HER2 Support Group Forums - A Place to Vent about "Awareness"

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A Place to Vent about "Awareness"

Several of us have strong opinions about "breast cancer awareness month." If you want, you can talk about them here.

Here's a blog post I wrote about it. http://www.durfeewest.com/pinktober-again/

And here's an Onion sendup of Komen (one of its favorite targets. A few years ago they had a headline that said something like "6,000 people race for the cure; fail to find it." http://www.theonion.com/articles/sus...e-probe,37202/

Feel free to chime in.

Re: A Place to Vent about "Awareness"

This time of year is always bittersweet. I was diagnosed at the end of August and had surgery early September and started chemo in October. I am happy to be 10 years out and still ned. However, I remember taking two of my daughters (15 and 13 at the time) to the mall in October. I had credit cards with no balance and i was just gonna let them go at it. A fun, no rules day as everyone was under so much stress. We could just forget about it all. But we couldn't. Every store where we were checking out, "do you want to buy this scarf or candle for breast cancer", every clerk would ask. Even at the makeup counter (I really remember the makeup counter because she was so pushy but I kept my cool) . Ugh, a fun day was a diaster for me. (Not my girls though cuz I spent almost $500 on them (but that was the point). So October is not my month.

I also think about all the other cancers too. What about them? I do understand it does help us somewhat. And Komen. I could write a book about how dis appointing they are to me personally but thats another post. I prefer to help the American Cancer Society. They were a real help to me. But most of all was finding this group. You're all the best!

Re: A Place to Vent about "Awareness"

I can see both sides to be honest, I wish other cancers would get the highlights that breastcancer does and also the funding, but that's a whole other story.

As the Moderator of the Komen forums I'm used to reading negative comments about the organization, I have no control over that but can only say that I personally was supported and helped through my own treatments by the ladies on Komen at that time and made some life long friends there, for that reason alone I do what I do to pay it forward and ensure every new member gets the help and welcome they deserve whatever the politics!

Re: A Place to Vent about "Awareness"

Excellent blog - Komen like so many other organizations United Way etc are all about big money. But how much money really goes to the cause they promote? After advertising, admn. cost and usually huge salaries for upper mngmt. staff then what's left? Yes.... it takes money to make money but I agree lets put the money in a cure - in research. I think we are all "aware". Now here's my main complaint so many are out there raising money and really all they are doing is making money off a "popular disease" Lets look at reality pinktober brings in alot of bongo bucks- pink sells and unfortunately there are alot pf people getting rich off it. I too am Stage IV and if the mets don't kill me the side effects of the meds will but I wear my pink ribbons and try to stay in denial as much as I can........

Re: A Place to Vent about "Awareness"

It's so refreshing to hear more and more people questioning the industry of breast cancer awareness. When I first began to question it (2001), it was not so well received (smile).

Here's a recent Time magazine article about
"How to Make the Biggest Impact With Your Breast Cancer Donations". I know of, and admire, 4 of the 5 -- "The Pink Fund" is new to me. NBCC is, and always has been, closest to my heart and mind.

Debbie Laxague

Re: A Place to Vent about "Awareness"

Great article, Amy!

Here's the one I wrote for METAvivor:

http://www.metavivor.org/blog/ ("No More Illusions")

I have made a point of telling people when they say, "You're a success story, you made it," etc ... that I really don't know that, just have to wait and see. I certainly HOPE I am! It has opened the door to alot of discussion, I'm doing my best to give people the uncheery, real side. It makes some people uncomfortable .... yeah I was pretty uncomfortable too when none of my tests were accurate and then the HER2+++ tumor was found in my "healthy" breast.

Carol Ann

Re: A Place to Vent about "Awareness"

I worked as a pharmacist at Sloan Kettering in 1978 and left in 1979. I had one experience Ill never forget. I was the nighttime outpatient pharmacist. One of the main childhood leukemia oncologists came down to the pharmacy with her nephews. It was in October 1978 and I was 30. Her nephews had some kind of infection and I made up Amoxicillin suspensions for them. I tried to make small talk with Dr. T, something Im not good at. My statement " It will be wonderful when they find a preventative for childhood leukemia"
(I was thinking about viruses and prevention) was met with the retort "Then well both be out of a job." I cheerfully retorted only she would be out of a job not me, and listed all the different chemos for all of the different cancers I made up that day. Kind of makes you think a bit. How does Pfizer feel about cancer?How about Genentech? How about Komen? How about the American Cancer Society. How about ASCO?

