Cancelled reconstruction
 

I had planned on DIEP reconstruction with a surgeon in Memphis. I had arranged my fall schedule so that I would have a lighter teaching load than I usually do. I told them that I had to schedule the surgery so that I would be recovered before school started. Everything was set up but the date. When we scheduled it the earliest they could do it was going to put me late getting back to school. Seems he only did DIEP one day a week on Fridays. So I asked the nurse if we could schedule it in June instead of July and I would see if my academic dean could find someone else to teach my summer courses (would lose quite a bit of income but I would have tried.) At that point the nurse told me that they could schedule it in June but it would not be set in stone.

What did she mean, I asked. Well the doctor did facial reconstruction on one day, and something else on another day and if another surgeon needed him for immediate reconstruction I would get bumped. This was after months of talking with them First I had heard that. Couldn't I take some other time of the year. I am an instructor at a community college. No I couldn't. What an I supposed to do, tell my academic dean that sometime during the year when it is convenient for my surgeon, I will be out for at least six weeks. I can't do that to my students.

I cancelled the surgery and am not sure that I can get geared up for it again. On top of that he is the only surgeon near me that does the DIEP. He may be a great surgeon but I cried myself to sllep that night. I don't know if this is standard prorcedure but I cannot plan a surgery that has a five day hospital stay and six weeks recovery without being sure of the date.

Re: Cancelled reconstruction
 

Unbelievable.

Re: Cancelled reconstruction
 

I am so sorry this has happened to you. DIEP is a big decision and a roller coaster ride similar to breast cancer treatment. The first two plastic surgeons I met with had egos so big there wasn't enough room for me in the exam room. The third didn't seem to have enough confidence or experience with DIEP. I think I hit the jackpot with the fourth surgeon...although I haven't had the actual surgery yet. It's scheduled for 7/26. Don't give up. This is just a bump in the road.

Re: Cancelled reconstruction
 

I told the nurse that he had no respect for women's lives. He is trying to do too much. She tried to make me feel guilty because if I got bumped it would be due to surgery on childhood cancer patients. Even that surgery is scheduled.
I told her he needed to specialize. If they had told me all of this at the beginning it would have been different.

Re: Cancelled reconstruction
 

I can totally understand. I, too, struggled with the DIEP decision. I ALMOST cancelled on at least 5 occasions. My reasons though were mostly fear based however I remember one specific occasion though, where the office staff really was messing things up with scheduling and a few other things and I thought..........I AM PUTTING MY LIFE IN THESE PEOPLE'S HANDS??......NO WAY! I called and spoke to the PA first and let my concerns be known. She listened and sympathized but it did nothing to calm my fears and uncertainties. So, my husband and I made an appointment to go in and speak directly to my surgeon. I told him exactly how I felt. I tried to relay to him what a big deal this surgery was for me and that although this was "common place" for him and his staff, it surely wasn't for me and my husband.

Long story short.....I did go ahead with the surgery and have never regretted a day. However, if I were you and could get no where with the doctor and his staff, I, too, would have cancelled. You need someone who is compassionate and kind. Someone who makes you feel as if you are his only patient.

Gentle hugs and much understanding.......

Mary Jo

Re: Cancelled reconstruction
 

Sorry you are enduring this delay and indecision. When investigating DIEP, which I do believe in, I felt the same way. The surgeons office is very laid back and uncertain as to when they will ever schedule. All depends......well I teach and want it done and recovered in the summer. I chose not to have it done this summer for that very reason too. No gaurantees. After dealing with appt, treatment for 15 months, I didn't feel like I could be out anymore during the school year. I empathize with you and hope time will give you peace and help you figure out where to go from here!

Re: Cancelled reconstruction
 

I tend to believe in "signs." And this may be a sign that this surgeon is not the right match for you. As the others have said, you need to feel comfortable and have confidence.
My husband has a saying "sometimes the situation is smarter than we are". Maybe there is a message in this situation. Keep the faith.

Re: Cancelled reconstruction
 

"She tried to make me feel guilty because if I got bumped it would be due to surgery on childhood cancer patients."

Ah.. i.e. suck it up, others have it worse. Of course, the reschedule could just be due to a nip and tuck with a nice payout. Sorry..not into pitting illness against illness.

