|
Auntie Em! Auntie Em! Danger Will Robinson...
1 Attachment(s)
Auntie Em! Auntie Em!
Red Alert! Captain to the Bridge! 1-Adam- 12 ... see the man... Danger Will Robinson! Attention all personnel... Incoming wounded! You get the idea... Soooo...Now that I have your attention.... let's travel back it time to Tuesday night when all hell broke loose (un-necessarily to my way of thinking) As many of you know... I am soooo not a panicker... very low threshold on my drama meter! Tuesday afternoon, I was scheduled for an echo and a CT of my chest, Ab and Pelvis. Well, friends, I had been feeling so blechy for so many days that I was pretty sure it had been at least 3 days since my last actual shower. And I had a sneaking suspicion they were going to try to admit me once I was there... I tried to muscle the nerve and energy to get ready and go... but seriously... getting dressed would have been plenty. riding the hour in the car to the city traveling to the echo lab - even in a wheelchair waiting around for my turn laying on that table for 45 - an hour (because of all my scar tissue) and THEN having to drink that nasty liquid and do the CT stuff. It was just more than my little spirit could handle in one day. So I asked Ted to call and reschedule. OMG! What a s$%@ storm that created! Now everybody and their CRNP was on the phone trying to convince me I needed to be admitted ASAP. The "bed crisis" of the day before be damned... there was a bed waiting for me as soon as Ted could get me there. Through my wonderful husband, I explained that if getting ready to go, slowly, for two tests was an exhausting prospect... rushing around, packing up to be admitted as well... and getting the kids organized... was not likely to happen before morning. They were NOT happy (poor things) but soon remembered that some things with our beloved NEDenise are simply not negotiable. So my devoted and quite obviously worried onc evoked a promise that I'd come in "first thing" the following morning to start all the tests they wanted. Sooo here I sit... drinking the nasty contrast fluid and waiting for the CT. Already had some other stuff done since I've been here but no results yet... still trying to put together a picture of what we're dealing with. I'm likely here till Monday. Missing My Son's National Marching Band competition _ Out near you Laurel - in the sweetest place of Earth!! :( In a different reality... I'd actually, maybe gotten to meet up with you for a hug! Oh well! Next time! Everybody... keep those prayers coming for healing for me, and wisdom for my care team! We need it! And I appreciate it more that you can ever know!! Love to all of you... and big HUGS too! Denise BTW - sorry for any missed typos - I am clearly typing under influence. :) Ativan, Percocet, Zofran.. oh my! |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Hi Denise,
I am praying for you and sending some healing thoughts over to you. Please let us know what is happening. I'll be thinking about you this weekend. One question....is there any way you can get off the dex now? Take care and chat soon. Hugs, Jill |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Oh Hunny!
Not only am I not getting off it... they've tripled the dose! I'm at 24 mg/day now. Have to admit though that I feel a lot steadier than I did without it. Thanks for checkin in! How are things going for you? :) Denise |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Praying that your team find solutions for you and have you feeling better soon.
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Why did they triple the dose?
What are they doing with you since admitting you? I am, umm....I don't know. LOL...you probably get it. I'm going for my 3rd infusion on Wed. Still have the neuropathy on the right side and still have no vision on the right side. They are watching my heart closely. MRI scheduled for Nov. 27th to see what's going on upstairs. |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Ms NEDenise,
Inquiring minds want to know the latest. Keep us posted with the continuing drama. What the heck is going on? |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
hmmm...
