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evlin75 12-29-2014 11:09 PM

Re: My daughter, Susan.
 
http://www.degusipefuneralhome.com/o...ff/#!/Obituary

My daughter's obituary.


Ev

StephN 12-29-2014 11:47 PM

Re: My daughter, Susan.
 
Thank you. Such a loving and lovely tribute. And being a gemologist does not surprise me, as Susan was obviously a treasure to all who knew her.

KirisMum 12-30-2014 04:13 AM

Re: My daughter, Susan.
 
Thank you, Ev. Susan was a real gift to the world. Again, I am so very sorry for your loss. It's just not right to lose a child. :-'(

Dakini52 12-30-2014 06:33 PM

Re: My daughter, Susan.
 
What a beautiful tribute to your daughter. Thank you for sharing it.

Mtngrl 01-02-2015 09:56 AM

Re: My daughter, Susan.
 
Dear Evlin,

I, too, am so, so sorry for your loss.

Thank you for telling us Susan's story, and for your wisdom and insight. It is very generous of you to reach out to this community that way.

Redwolf8812 01-02-2015 10:09 AM

Re: My daughter, Susan.
 
I am so sorry, Evlin. Thank you for remembering us and keeping us posted.

Prayers,
Penny

Rolepaul 01-27-2015 05:25 PM

Re: My daughter, Susan.
 
Ev,
I am glad Susan had the extra time, but sorry it was not time where she was in better health. I agree that finding the disease earlier would have been better, but I am not sure if they would have started the IT Herceptin with an earlier diagnosis. I am sorry for the loss of your daughter and wish I could have been able to do more.

evlin75 01-29-2015 08:11 AM

Re: My daughter, Susan.
 
Thank you. Finding it before it became invasive ductal would have been the important time....right in the beginning in 2003.
I have racked my brain for any solutions that might have worked, but realize we did everything on God's earth -to no avail.
Her oncologist accessed all the targeted drugs and they just did not work for her -either at all or any definite period of time.
The last couple years when she was dealing with the leptomeningeal diagnoses, the DR. should have been doing more frequent MRIs. Checking the brain and spinal fluids was not sufficient.
But the genetic testing showed so MANY mutations that the cancer had gone through .....and she had used most all the treatments available. Now any that could be reused were so very caustic and caused her so many side effects - and few available. Even if he had found the progression sooner.

Her genetic make up evidently caused the limitations as each individual reacts differently to the treatments available.
But.............a her2 diagnoses had a 2 year deadline some time back. From the April 2003 diagnoses to December 18, 2014 we had our Susan, but like I mentioned before the last weeks were not much quality time. Hopefully some day vaccinations will eliminate this disease.

Ev


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