Paul

Re: A Place to Vent about "Awareness"

As I said on another post where this subject came up, I am really cynical and skeptical about PinkTober as I see how it's being trivialized and abused. we seem to be a country that wants to DO something So any mindless thing will serve the purpose
Conversely, when I was a newbie, I reslky embraced my pink ribbon, my husbands work permitted the pilots to wear pink ties"United Against Breast Cancer". It all seemed really supportive to me. And we'll meaning. But it gets out of hand with bars throwing "save the ta tas" parties and "go bra less". How does that help anyone? It depresses me. I'm without breasts
I have learned to donate very locally to a group which helps individual patients with their specific needs Rent, medication, mammograms
Keep the faith

Re: A Place to Vent about "Awareness"

How do I post a photo here? I have a perfect example of things gone amoc

Re: A Place to Vent about "Awareness"

Bonnie--I think you get an option for posting photos if you click "go advanced."

Carol Ann--great post. Thanks for sharing it. And I'm also a former lawyer. I shut down my law practice in 2008 to go off ot seminary in Philadelphia. After two years I transferred to Boston University School of Theology. I was diagnosed in my first school year at BU.

I don't think most people in health care would mind being out of a job if there were a preventative or cure for their specialty disease. But financial interest is an issue. It always is.

Re: A Place to Vent about "Awareness"

Where is "go advanced" prompt?

Re: A Place to Vent about "Awareness"

Bonnie,

At the bottom of your draft post. You can either click "Post Quick Reply" or "Go Advanced." If you click the latter, you can then scroll down to "manage attachments" and upload images or files.

Hope that helps. But it didn't work for me. I attached a photo from last year of some members of my in-person stage iv cancer support group, but it didn't show up. I tried pasting the photo directly. That seemed to have worked, but it wouldn't let me save it.

Sorry.

Re: A Place to Vent about "Awareness"

I did see the prompt finally. But don't know how to get the photo to the site. I am not good at technology at this level. Too bad because I have a killer photo I want to post here
But thank u for replying

Re: A Place to Vent about "Awareness"

To post a picture, look above the message you are typing, you will see fonts, sizes, A, and then a paperclip. Click on the paperclip to add an attachment.

Re: A Place to Vent about "Awareness"

I see that. It asks for a URL of the image. That is beyond my skill level!

Re: A Place to Vent about "Awareness"

Debbi L. great info, I think you should start a new post withthat link saying for those who want to donate to BC.

I'm a little skeptical about Komen myself. I don't understand where all the money they raise goes and how much goes to administration. Maybe that's something they need to explain clearly.
Let's not forget this site as a good place to donate to, it has proven its usefulness to all of us. We need it. And let's not forget Dr. Slamon!!! We don't need more awareness for bc, (maybe for the rare cancers), what we need is a cure for all cancers and to help those who can't afford the medicine they need.
Health and happiness
sarah

Re: A Place to Vent about "Awareness"

A brilliant breast cancer blogger who had an accounting background combed through the Komen financials (from its tax returns) and analyzed all the data. She is no longer living (and sorely missed--she was funny and brave and smart) but here's a link to her blog post about what she found: http://cancerculturenow.blogspot.com...y-numbers.html

Re: A Place to Vent about "Awareness"

Amy, thanks for addressing this important issue. I feel the greed in fundraising, cancer research, and oncology holds back progress on finding cures for those who desperately are in need of one.

Some of us had a similar conversation each October. Last year I was venting about the stink of pink. I clearly remember NEDenise participating.

We discussed Charity Navigator as a good place to check out before giving. I just visited and found that one needs to register to use it.

The Breast Cancer Research Foundation has 4 stars. Susan G. Komen has 3 stars.

I read the article about Susan G. Komen and I can see many valid points about how little of the donations go to research. I made the point last year that all this money going to awareness skipped me. I procrastinated at the age of 40 thinking that I likely could wait for a mammo. Wrong! Had I gone for mammos at a minimum of every 2 years it would have been found much earlier.

If research is our priority then another charity would be better. Perhaps the Breast Cancer Research Foundation?

