Devastated - told weeks!!!
 

To finally determine why Caryn was continuing to have digestive problems they did an ERCP, which is a catheder scope down through the ducts. Unfortunately, the dr found tons of microscopic cells clogging the ducts inside the liver. This is driving her liver toward failure. If we do anything there's a risk of accelerating damage to the liver and shortening the little time that she has. We told our 16 year old daughter and 13 year old son -what a HORRIBLE thing to have to do. We're not quite ready to stop fighting yet so we've asked her primary Onc to speak to her Sloan Onc to discuss last shot treatment or a surgery. We're hoping that they can come up with something her2 related that won't compromise her liver even further. I'm devastated as it appears that my kids have less than 2 weeks to be with their mom and I have less than 2 weeks to be with the best thing that's ever happened to me outside of my kids.
I'm sorry if this post makes things harded for anyone else.

Eric -

I am so saddened by this news. I pray that the Sloan onc. can think of something so that Caryn can keep up the fight.

I am praying that you all find comfort - HORRIBLE....

wishing you all the best
caya (Caryn is my real name, I really feel this)

Eric,

Please know that I am keeping your entire family in my thoughts and prayers. I am praying that the Sloan onc can help.

Oh Eric, I am so heartbroken and in tears because of this news. I am on my knees, praying to God to please heal Caryn and to grant you the peace and ability to face the paths ahead. Please, please know you and your family are in my heart tonight. I am 60 years old and would switch places with caryn if I could, I truly mean that. Hold your beautiful wife and children close and tell them that thousands of us out here are praying fervently for a miracle.

Love, Vickie

the most remarkable lecture I have heard in the last 5 years
 

was the following

Adoptive T-Cell Transfer for Metastatic Melanoma
James Yang, MD
National Institutes of Health

at a conference in October hosted by Dr. Slamon

He was, I believe, starting to try to do something simiilar with other cancers...or at least thinking of starting to as he stated he believed his method would be applicable to many other sorts of cancer.

He only treats patients at the NIH and the patient's whose scans he showed and whose stories he told were widely metastatic.

Perhaps trying to contact his office at the NIH???

Oh Eric, I have no words, only prayers.

Wrapping you and Caryn and your family in loving prayers.

Much much love
Chris

Eric, my prayers are with you and Caryn, and your family. I hope and pray that something can be done.

Devasted - told weeks !!
 

I am so sorry. There must be something that can be done. Keep asking the docs. Meanwhile, I have my fingers crossed and will say a prayer for you and your family. Take care.

Yes! Keep fighting. We're fighting with you. Keep asking questions. Get face to face with those doctors and try everything. I believe in miracles. We're with you no matter what happens.

of course devastated
 

Oh my god Eric I am reading through tears. I echo the words of the others...sending love and prayers.

Try to stay in the present moment. As a mom (with kids just a few years older) I decided that my PROCESS was what held value for my kids, my friends, and my family - that was the only way for me to cope with the times that my treatment wasn't working and I, too was needing a miracle.

Hoping a miracle is on the way to you and your family.

Flori

I am so sorry Eric and I will be thinking of you and your family

Eric,
I am so sorry to hear Caryn's news. I'm praying for the doctors to find a way to help her, and I am also praying for you and for your family.
Keep fighting for her.
Hugs,
KarlaV.

Eric,

I am so very sorry to hear of Caryn's news. I am going to try to continue to think positive though because within the last 20 years I've had two acquaintances and for one they found a trial and she lived longer and a good life.

I am hoping and praying that a call to the NIH can save Caryn as it did save this acquaintance and I believe it may be possible and could happen.

Whatever the outcome is I am part of the group praying for you and your family. Even though I don't know you, my heart is hurting for you and the children and hoping for the best.



I am hoping the same type of "miracle" is there for all of you.

Eric...
 

prayers were just said for Caryn and your family...I hope something can be done and will continue to pray. Take care and God bless.

Rhonda

sad sad sad...sending peaceful thoughts your way.

Eric, that's such devastating news. I am so sorry. And I'm crossing all my fingers and toes, hoping that some kind of therapy can be found that will by her more time.

I do think Debbie L. has a point, though. These weeks are so precious. When my Mom was dying of cancer of the esophagus, almost 10 years ago, I got to spend the last week with her. She told me she felt very lonely, because my father couldn't accept that she was dying. She told me she needed for us to let her go. She felt it was her time.

So even if you do everything you can to find another treatment, please don't forget to ask her what she needs from you. Don't forget to let the children spend time with her, giving them and her a chance to accept what's going on. And give each of your children enough space to deal with this in their own way.

I am so grateful to you for finding the time to let us know. We want to be there for all of you.

Sending hugs & healing energy all the way from the Netherlands, Europe.

Jacqueline

I can't tell you how much ALL of your words mean to me.
Lani - I've emailed Dr. Yang and will call as well. I also cc'd Caryn's Onc in the hopes that he will reach out as well.
Our family realizes the reality and will make decisions based on real information but we're not ready to just give up. We will weigh any positives and negatives but am thankful to have possible options to look into.
If there's a God - God Bless You ALL!
Love to all,
Eric

Oh dear God Eric.......your post has made me so sad and I am so so sorry for you, Caryn and your children. So so hard it must be.

