. Your imagination is usually worse than anything they're going to tell you and that (your imagination) is all you have while you wait.

You're right, too, that it can be so many things that are not cancer. I hope and pray with you that it's one of those many other things. Hang in there!

Sending cyber hugs

fauxgypsy 11-22-2015 12:18 PM

Re: Bone scan
 
Thank you, Lucy. I hope I can at least see the report tomorrow. I know that there will be more test before I know anything for sure. I am just frustrated. I think it is time for a new oncologist.

tricia keegan 11-22-2015 01:32 PM

Re: Bone scan
 
Holding good thoughts for you, I know how stressful it can be, I thought I had bone mets a few years ago and had numerous inconclusive scan's until eventually the spot they were watching disappeared thankfully, good luck!

fauxgypsy 11-23-2015 11:18 AM

Re: Bone scan
 
The report is in. It basically says that there are several areas where metastatic disease cannot be ruled out and says that there is a place on my left Iliac that is suspicious. The report suggests an MRI of my pelvis and lumbar vertebra and xrays of my right shoulder and skull. : (

Carol Ann 11-23-2015 11:32 AM

Re: Bone scan
 
%$#&^%!! :(

Carol Ann

fauxgypsy 11-23-2015 11:37 AM

Re: Bone scan
 
Carol Ann, my thoughts exactly. Hope to hear from my doctor tomorrow to set up those tests.

tricia keegan 11-23-2015 12:20 PM

Re: Bone scan
 
What Carol Ann says but will continue to wish for the best until told otherwise, these bone scan's can cause so much stress and they tend to light up at the smallest thing in my experience.

Carol Ann 11-23-2015 12:40 PM

Re: Bone scan
 
You are right, Tricia ... but #$%$# anyhow, in the meantime!

Wish these tests were better and more accurate off the bat! Ok, let's hope they are lighting up because its the holidays and no other reason!!

Carol Ann

LeahM 11-23-2015 02:48 PM

Re: Bone scan
 
Not the news I was hoping to hear. Hopefully the next tests will be more definitive. And in your favor

Laurel 11-23-2015 05:06 PM

Re: Bone scan
 
Poop, Poop, and Double Poop! Please keep us posted. Hoping this is something else. Prayers your way.

fauxgypsy 11-23-2015 05:36 PM

Re: Bone scan
 
I am hoping to hear from my oncologist tomorrow. I would like to get these tests soon.

thinkpositive 11-23-2015 06:33 PM

Re: Bone scan
 
Well dang. Nothing is definitive so we just gotta hope for the best. Keeping you in my thoughts and prayers.

Take care,
Brenda

Andrea Barnett Budin 11-23-2015 06:35 PM

Re: Bone scan
 
I just was checking in and found this. What Carol Ann said -- ditto.

Well, with survivors -- this is how it goes (I am learning). Once you've had metastatic they can't rule it out. New things look "suspicious" and even worse hypotheses I've heard. All causing angst and more waiting which is painful.

So I say deep breath, think positive (cause they surely won't) and let your body know what you Expect! I am serious. Talk to your body. It is listening and hears everything you think, say and whisper. Even type. And visualize.

So feed it with what you want, not what you fear, Leslie.

You could have bursitis. Inflammation. Doesn't that light up? Go with that. I have pain there almost every night since 1995. The damn 21 lymph nodes don't make my arm happy at all.

I rearrange the pillows throughout the night (I have 4 and 2 more as back up). Sometimes I stand up and rearrange. And when I get it just right I pray I don't have to pee, b/c I don't want to move.

I send you hugs and have given you my best advice. The advice I give myself, after I breath and meditate and calm myself. And Ativan at night helps big time. Just saying. Anti anxiety. You deserve that.

Theanine, Valerian Root, melatonin. Whatever works to relax you. Music and meditation, visualization work great if you can't take any of my suggestions.

It's probably nothing. I tell my oncs outright, I DO NOT HAVE CANCER, and I smile as I say it serenely. They just stare at me. Not knowing what to say. It's their job to worry. So let them worry. Prove them wrong. Go for it, Leslie!

jaykay 11-23-2015 07:16 PM

Re: Bone scan
 
Oh crap! And what carol Ann wrote

fauxgypsy 11-23-2015 08:01 PM

Re: Bone scan
 
Thank you all. I am trying not to freak out over this. I just want to get the rest of the tests done.


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