From my personal experience the huge amount of funds going to charities for research is just the beginning of the problem. The entire system is broken.

Once a drug makes it into clinical trials the system breaks again. Poor and slow enrollment has been a chronic problem. Phase I and II trials are in limited locations. The trials compete against unaffiliated oncologists for patients who rarely find out they could participate until after receiving standard of care. Newly diagnosed patients are reluctant to participate wanting to go with the 'tried and true" treatments. This extends the time for new treatments for years, even decades.

To speed up cures we also need a campaign about enrolling in clinical trials, not just getting mammograms and breast exams. Patients need support with transportation costs and lodging.

So many opportunities for improvement.

Re: A Place to Vent about "Awareness"

As I said in my blog post, cancer is not a "cause" to market. It's a public health issue. Society as a whole should be working on it at a much better-funded level. The budgets for NCI, NIH, and other research look large, but not when divided by 330 million people. And then there are access and quality of care issues.

One of the doctors who spoke at LBBC gave the number of childhood leukemia patients who are enrolled in clinical trials. It was over 90%. The percentage for breast cancer is in the single digits. That is certainly a problem.

Mass screening of asymptomatic, healthy women has not been shown to increase overall survival. In fact, in some fortuitously matched pairs of populations in Europe, where one country began routine screening years earlier than its sister country, it was shown that it does no good at all in terms of overall survival. We're wasting money on screening that could be going into cure and prevention, but a for-profit health care system is skewed towards procedures. If health care were publicly funded, there'd be much more incentive to do evidence-based medicine, not profit-driven.

Overall survival should be the gold standard, and preventing or arresting metastasis should be the goal. One especially irksome thing that Komen does is tout five-year survival rates. Here's one response to that tactic: http://www.breastcancerdeadline2020..../truth-20.html and I read a wonderfully snarky blog post about it recently (Along the lines of "big deal. Estrogen-receptor positive breast cancer often recurs ten, fifteen or more years out. And living five or six years longer when you're 40 is still nothing like a normal lifespan." But I couldn't find it.)

Re: A Place to Vent about "Awareness"

I remember when my biggest wish was to live to my 50th birthday.

I did not understand cancer when I was first diagnosed at all. I had no idea that such a large number of breast cancer patients live so long. I lived in terror of a recurrence. Now I am just so grateful to be looking at 7 years since diagnosis, of which 6 1/2 are NED. And to have passed the big 5-0!

I am even more glad that my 2nd oncologist humored me by helping me enroll in the GP2 vaccine trial. I was truly a pain in the posterior. It was a battle on the board in the beginning, a lot of people told me that vaccines don't work, that it would destroy my heart. I am so looking forward to more data from all the vaccine trials that shows this is a way to prevent patients from recurrence.

I too am also happy that Genentech has come up with a Trio of Triumph on Her2 breast cancer, that would be Herceptin, Perjeta & Kadycala. I suspect that it shrinks the ranks of those in the HER2 group that progress to MBC.

I know Dr. Slamon was working on the ER cancers, but have not kept up with his progress lately.

NEDenise was truly special, totally cracked me up, and often.

I am asking customers to round up at J C Penney's for the Breast Cancer Research Foundation. If I must suffer through another Pink-tober at least I can promote a charity that has a greater focus on research.

Enough about my Pink-tober experience. It is a good blog. I'm sure that more and more are hearing your frustrations with the Pink system and you are making a positive difference.

Re: A Place to Vent about "Awareness"

thanks Amy. I agree with the writer and how most of us I believe feel; we want the money spent on research, on scientists like Dr. Slamon. Plus there are many different cancers and as a founder of a support group for English speakers in France, I can tell you that pancreatic, lung and throat are basically a death sentence. Yes, we've had several bc members pass away also but the majority of our members have bc and many of them had cancer some 25 years ago. We need to stop cancer period. In all its forms. The awareness is out there, certainly for bc. I like to give to those who do research or who directly help people (like this site, wouldn't we be lost without it?) and to people who need financial aid to get their treatment. I don't like to think the limited donations I can give go to awareness or administration or publicity, etc.

Re: A Place to Vent about "Awareness"

this is the pic Bonnie was trying to post.

