I need survival stories brain mets PLEASE
 

My wife's bc stage 3 metastasized to the brain. After WBR the 10 lesions shrunk 30 to 70 percent. Two months later they started growing again. They are starting chemo a combo of xelobe and tykerb. We have 3 children and I feel like im losing the war. Can someone please tell me there survival stories or others you know so that we can read them. Maybe it will recharge our battery.

Re: I need survival stories brain mets PLEASE
 

I see some people on here who are around for a few years after treatment for brain mets. Mine keep coming back and my oncologist says 'some people manage to live 2 years with such a diagnosis', so I dont feel too hopeful but I will take whatever treatment they offer me. The treatment itself is unpleasant so I too would love to hear some uplifting stories.

Re: I need survival stories brain mets PLEASE
 

There's a thread called "calling all stage iv sisters." Periodically the treatment signatures are compiled. Some people with brain mets have been around a long time: http://her2support.org/vbulletin/sho...isters&page=10

Re: I need survival stories brain mets PLEASE
 

Thamks mtn girl that was a great thread. Especially the list of survivors that jackie has put together. I highly reccomend that you go there delaney. My wife started her chemo today. I really wish the radiation worked. However her breast cance reacted great to her chemo last time and im hoping that chemo works for her brain mets. God bless all of you .

Re: I need survival stories brain mets PLEASE
 

Gods blessings to you and your wife also. Hope springs eternal. You are in my prayers

Re: I need survival stories brain mets PLEASE
 

Xeloda/Tykerb held Nina's Brain Mets in check, but had a few that needed radiation. We went to a new regime of intrathecal Herceptin and Topotecan with IV Herceptin and Navelbine. 12/15 we were told at best four months to live but this regimen has Nina looking for work and planning for our birthdays in July. No evidence of disease in the brain or spine (spinal involvement is very dire). This was a compassionate treatment regime, but the insurance gave the go ahead as did MD Anderson Cancer Center. MRI on the spine at least every 90 days but Xeloda/Tykerb only hurts the stuff and eventually something harder is needed to kill it. I hope your wife's results are as good as mine. By the way, her activities only slightly deteriorated during the time the disease progressed. Any weakness, tightness, or soreness in the lower back or upper thighs needs to have the spine MRI immediately. Methotrexate IT is to be avoided due to problems with hurting the meninges. I hope this helps.

Paul

Re: I need survival stories brain mets PLEASE
 

A wealth of information paul thankyou. my wifes body clear spine and fluid. god bless