Let's see.... Lumbar puncture MRI of brain MRI of spine CT of Chest, Ab and Pelvis Multiple urine analysis Multiple, multiple blood draws And a poor guy down the hall who sounds like he coughs up and spits out his spleen a couple times each hour... ich! What is with THAT?! Of course... now it's the weekend so results are not forthcoming... And my neuro guy is at a conference in Europe till next Friday And my onc is on a MUCH needed 4 day weekend... And of course... I want ALL the results, and to consult with ALL my experts... before I'm ready to decide on ANY next steps. So... right now, I'm eating ice cream and fresh fruit (that's what I'm craving) and waiting for results to trickle in. I think after the batch of tests tomorrow... I might just go home to do the rest of my waiting. We'll see... access to info seems a little easier here... but home has my own food and my puppies! Keep praying and checking in Dear Friends! :) Denise |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Tons of prayers and positive energy being sent your way! Can't wait to hear good things for you
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Denise,
Please know I am thinking and praying for you! You never cease to amaze me how you can keep your wit with all thats going on. Please know there is much love and good wishes for speedy healing coming your way. May God bless you, your family and healthcare team! Love Pat |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Well, wel,l Miss Denise! I miss a day or two from this site and all hell breaks loose! I have been praying for you daily. From the sound of things I'd better step up my prayers! It would have been wonderful to meet up with you in Hershey this weekend. I am sorry you are missing your son's band competition and stuck in a hospital. Stinks.
Well, keep your chin up. Prayers headed upward on your behalf. Much love, admiration, friendship, and affection--Laurel |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
keeping you in my prayers Denise
Denise |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Denise, oh my goodness me! As usual, you have amused with your not so amusing post. Just to remind you, big hugs, hope and prayers are being sent to you from my part of the world.
Enjoy the ice cream and fruit, and the triple dose of dex! Marie xx |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Denise,
Me and my family and family of friends are sending loving, healing wishes, Yours, Karen |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Denise I am sending you love and hugs. I hope you can get some rest when the dude down the hall isn't hacking.
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Hey Denise I have been waiting to hear what is going on with you. Well they are certainly covering all the bases. Keep eating that ice cream and what ever your dear heart desires. Sending warm hugs and big prayers. Lois
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
With that triple dose of dex (that first auto corrected to sex...good thing I proofed it!!!) you probably need a triple dose of ice cream. Hope you rest easy tonight!
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Hey there Denise sweetie - enjoy that ice cream... Is it chocolate? :)?
Sending prayers that you will get great results from all your scans. xoxoxoxo all the best caya |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Don't make me come there and scare the crap out of that cancer. Feeling so pissed off at this disease. It sucks, it robs us, and while we can see our own strength at dealing with this crap on a crapstick (hi Brenda in "heaven"), and we can see miracles and possibilities and some good things from the "journey", right now, I am just so pissed off.
Sending you all my wishes for cancer to leave and for the docs to figure out the next magic trick and for you, Denise, to get back the quality of life you most certainly deserve. Love, Flori |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Well... sounds like you're not in Kansas anymore Toto but keep your eye on the yellow brick road your journey is far from over but its going to all end up with you back home and doing great. Just keep clicking those heels! HUGS!!!
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Love to you, Denise, and all good test results soon!
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Thinking of you and sending positive thoughts. Ditto "crap on a crapstick"
Xoxo Janis |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Well, crud...this is what happens when i miss checking in for a few days...although i saw the title and knew it was from you before i saw yoursignature! So...fingers crossed..waiting to hear from you...rememberingthat our God is greater....
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
So, forget SOS -- COC crap on a crapstick is apropos here!