Attachment 1232

Re: A Place to Vent about "Awareness"

Thanks for posting for me Pink! Click on it everyone and you will see one of the most misguided, offensive fundraising ideas ever! Who thinks of these things?
The creator thought they were a good promotion for mammograms
Keep the faith

Re: A Place to Vent about "Awareness"

Ohhhh . . . I'm sorry Bonnie, but I thought those were hysterically funny. I should have made those for the company fundraiser for Susan G. Komen.

On a serious note, all this talk about donations and it takes Sarah to remind us about our own board being a non profit. Thank you for correcting an important oversight. I checked on donating and this is the address:

Mail your tax-exempt donations to: HER2 Support Group Org.
109 Lambertville HQs Road
Stockton, NJ 08559

My question is who does this money go to? I thought the Druthers were in Southern California.

Re: A Place to Vent about "Awareness"

I guess they could be funny in a perverse sort of way. But they just seem vulgar to me
I can't imagine who would actually eat one!!!!
Anyway, my contribution to "awareness month"!!!
Keep the faith

Re: A Place to Vent about "Awareness"

Who on earth comes up with something like that? And what on earth is the squished breast made of? That is just wild... And I have to agree, this is so bad it's borderline funny...

My oncologist had the pink ribbon on today when we discussed my re-staging. Apologize for lack of knowledge, but is the Pink Ribbon or even the color pink itself tied to Komen exclusively? I kind of thought that there's e.g. other color ribbons for other types of cancer, even other illnesses? So to me the pink ribbon in and out of itself was not necessarily a bad thing - even though I'm tired of all the educational blabla?

Re: A Place to Vent about "Awareness"

I would eat them, they look like S'mores. Which explains why I'm so plump and Bonnie is so trim.

The following pink ribbon article is from Think Before You Pink:

Quote:

History of the Pink Ribbon

Pretty in Pink

By Sandy M. Fernandez

The woman was 68-year-old Charlotte Haley, the granddaughter, sister, and mother of women who had battled breast cancer. Her peach-colored loops were handmade in her dining room. Each set of five came with a card saying: “The National Cancer Institute annual budget is $1.8 billion, only 5 percent goes for cancer prevention. Help us wake up our legislators and America by wearing this ribbon.”… Then Self magazine called.