But it does make me wonder about the trend toward fewer providers and what that means in terms of timely access.

Re: Cancelled reconstruction
 

I agree w Bonnie, this may be a sign that this is not the right PS for you. I too teach at a community college and am trying to sched my surgery when we have a break. I will be doing the latissimus flap. I don't have enough fat on my tummy (yeah right). My PS wants to wait a year after my radiation before surgery. Hoping he might agree to Christmas time since I have 2 wks off, otherwise I give up my spring break and get coverage for an additional week and hope I'm ready to come back.

Re: Cancelled reconstruction
 

Dump him. There are alot of good plastic surgeons, he is not the right fit for you. Can you get other PC referrals from your Oncologist or Surgeon? Or other survivors?

Re: Cancelled reconstruction
 

Totally agree. Feels like he's not the right man for you. I suspect there are lots of surgeons in the States that really specialise in DIEP reconstruction and maybe this is a sign to find one.
I have recently been told that the waiting list here in England is 15 months for the op with a good surgeon!! No wonder ppl pay privately.

Good luck
Ellie

Re: Cancelled reconstruction
 

I agree with the others about him not being the right PS for you. Your signature says you're in Mississippi. How close are you to NOLA? I've heard wonderful things about them and they were next on my list to contact had UCLA not worked out. So far everyone at UCLA has been wonderful. They have understood I have a life, a job, a preteen, etc. and we have worked our schedules together to come up with a date of the 26th. My PS also has a life, kids, vacation, etc. I was delighted to find out he's human.

Re: Cancelled reconstruction
 

I have been reading about the surgeons in NOLA. I am considering lining it up for next summer. It is not the wait that bothered me but the uncertainty. I had to go in an teach for someone last summer that had to have an emergency gallbladder surgery. It is really upsetting to the students to have to change instructors midsemester. If they don't do well in their classes it can affect their lives drastically. Many of them hope to go into nursing and I teach pre-nursing classes, Anatomy and Physiology I and II and Nutrition. It wouldn't just affect my life, it would impact theirs. Thank you for all of your comments. As for the guilt they tried to lay on me. I have "sucked it up" quite a bit ; ). Still don't know if I was stage four or not so every day is a blessing.

Re: Cancelled reconstruction
 

I'm sorry and I too would want to know a definate date if I was facing this, is there another surgon you can see?? This one sounds like he does'nt really have his patients best interests at heart!!!

Re: Cancelled reconstruction
 

Sometimes these specialty surgeons who don't have much competition think that everyone ELSE has to fit into their schedules and whims. You are not the first one here to make such complaints. Though this seems to be a VERY bad case of stringing you along with partial information.

Hope you will have better luck where there is a bigger pond with more fish.

Re: Cancelled reconstruction
 

When I told the nurse that I would get some one else she told me that he was the only in Memphis that does it. I told her there were surgeons elsewhere. Why doesn't he specialize? You can't be all things to all people. I don't want a surgeon who is that spread out. I would have preferred to find it out earlier.

Re: Cancelled reconstruction
 

I went to NOLA (from Minnesota) to have my DIEP in 2006. I was very happy with the drs and with the procedure.

They only do breast reconstruction. I had a plastic surgeon in MN who does breast reconstruction (but not diep) who saw my reconstruction and was amazed at how good it was. She was so impressed with it that she told me that she was going to start referring her patients who wanted a DIEP to them.

Laurie

Re: Cancelled reconstruction
 

Laurie,
What is the name of the clinic? I have been wondering how that works. How long did you have to stay in New Orleans? How many times did you have to go back for check ups? That sort of thing. I was also wondering about the recovery. I have been told six weeks but how debilitating is it?

leslie

Re: Cancelled reconstruction
 

hi Leslie, It is the center for breast reconstruction, with dr. Dellacroix and Dr. Sullivan.

I have only been there once. I met with dr D, had pre op work done, then had surgery the next morning. I was in the hospital for a few days, then returned to a hotel, with my husband.

After a few days, I went in for a post op visit, had one drain removed (had to keep one drain in for several weeks) and flew home the next day. I think I was there a total of 9 or 10 days. Sorry, it was 5 years ago, and the details are becoming fuzzy.