I ask God to comfort you all - to hold you close - to surround you with peace.

I wish there was more I could say but there isn't....only that I know you are loved - incredibly!!!

Gentle hugs,

Mary Jo

Eric, my heart is heavy for your circumstances, but my spirit is high with possibilities for your family. I send love and prayers to you all. May God's angels stay near to help. ma

Eric many, many prayers out to Caryn, you and your family. I'm at loss for words to say. Just know that I am praying for her.

Eric
My heart is heavy as I read this news, as I have followed Caryn's fight and your unending support for a long time. Prayers are everywhere for Caryn, You and your children...may she get that miracle that you all so deserve...you are in my thoughts

Eric,

I'm very upset about Caryn. Please let her know she is in my prayers that the oncs come up with another treatment. It's been a long haul, but best to keep fighting this if there's another treatment option. I'm sorry for all that you've been through, your children too.

Joan

Eric,
This is devastating news. Sloan Kettering is a great hospital and I hope they come up with a good treatment for Caryn.
I wonder if a website such as www.bcmets.org would have anything helpful to suggest.
Prayers and postive thoughts go out to all of you
big hug and love
sarah

Go everywhere you can. Sometimes the big cancer centers only go by the books and smaller places try new or even outdated treatments that haven't been tried.

I am thinking about Caryn, you and your children.

Dear Eric and Caryn, I have just seen your post, and my heart is aching for you and your family. I am praying fervently that you will feel God's arms around you. We will pray for a miracle for you, and we are all sending love and prayers. Tricia

Eric,
We are profoundly sorry to hear about Caryn. Please let me know if there is anything that we can do.

Warmest Regards
Joe

Eric, I am so terribly sorry to hear your news. You and your family are in my thoughts.

Hopeful

Eric,

My prayers are with Caryn, you and your children. Hold on to hope and God.

Paty

Thinking of you!!!
 

Hi Eric,
This is certainly very sad news. I have followed all your posts and have been so impressed how you have tenaciously fought to find the best treatments for Caryn. As a teacher I have had children in my classroom who have lost their parents to cancer and to other illnesses. They remember their parents and speak of their memories. They remain an important part of their lives. One parent compiled a book of her favorite recipes for her daughter. Please assure Caryn that if nothing more medically can be done at this time, that her children will survive and will be OK. Caryn will continue to be a part of them for the rest of their lives. My grandmother died of cancer when I was three. She crochet a booty for my doll the day that she died. My mother recently just sent it to me. I have memories of my grandmother and will never forget her.

That being said, I my thoughts remain with you and your family, and I sincerely hope that a treatment will be found to give her more time.

I wish the best for you and your family and thank you for keeping us informed. Of course we all care for you and do not like to hear this news. However, we want to be here to support you.

Best regards,
Barbara

Eric:

I am so sorry to hear about Caryn and the devastating effects cancer will have on her life and the lives of everyone in your family.

Eric, please know that you and your family are not alone. We will pray for you and your entire family.

Lee

I am so sorry. It is bad enough when you are older, as I am. You and your family will be in my thoughts. I hope so much that you can find another treatment for Caryn. While you are looking, please take the time to find your way through this. There are several suggestions in the following site that might help if you do need them.

http://www.cancersupportivecare.com/terminal.html

Everyone has been so eloquent in their feelings. My heart feels heavy right now and I will pray for your entire family. I hope a miracle awaits for you and yours. Ceesun

I am so very sorry to read this news, Eric. This is heartbreaking. My heart goes out to you and your family.

-Gabrielle

I am praying for that miracle for your family. I do believe in them. Lifting all of you up in prayer and asking God to bless your days and navigate your interactions with the doctors.

Tonya

Eric,

I am so mad and sad at the news. I have known you and Caryn since I joined the board. Please don't give up and try Navlbine or Gemgar with proven result for Her2 disease.
Please know that miracles are possible. I have heard many people who were given two weeks to live for a long time once they start a targeted treatment. Please don't loose hope and fight.
Thinking of you and Caryn and sending all the positive thoughts and prayers you need.
Please keep us posted.

Julie

Many prayers are coming your families way. Please note that all these posts are from people who support you and your family. We are all in this special club and we fight together; as well as with our family and friends too.

So very sorry to hear this news. I am praying hard that God will find a way and save caryn. Please God....

I am adding my prayers to those of my sisters. Every moment is precious. I hope you find a new treatment or drug combo that works for Caryn.

Dear Eric,

I wanted to let you know how much I respect you for the ongoing involvement and support you've provided Caryn and all of us on this site. I know that you are a fantastic dad and with your support, your children will be fine. You will have an opportunity to witness what a fantastic job you and Caryn have done.

BUT......to the extent Caryn is up for it...keep on swinging. What about some of the recent vaccine trials. Would one of this be an option to boost Caryn's immune system? Was a surgical procedure ruled out? Chemo embolization directly to the liver?

Warmest wishes of peace and gratitude to you and your family.

Love...Lori