From the beginning, the pink ribbon connoting breast cancer awareness has been embroiled in controversy. Today, some members of the movement wear it proudly, giving thanks for both the symbol and its attendant charity-dollar largesse. Others hate it with a passion. But to much of the media and the world at large, the ribbon is the breast cancer movement. Where did the ribbon come from, where is it going, and what has it meant along the way?
The merging of the ribbon and symbolism in this country came about in two huge leaps. The first occurred in 1979, the year that Penney Laingen, wife of a hostage who’d been taken in Iran, was inspired by song to tie yellow ribbons around the trees in her front yard. The ribbon, Americans were told on the nightly news, signaled her desire to see her husband home again. For the first time, ribbon became medium, ribbon became message. Yellow ribbons sprouted up across the country in solidarity. That was step one.
Step two occurred 11 years later, when AIDS activists looked at the yellow ribbons that had been resurrected for soldiers fighting the Gulf War and said, “What about something for our boys dying here at home?” The activist art group Visual AIDS turned the ribbon bright red—“because it’s the color of passion”—looped it, spruced it up and sent it onto the national stage during the Tony awards, photogenically pinned to the chest of actor Jeremy Irons.
Ribbons had arrived. Overnight, every charitable cause had to have one. After just a short time, they were so ubiquitous that The New York Times declared 1992 “The Year of the Ribbon.”
The stage was set for the evolution of the breast cancer ribbon.
First on the scene was the Susan G. Komen Breast Cancer Foundation. Komen had been handing out bright pink visors to breast cancer survivors running in its Race for the Cure since late 1990. In fall 1991, mere months after Irons’ electrifying appearance, the foundation gave out pink ribbons to every participant in its New York City race. This first use of the ribbon, though, was for Komen just a detail in the larger and more important story of the race. To really break out, the pink ribbon would need a situation in which the ribbon was the event.
And it didn’t take long for that situation to arrive. Early in 1992, Alexandra Penney, then the editor in chief of Self, was busy designing the magazine’s second annual Breast Cancer Awareness Month issue. The previous year’s effort, inspired and guest edited by Evelyn Lauder—Estée Lauder senior corporate vice president and a breast cancer survivor—had been a huge hit. The question was, how to do it again and even better. Then Penney had a flash of inspiration—she would create a ribbon, and enlist the cosmetics giant to distribute it in New York City stores. Evelyn Lauder went her one better: She promised to put the ribbon on cosmetics counters across the country.
Penney recalls the birth of the ribbon now from her office at Ziff-Davis. “You know how it is when things are in the air,” Penney says.
“A week later Liz Smith wrote about a woman who was already doing a peach-colored ribbon for breast cancer.” The woman was 68-year-old Charlotte Haley, the granddaughter, sister, and mother of women who had battled breast cancer. Her peach-colored loops were handmade in her dining room. Each set of five came with a card saying: “The National Cancer Institute annual budget is $1.8 billion, only 5 percent goes for cancer prevention. Help us wake up our legislators and America by wearing this ribbon.”
Haley was strictly grassroots, handing the cards out at the local supermarket and writing prominent women, everyone from former First Ladies to Dear Abby. Her message spread by word of mouth. By the time Liz Smith printed her phone number, Haley had distributed thousands.
Then Self magazine called.
“We said, ‘We want to go in with you on this, we’ll give you national attention, there’s nothing in it for us,” Penney says. Even five years later, her voice still sounds startled by Haley’s answer. “She wanted nothing to do with us. Said we were too commercial.”
At the end of September 1992, Liz Smith printed a follow-up to Haley’s story. She reported that Estee Lauder had experienced “problems” trying to work with Haley, and quoted the activist claiming that Self had asked her to relinquish the concept of the ribbon. “We didn’t want to crowd her,” Penney says. “But we really wanted to do a ribbon. We asked our lawyers and they said, ‘ Come up with another color.”
They chose pink.
There are many choices to be made after you decide “pink ribbon.” According to C.M. Offray and Son, the largest ribbon-makers in the world (they supply the ribbon on which Olympic medals are hung), ribbons come in three basic styles: woven, grosgrain and craft, each with its own variations. Given the plethora of decisions that had to be made in designing October’s surprise, it’s startling that hue wasn’t one of them.
“There are so many different shades, but it would have been our ‘150 pink’—basic, standard pink,” says Ellie Schneider, vice president of publicity and public relations for Offray, when the ribbon is mentioned. “It’s pretty, a pastel pink without being too washed-out or powdery-looking. It’s one of our best-selling colors. It’s been in our line forever.”
Because Estée Lauder and its corporate philanthropy, the Breast Cancer Research Foundation, did not respond to repeated requests for interviews, we don’t know who exactly ordered the 150 pink in grosgrain. Penney recalls only that Estée Lauder made all the manufacturing choices, leaving her to publicize the promotion and edit the accompanying issue of her magazine.
What we do know is that because of Haley’s ribbon, Self and Estée Lauder had traded in a color that was merely peachy for one that was an icon, a semiotic superstar.

“Pink is the quintessential female color,” says Margaret Welch, director of the Color Association of the United States. “The profile on pink is playful, life-affirming. We have studies as to its calming effect, its quieting effect, its lessening of stress. [Pastel pink] is a shade known to be health-giving; that’s why we have expressions like ‘in the pink.’ You can’t say a bad thing about it.” Pink is, in other words, everything cancer notably is not.

