my new Unicorn
 

Dear Ladies,

The biopsy an blood results are back and this coming Monday(17th) Iwill receive my first dose of the shinogi and if I react well to this Japonese drug on phase 1b then this is to become my new Unicorn. I say unicorn as oppose to Trojan horse because it carries a lot of my dreams..

The results are good I think for a phase 1a. A small half of patients are showing some sort of responses (at escalating dose) with one complete response from a Her2 BC patient (out of 19 patients trialled) with 2pts on it over> 12 months. I am now on the phase 1b (i.e we know the dose)

http://www.asco.org/ASCOv2/Meetings/...stractID=93825

I am always so tired now and in turn I find it quite isolating, lucky I have the sweetest and funniest dog in the world with me. So I pray that this give me a break, a long break, a long long break... Please send me good words and wishes and healing thoughts that this will work for me because sometimes it's hard to keep my hopes up and I always used to have limited faith in inhibitors.. I want to be proven so very wrong.

Re: my new Unicorn
 

Prayers and good wishes coming from across the pond! Hoping this is your magic bullet!

Re: my new Unicorn
 

Fingers and toes crossed for you! Hope your energy levels improve - that dog looks like it needs a bit of walking....
Best wishes from Australia..... Pam

Re: my new Unicorn
 

Beans,

I am wishing you the best results. I hope this is a miracle for you! NED is what we would love to happen.

Re: my new Unicorn
 

Fob - may your unicorn carry you and your dreams to fulfillment!

Re: my new Unicorn
 

I see for you now a pink unicorn with purple sparkles crushing your cancer with its tiny, sharp hooves, then galloping around doing a unicorn happy dance that makes you laugh.

Re: my new Unicorn
 

Sending you huge positive wishes FOB for this drug trial. It's great that you are able to participate in the trial - I certainly know nothing about this drug, so I'll be interested in reading of your experience.

I think having a dog in your life is one of the most wonderful things and your little munchkin looks adorable. When I'm feeling a bit low, I try and find some good comedy on TV, and you Poms have the best comedians and comedies. My favourites are Rob Bryden and David Mitchell at the moment I think, but there are so many......

Best wishes, Marie

Re: my new Unicorn
 

Prayers coming your way. I've heard unicorns are magical creatures, and Im sure this one is going to work its magic for you. Big hugs...

Re: my new Unicorn
 

Dear Fob
As always your Brit sister is hoping for the best for you.please let us know how the trial goes. I am praying for NED!
Ellie

Re: my new Unicorn
 

Praying your unicorn will indeed come through for you and wishing you NED status!!

hugs,
shobha

Re: my new Unicorn
 

I am on the Unicorn right now attached to various monitors and getting blood test every hour for 12 h (a long day). I took the first dose today.

Thank you for all your kind words, prayers and wishes

Re: my new Unicorn
 

Hey, Full of Beans!!! I have a vision of you riding that Unicorn of Hope, and "your little dog too" (from the Wizard of Oz)!!! You GO GIRL!!!!!!! XOX

Re: my new Unicorn
 

Hey, Beans, how are you feeling post your first "unicorn" infusion? Is it tolerable? Hoping you are feeling well.

Re: my new Unicorn
 

Beautiful furry friend that will help you through this, sending all the Irish luck and healing thoughts I can muster and will be keeping you in my prayers! xx

Re: my new Unicorn
 

Dear K -
You are another leader on this board with your throrough research and "listening to the Dalai Lama" attitude.

I, too, am hoping you do well on this - in every way!

Re: my new Unicorn
 

Full of Bean,

Love your Unicorn analogy. I'm lifting you up in my prayers while visualizing the Unicorn...

Re: my new Unicorn
 

Hoping and praying you are doing well.

Re: my new Unicorn
 

FOB

Good luck with this new treatment! I am hoping your Unicorn will ride you into the sunset with NED!

all the best
caya

Re: my new Unicorn
 

thank you all for the support. it really helps.

It's tablets treatment. last week they monitored only how I was dealing with a single dose but now since yesterday I have to take it daily, so far so good no side effects to report..

Re: my new Unicorn
 

I am hoping too for a great response.
All best wishes,
karen z

Re: my new Unicorn
 

Sending prayers your way that this drug will do amazing things for you and that they can have at least one more complete response to add to their results!!!
Tammy

Re: my new Unicorn
 

Hold onto that unicorn, Beans, and ride him to the land of NED!

Re: my new Unicorn
 

Dear Beans,
I love that your Unicorn fills you with HOPE. I love hope - it carries and soothes and gives us promise and a sense of destiny. And there you are; filled with hope. When your faith in hope starts to wane, remember your Her2 sisters here; from all around the world just holding you up. You can rest because we have your back. Blessings and more hope to you dear FOB.
Love Kim from CT

Re: my new Unicorn
 

Hey Beans,

How is that unicorn ride going? You hanging tough?

Re: my new Unicorn
 

Thinking of you and hoping that you are feeling well and also sending thanks for being on a clinical trial. I hope you will soon meet NED!

Re: my new Unicorn
 

Thank you all so much for your words of encouragement.

So far so good the side effects to dates are mild and in fact I am now feeling less tired than I was for most of December. Could be a vast combination of things such as the removal of my tumours blocking airways, the chemicals from the general anest. leaving my body.. or my unicorn! or maybe all of them

Best wishes for the new year 2013 to everyone

Re: my new Unicorn
 

Glad to hear "feeling better." Being able to breathe is always helpful! I vote for All of the Above.