pain in shoulder blade when I breath deep
 

Is it a common lung mets symptoms..it started today

I am waiting to see if they can get tumours zap them still I am praying that it has not reached the lining..so it can still be done. appointment 5 oct

Can't access tdm1 since already had xeloda

waiting about vinorelbine to see what laser says first so we holding on (did not see my usual onco..not sure it is the right decision). the doc I saw is such a negative idiot he told me that I had many different chemo and that any new chemo (like vino) is unlikely to help..

I just want to keep things stable until they laser ( I hope and pray they can)

thinking of taking tykerb high dose until then, I remember reading about this has anyone had any success with it?

I have registered for the vaccine trial but do not think that without the laser I will be alive when it will be available.

Until then, I have been living and I am looking at the dog puppy I want to buy at the moment and the camper van tour I am planning after this I see my friends and even go dating. Because I decided to either live or die, but none of that middle shit (excuse my French) where you so afraid to die that you are not living..

I am not religious but still I would like you to pray for me please

Re: pain in shoulder blade when I breath deep
 

FOB
Prayers coming your way!
Don't listen to idiot Drs. You still have lots of options to go and lots of new stuff coming online soon.
The vaccine trial sounds exciting as well. I am still looking at that option.
Hang on in there. This is a blip but one you will get over.
Ellie

Re: pain in shoulder blade when I breath deep
 

I'm not religious either, FOB, but I have been praying for you (and others) since I first signed on here.

I've actually done some reading on the subject of prayer, and several studies have demonstrated that human thought sent in an outward direction (whatever your spiritual beliefs or how you choose to characterize it) can have a powerful positive effect on outcomes.

I've read a lot of your posts, both old and new. You are a strong woman, and you will endure.

Re: pain in shoulder blade when I breath deep
 

FOB,

You can count on my prayers from Texas...

Re: pain in shoulder blade when I breath deep
 

I deeply believe in the power of prayers - they give me peace and strength. I am praying with all my heart for you to stable and have a successful laser treatment.

hugs,
shobha

Re: pain in shoulder blade when I breath deep
 

Thank you so much for your encouragement and prayers it warms my heart. Yes I believe in the power of prayers and I believe in having something to look forwards.

I have kind of settled for a spugs. It is a cross pug and japonese spits dog. I will go and see the pup this week and will report. They will be ready end of Oct which hopefully will be after I have done laser treatment and will be recovering, my birthday is 17th of oct. It is a small dog and I have a garden so it should be fine and will be encouraged to use my lungs on small walks.

Re: pain in shoulder blade when I breath deep
 

That is what a spugs looks like:

http://www.google.co.uk/imgres?q=pug...1t:429,r:6,s:0

Re: pain in shoulder blade when I breath deep
 

Sorry to start off with a negative thing, but I don't agree with the new oncologist you saw. I think we all have alot of possibilities now and will have even more in the future. We just have to talk to knowledgeable oncologists and do a little research on our own, so we can suggest things to the oncologists ourselves.
In any case count me in for prayers and keeping my fingers crossed for you.
Enjoy the new puppy !!

Re: pain in shoulder blade when I breath deep
 

I agree with you Elaine. The prob is that now if I asked to see my onco then it would be difficult for him to disagree with the other onco verdict..

All I can do is to never asked to be seen by him again. I saw him once before and also heard from other woman he is sooooo negative. He told me three times when I gave hiom the trial I wanted them to send my info to.. "you know you will not be cured.." three times! He knows I am knowledgeable.. I cannot explain but he gives me the creeps..

Maybe I should ask to be seen again, i know from this board some ladies responded to vino despite being heavily pre treated no??

Re: pain in shoulder blade when I breath deep
 

Puppies and prayer! What could be more therapeutic? Got your back, Beans, prayers forthcoming.

Re: pain in shoulder blade when I breath deep
 

Fullofbeans,

You can count on me to be praying for you!

That is one cute Pup!

Re: pain in shoulder blade when I breath deep
 

Get that puppy and take him camping! Good medicine! What will his name be?
keep the faith.

Re: pain in shoulder blade when I breath deep
 

Hi FOB
Tried the link to the puppy but no picture! Will try to google it.

It's very hard when you get a negative onc. I know that from personal experience. My first onc stopped herceptin when I recurred and told me it was a waste of money!! Fortunately my sisters here on the board were outraged and pushed me to get another opinion. I was very new and naive at that stage I know.My second op onc restarted herceptin with taxotere and then referred me to a similar minded colleague at a centre nearer home. They have all been clear that they can't cure my bc but are more positive about controlling it and giving me a quality of life.
Who knows whats round the next corner? Who knows what plan God has for any of us and who knows whether tomorrow may be the day some gifted scientist stumbles on the cure!
If you still feel unhappy get your GP to refer you to another centre for a second opinion. Sometimes fresh eyes are good.
Ellie

Re: pain in shoulder blade when I breath deep
 

I hope this works, because otherwise, all anyone will see is a post that says "I hope this works."