NABCO’s executive director, Amy Langer, told The New York Times Magazine in 1996 that breast cancer, unlike other health threats to women, was “loaded”: “It’s about body image, it’s about nurturing—it’s certainly about femininity,” she was quoted as saying. For women who feel this way, who experience cancer as predominantly a loss of womanhood, what better color to pin on than pink—girlie, pretty, healthy pink?
In fall 1992, Estée Lauder makeup counters handed out 1.5 million ribbons, each accompanied by a laminated card describing a proper breast self-exam. They collected over 200,000 pink ribbon petitions urging the White House to push for increased funding for research.
Within a year, Charlotte Haley’s loop of peach ribbon was history.
At the same time that the pink ribbon was becoming a national symbol, a sea change was taking place in American boardrooms. Beginning in the mid-1980s, the corporate world was discovering cause-related marketing. Carol Cone, founder of Cone Communications, was a major force in this development. Research underwritten by her small Boston-based public relations firm proved that, given the same cost and quality, more than half of consumers would switch from a particular store or brand to one associated with a good cause. Armed with this data, Carol Cone set out to teach America how to do well by doing good. In the late ’80s, she engineered Reebok’s successful adoption of the human rights issue. And in 1993, she set about helping Avon cosmetics stake out a claim on breast cancer.
“The challenge for Avon at the time was creating a unique program,” Cone says. By her count, there were already 15 medium-to-large companies, including fellow cosmetics titan Estée Lauder, involved with this issue. Avon’s new campaign would have to push away from that pack but hold tight to the signifiers of breast cancer.
The fulcrum that made this maneuver possible was the pink ribbon. About two inches long, the original Avon pink ribbon is a weighty and formidable piece of jewelry, half pink enamel and half gold cast, winced in the middle by a flowering gold rose. It—and a smaller, more circumspect lapel pin, developed so men would feel comfortable wearing the symbol—retails for $2. The pink signaled breast cancer, but the addition of the color gold and the rose are distinctly Avon. In its first two years, the pin raised $10 million. Aprés pink pin, lé deluge.
In 1993, the October after Avon’s launch, Estée Lauder introduced a heart-shaped compact with an enameled pink ribbon design, profits to go to its Breast Cancer Research Fund. The Susan G. Komen Foundation began offering a pink rhinestone brooch. Carolee Jewelry designed another one—a female runner in midstride, flowing loop ribbon in hand. Nightshirts, angel statuettes, teddy bears, sports clothes, credit cards, Daytimers all hit the market and, with increasing speed, other companies joined in, each offering its own version of the traditional ribbon. December 1996 found the New York Times Magazine labeling breast cancer “this year’s hot charity.”
“Today there are 80 to 100 companies involved, and that’s only the ones big enough to get on your radar screen,” Cone says. Without pausing, she casually prognosticates about “the next 100 companies to get involved with breast cancer.”
She and the Times agree on the source of the disease’s peculiar popularity in corporate America. It is a quality that the breast cancer awareness ribbon both captures and enables. “Companies want to support breast cancer,” Cone says simply. “Breast cancer is safe.”
Unlike AIDS, breast cancer is free of what companies euphemistically call “lifestyle issues.” And, perhaps as importantly, breast cancer provides charitable credentials for what can be a very small investment. With the ribbon’s message of ”awareness” translating most often into a familiarity with early detection techniques, all a company has to do, to do good, is put a ribbon on its merchandise.
New Balance, for example, donates money from the sale of its Race for the Cure caps, socks and T-shirts to the Komen Foundation, but its pink ribbon sneakers, a Foundation spokesperson says, are ”just for awareness.” The sneakers have the tiny pale-pink outline of a ribbon sewn onto the corner of their tongues—difficult if not impossible for anyone except the owner to see. The possibility that those two wan loops might remind woman to get the mammogram that saves her life, however, provides the sneakers with their raison d’étre.
It is this dynamic that drives the pink ribbon’s detractors to distraction. “There is a value to awareness, but awareness of what, and to what end?” asks Barbara Brenner, activist and executive director of Breast Cancer Action (BCA) in San Francisco. “We need changes in the direction the research is going, we need access to care—beyond mammograms—we need to know what is causing the disease, and we need a cure. The pink ribbon is not indicative of any of that.”
Of course, not everyone in the breast cancer movement thinks that commercial benefit is bad. “Avon has used the symbol to touch people’s hearts and put money back into the cause,” says Beverly Baker, executive director of the Mautner Project for Lesbians with Cancer, which receives pink ribbon funding. “I certainly wouldn’t take issue with that.”
Between 1991 and 1996, federal funding for breast cancer research increased nearly fourfold to over $550 million. And according to the American Cancer Society, the percentage of women getting annual mammograms and clinical breast exams has more than doubled over the last decade. While the Komen Foundation lost out on patenting the ribbon, it has collected millions from companies that use it and donate the proceeds. Avon, which has raised $25 million purely from merchandise, is today the largest private funder of community-based nonprofit breast cancer programs.
But signs abound that the reign of today’s ribbon is waning. When the fashion industry took on breast cancer, they made their own symbol, a blue bull’s eye, which is now in six countries. Groups on the West Coast substitute the more “powerful” purple loop. In Canada, BCA Ottawa has turned the loop upside down, for the tears shed at diagnosis and lined it with black, to remember women who have died. San Francisco’s BCA has a white-on-black button that reads “Cancer Sucks.”
For those who, like Barbara Brenner, see the pink ribbon as a red herring—and the 44,000 women dying of breast cancer each year can ill afford the distraction—the decline of the pink ribbon comes none too soon. “We have to question our willingness as cancer organizations to get into bed with people whose ultimate goal is profit, not health,” Brenner says. And her point—that corporate benevolence is linked with the appearance of care rather than active solutions—is supported by history. After all, homelessness was the darling corporate cause once, in the years before welfare reform.
Reprinted from MAMM, June/July 1998