I turn my back for a few days, and look at you! Denise! In the hospital. On the weekend! Over Veteran's Day weekend. Obviously, not well-planned, but probably the best place for a person who can't get the strength to get dressed and go through double tests AND MORE! Did you put the seat back flat, so you could rest on the way? I've done that. Being where you are rather than in a waiting room is, can't believe I'm saying this -- preferable. Love your post from God. He's got your back. I know it. You're on Zofran? You're nauseous on top of all the other crap you are going through???? CRNP, please tell me what they are? Peeps of some sort. RNs? PAs? NP (nurse practitioner). Am I getting close? I do know Ativan, and 1 mg is the highest I can go. Anything more and I cannot turn my head without flying through the ceiling. Percocet? So you're in pain? I know you're unsteady. I mean like a whole lot! Shaky, literally... And I remember thinking, and maybe posting, that I absolutely hate all of your symptoms and insist that they disappear! (I didn't mean for them to triple your Dex, but whatever makes your body happy, including ice cream of course, is what I was demanding in your name!) Your brain, your wit, your ability to type without typos and in varying colors along with messages from God -- is stunning, given what you are going through physically, emotionally, blah, blah. Geez. I had no idea. I am thinking of you all the time, and sending prayers out with DENISE boldly blazing and attached to them all the time, so no problem that I didn't know of your latest chapter. It's just a chapter. Not the whole story. I am waiting with ALL to hear news. Is there anybody actually working in the hospital today? Yesterday? Not so nice long weekend yet, better than hanging by a thread at home, Neddie. Hate to say. Glad the docs are covering all bases and then some. Could they throw in a mani/ped and facial while they're at it? Anything you want to eat that they don't have, Ted can bring you! Pastrami on rye? Go for it. You name it. You deserve whatever your heart desires. We're all with you, Denise! Sending LOVE, and HUGS galore, Andi |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Thinking of you Denise- sending big love, hope and saying lots of prayers!
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Ok. I am impatiently awaiting good news from you, Miss Denise! You get well! Praying.
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Hope you get out of hospital as soon as your can. And I hope the staff can figure out what's going on (with your help!) It isn't easy not knowing what is happening in your body. I'm wishing you an end to blehiness and hoping this is either that infection lingering or a medication imbalance.
Cheers Aussie Girl |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Ditto what Laurel said and Aussie Girl too!!!!!!!!!!!!!!!!
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
For gosh sake, Denise, must you always lead such an exciting life? Surgeries and mickey mouse...and this? Who knows what craziness you will pull next. But seriously, Im so sorry you are holed up in the hospital, but I am glad you are getting all these tests and will finally be able to know exactly what is going on and what you need to get to feeling better. I know you would much, much rather be home with your family and your puppies and your food, but try as hard as you can to view it as a short vacation. You will be home before you know it, especially as stubborn as you are.
I wish, well a lot of things right now, but mostly I wish we would all catch a break and stop suffering. I am so sick of being sick, and I know everyone else is too. Im sending all the prayers you requested plus extras, and as always big big hugs. |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Wow, Denise. You are the ultimate cancer soap opera. Still praying!
Love, Penny |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Praying like crazy for you, darlin denise. Keep them laughing around you. Hugs, Nora, xoxoxoxoxoxoxoxoxoxoxoxoxooxxoxoxo
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
So I am not in Kansas, but close by in the Denver area. It takes almost a week for me to get information such as yours. Life is definitely slower here.
I am back in the office and have time to look at the web site. I hate hearing about the bad things happening to you! If the disease is in the spinal area, all the more so to get on Intrathecal Herceptin. I think that adding Topotecan to the brain is also a good idea. Nina still remains clear four years after it was first found in the brain and two years after it was found in the spinal nerves. All I can say is that this disease is a rough roller coaster! Send a personal message once the doctors are done with the coffee grounds and tea leaves. Rolepaul |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Any Word from Denise? Thinking of her and praying all is well!!
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Denise...we are waiting to hear from you...hope you are still awaiting good news from your onco.
Warmly, Karen |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Still at hospital, Denise? More tests? Any results?
We're all on the edge of our seats. Waiting. Are they treating you with care, as they should? Are you feeling all the love traveling directly to you? OXOXO, ANDI |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
NEDenise, Inquiring minds are back! Did the scans show anything in the Parietal & Occipital lobes?
How are you holding up? Do you have a plan? We miss you. |
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Me, too! Trying not to get worried. Lifting you up and believing for good news.
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Adding my voice to the chorus hoping you are feeling better and getting some answers. Be well, my friend!
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Adding mine as well. Sending our prayers and hoping to hear from you soon.
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
Me too!! Saying a prayer for you right now!!
|
Re: Auntie Em! Auntie Em! Danger Will Robinson...
My dear Denise,
I read this update on your Caring Bridge site, and I've been praying for you ever since. You are loved and appreciated and cherished. Rest in that knowledge. |
| All times are GMT -7. The time now is 07:41 AM. |
Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021