Anyway, what's below this should be a picture of the puppy in the above link:


http://images01.olx.com.ph/ui/1/84/72/15668272_6.jpg

Re: pain in shoulder blade when I breath deep
 

It's worked and is sooooooooooooo cute! Just want to give it a cuddle.
Thanks
Ellie

Re: pain in shoulder blade when I breath deep
 

FOB
Hope you get your answers soon...I had great results with Navelbine (Vinorelbine) for a while, and I was heavily pretreated....it is worth a try. It seems to be especially good for liver and lung.

A new puppy, how exciting....faithful, rambunctious, mischievious....a ball of energy...that sounds to be just waht you need.....

Re: pain in shoulder blade when I breath deep
 

pain in shoulder: is it the back shoulder blade? gall bladder?

Re: pain in shoulder blade when I breath deep
 

FOB - one more thing to consider. I had horrible pain in my shoulder last year when I was doing chemo. Turned out to be blood clots in my lungs (3 total). Don't wait too long to get this checked - there are lots of possible causes. I think we've all found that there are drs. out there whose arrogance won't allow them to be challenged. Those are the docs we should avoid because there are many more who are compassionate and appreciate well-informed patients. Will keep you in prayers daily as I pray for all the women on this forum.

Re: pain in shoulder blade when I breath deep
 

If cute could cure....it'd be a done deal.
But, I'll add my prayers and encourage your determination to overcome and outdo that neg. guy! ma

Re: pain in shoulder blade when I breath deep
 

FOB,
Yes, don't listen to the idiot doc. We all know that it is not curable (yet) but that does not mean it can't be managed. Some of these doctors just don't get how much words matter, and so we have to remind each other.

Each chemo drug work differently, and unfortunately you just don't know until you try. Chemosensitivity assays might be helpful but are not "approved" and thus a hard sell to get - and you have to have a lot of "tissue" that can be biopsied.

But I reject the "nothing will work" theory. And so should you.

Prayers for sure, mixed with a little envy at your cute new little therapist!

Hang in there!

Re: pain in shoulder blade when I breath deep
 

You're in my prayers. Are you going back to the University of Washington for the vaccine?

Amelia

Re: pain in shoulder blade when I breath deep
 

Thanks for the prayers and for the good words.

Today I went to ikea to get the bedding and the pup's blanket. No name yet not have a pup home yet but sure will keep you updated. Even before it has come home I am truly excited by this, I think it will give more a lot of strengh and love.

Yes Ellie that is how I felt that I was a waste of time and efforts.. I wrote (unfortunately on the spur of the moment) to my breast nurse specialist to make a note that under no circumstances I was to be seen by him ever again and I even said that at the end he may as well have said why don't you throw yourself in front of a bus and save us all some time and efforts.. because this is how he made me feel..

Re: pain in shoulder blade when I breath deep
 

Way to go Chrisy. I totally agree. We have to keep after those "medical professionals" and let them know we are not giving up without a tremendous battle and not without trying every possibility on earth !! Unfortunately some "medical professionals" let their own fears, personal problems and prejudices get in the way. They are human after all, but they need to learn to control those things when helping patients.
The pup is sooooooooooooo cute. I would love to give him a hug !!

Re: pain in shoulder blade when I breath deep
 

Hey FOB, I do believe in the power of prayer/positive vibes/whatever. Sending you lots. And puppy power is highly recommended!!! 3 years ago we got our 15 year old dog a puppy to give her a reason to get up in the morning...well that puppy is now 3 and our almost 18 year old dog still gets up with tail wagging!!XO

Re: pain in shoulder blade when I breath deep
 

Hi FOB
Glad to hear you wrote to your bc nurse.I agree Drs are human but COMPASSION costs nothing! It is impossible for anyone who has not been affected by this disease to truly understand how important HOPE is. Onc's are often afraid of giving false hope but patients fighting for their life should NEVER be made to feel that it's a waste of time! It makes me so mad that you were upset in this way.Today I hear that the bean counters are at it again rationing cancer drugs!!

Ellie

Re: pain in shoulder blade when I breath deep
 

Puppy therapy will work for sure. Vinoralbine might help as well. Hope you find a sensible onc to prescribe it for you. Some doctors like to be know -all sensationalisers I have found-so don't let him get you down.
Sending prayers.......
Trish

Re: pain in shoulder blade when I breath deep
 

Thank you all for the prayer..one week to go until my 5th October appointment..

Indeed as many of you have have suggested words can hurt. Truth is that anyone seeing someone fighting like I have to get treatments (many here will relate) is not a kind man to try to break that spirit.. especially when I am still around 5 years later after 6 tumours in the liver in 2006.. And it was about applying for a proper trial not some dubious treatment by a quack.. why the need to repeat 3 times that I will not be cured.. not need, I know what I am facing thank you very much.

He should only be restricted to the lab or early cancer patients. I do not believe that all is well with him.

On a nicer note the weather is very pleasant here and we are having a bit of an indian summer.

Ellie: yes bean counter.. the system needs to change, if it did not cost 1 billion to get drug to market it would not cost so much.. something needs to change or we will never get anywhere. Truth is I think that the American people should ask for a reform of the FDA which has more power than their elected president.