Re: A Place to Vent about "Awareness"

Thanks 'lizbeth.
Very interesting.

Re: A Place to Vent about "Awareness"

Thanks for posting that 'lizbeth
And thanks for the thin remark. But my profile picture doesn't extend to hips! Remember , I eat dessert daily. How thin can I be?
Keep the faith

Re: A Place to Vent about "Awareness"

i don't think it is a funny picture. It is disgusting to me but I might be sensitive about not having any breasts. I never know how to react to boob jokes now that mine are history. I guess a person could incorporate boobs into anything ~ a house with boob windows, a tree with boob leaves, a street with a boob sidewalk, a car with boob wheels ..... I don't find the boob cookies amusing. Pardon the pun but I think they are in poor taste 😉

Re: A Place to Vent about "Awareness"

During my initial chemo treatment, I went crazy in October's pink prevention month and ranted like crazy. this was back in 2011. The one whose opinion i cared most about ended up dying way way way too soon. She and I both had Stage 3b her2 breast cancer.

She didn't seem to like how crazy I got {against pinktober}. She ended up dying within two yrs of diagnosis.

I am burnt and traumatized from her scolding of me. I am devastated by her death. I can't think or breathe on this topic.

Re: A Place to Vent about "Awareness"

I too have been scolded, and it made me feel bad for awhile. This is an important issue. People give out of the kindness of their hearts. But the money is not used productively in many cases for the research needed or cancer patient support.

I am staring at these Relay for Life trinkets that the American Cancer Society wasted money on. Buttons, pins, keychains, etc. It hurts me to throw these things away. I don't need them or want them. But I need the money to go to research, or it could have paid for the gas for me to get to appointments. I spent about $1000 month on gas and they helped me with a one time $300. I am still paying financially for cancer, and others are much worse off too.

We don't need trinkets or pink ribbons. We need a cure for everyone.

Re: A Place to Vent about "Awareness"

I hope everyone made it through Pinktober OK. My objective was to create a safe space for all viewpoints, and, as always, the wonderful members of this board delivered on that. I love the openness and kindness of almost all interactions here. Also, yes, thanks for the reminder that this board depends on donations.

We can keep talking about this if you want. But here's my "goodbye and good riddance" contribution for now:

http://www.zazzle.com.au/i_survived_...08241114647194

In case that image doesn't actually show up, here's the URL: http://www.zazzle.com.au/i_survived_...08241114647194

Re: A Place to Vent about "Awareness"

I was just thinking this as I checked in. We survived another onslaught of people trying to capitalize on breast cancer
Let's have some apple pie and cider to celebrate the Fall!
Keep the faith

Re: A Place to Vent about "Awareness"

'Lizbeth, you reminded me. In my first year or so, I participated in the local Cancer society Relay for Life. The next year I did not. But they mailed me " a sorry you couldn't attend" package that included an elaborate rally medal on a ribbon. How did they know I wasn't dead??? And what a waste of resources
Keep the faith

Re: A Place to Vent about "Awareness"

amy, mountaingirl, my sister of three years...i shared your blog on my facebook page. with a preface stating how proud i am of you.
Beautifully written, beautifully researched. Truth.
Keep speaking the truth.
And thank you from the bottom of my heart.

Re: A Place to Vent about "Awareness"

This is a link to an article that my son sent me,
that pretty much sums up the problem with pinktober and Susan G Komen foundation
For $100,000, Susan G. Komen does its bit

Re: A Place to Vent about "Awareness"

Nora,

I love you too.

Amy