zometa or reclast with no mets to bone?
 

I saw on several gals profiles that they are taking these and they don't have bone mets. Is that a new recommendation to prevent any mets? I do have osteopenia and tried taking boniva and had high fever with it.

Re: zometa or reclast with no mets to bone?
 

Michele;

I also have osteopenia and just happened to have seen my specialist about this Friday. I have been off both arimidex and actonel since mid 2011 and commented that at the time I started actonel six year plus ago I was happy as it was rumored at that time to stop mets to the bones. She corrected me and said that a much more powerful drug is administered intravenously for that purpose. This I assume is zometa or reclast. So I guess the question is not "is there a drug available?" but "do I need to take this drug?". I was told that given the time I have been NED and given the aggressive nature of my cancer it was unlikely to return if it hadn't already. Perhaps this would be a good question for the Johns Hopkins seminar I just posted?

Cathy

Re: zometa or reclast with no mets to bone?
 

Hi Michele,

I developed osteoporosis while on Femara (had osteopania before BC, osteoporosis runs in my family, my Mom and 2 maternal aunts have it). My oncologist agreed for me to see an endocronologist to have a Reclast infusion - double whammy they said, it would treat my osteoporosis and help prevent a recurrence.

I had the infusion, felt fine that day, but had a rough night and following day - despite taking Tylenol before, during and after the infusion. I was fine after a couple of days. My endocronologist said studies are showing the Reclast should stay in my system for about 18 months, so that is when I will get my next infusion.

all the best
caya

Re: zometa or reclast with no mets to bone?
 

I don't have bone mets and still take zometa because I'm on arimidex and slight osteop. I have not had a single side effect from the zometa. Either way I wish you well.

Re: zometa or reclast with no mets to bone?
 

Yes... if you can avoid bone mets, avoid them. It might be an opportune time for you to try out denusomab. Just know that there is no known best treatment cycle for it or Zometa. I did every month for 6 months, and then every 3 months since then. I have been on it Zometa for 3 or 4 years I think... and it's stopped bone mets from occuring.

Re: zometa or reclast with no mets to bone?
 

Michele my Onc told me to begin once a year iv of Zometa after my last Dexa showed Osteopenia!

Re: zometa or reclast with no mets to bone?
 

I read up on Zometa and chose to go on it ( My Onc thankfully agreed). I did not have any side effects at all. But was aware of them.
I did Zometa for around 4 yrs every 6 mos. and now am going to Reclast once a year.