It is a long recovery. I was 38, in excellent health, and had no complications, and it took at least 6 weeks. The pain wasn't bad. I had 3 c-sections, and the pain from those was worse than this. The worst thing I remember was that I had to sleep on my back, propped up. Looking back, I think if I would have had a recliner, that would have helped.

There is also a stage 2, where they will add nipples and do lipo, if needed. I never felt the need to go back. My 3 kids were 3, 7 and 8 when I had the surgery, and I just didn't want to leave them again.

I am very happy with the results, and would do it again, in a second. I just couldn't imagine wearing a prosthesis for the rest of my life.

On breastcancer.org there is a forum for reconstruction, and you will find tons of info on NOLA (that is where I first heard about them)

Laurie

Re: Cancelled reconstruction
 

Leslie,
I had delayed (3years)stacked DIEP reconstruction w the NOLA docs in 2007... I think the silver lining for you may be that you will be able to see Drs. Whose ONLY interest is Breast Reconstruction. They built a magnificent facility in NOLA for us!
Let me know if you'd like to chat about it?!
Marcia

Re: Cancelled reconstruction
 

PS they have done OVER 3000 and will move heaven and earth to accommodate you. That said please keep in mind emergent cases get first priority howvever the Center plans for this and keeps dates/ times available fir such situations.
You will NOT be "bumped" once scheduled
So sorry u have been treated so badly...give NOLA a chance you'll never regret a consult at the very least, I PROMISE!
Marcia

Re: Cancelled reconstruction
 

Thank you. that makes me feel better. I am going to fax info to them and go from there. They sound wonderful.

Re: Cancelled reconstruction
 

Leslie,sent you a Private message...
The forum on BC.ORG is the reconstruction thread and Subtopic is "NOLA in September" .
http://community.breastcancer.org/fo.../736412?page=1

I would highly recommend ANYONE seeking info on autologous tissue recon check out this thread and PM me if you want to ask any questions,
Warmly,
Marcia

Re: Cancelled reconstruction
 

I am so sorry and understand your frustration. I had initially tried to have my DIEP flap closer to my home, and after talking with the plastic surgeon for 30 minutes in his office, he finally admitted that it is "Out of his comfot zone". Thank goodness I didn't settle for implants (which he wanted to do), and decided to look further.

I had my Diep flap done in New Orleans with Dr Ali Sadeghi, and what an amazing job he did!!!! Dr. Alan Stolier did the mastectomies. I couldn't be happier!

I know that I do not know all of the circumstances for your surgury, but as a nurse, I do know that this procedure is a very long microsurgery. Not all hospitals (and plastic surgeons) can offer this procedure. It takes ORs equipped for Microsurgery, OR teams (multiple doctors and nurses) that can coordinate their schedules and operating rooms that can be tied up for these lengthy procedures. These may not be things that staff haven't explained completely to you.

You may just need to have a discussion with your surgeon, or his nurse, to better understand. If your gut tells you to find another surgeon....DO IT! Always follow your instincts. Things happen for a reason, most often for the better!

Hang in there!!!!

Re: Cancelled reconstruction
 

I also had DIEP surgery, but in Houston. If for some reason NOLA does not work out, I would highly recommend Dr. Aldona Spiegel. This is the only type of surgery that she does and she has done thousands by now. Her staff is excellent and she hand picks the surgical nurses as well as the nurses that care for her patients while in the hospital. If they don't meet up to her standards they are gone. She has a wonderful website that describes the procedure in depth along with before and after pictures:

www.breastrestoration.org

Good Luck! Hope this helps!

Alice

Re: Cancelled reconstruction
 

I am still up in the air about this surgery. I had it scheduled for last summer in San Antonio but due to an illness in the spring I cancelled it. I am still considering it. I remember Denise saying that she wouldn't have had two surgeries. Has anyone here had delayed reconstruction (DIEP)? I am in my late fifties and I was wondering has anyone undergone this procedure who is my age. I really hate wearing a prosthesis.

Re: Cancelled reconstruction
 

I also would concur with the NOLA recommendation. I didn't end up having a Diep, but my research indicated that, if I wanted a Diep, they were the best in the country. I even spoke with a woman who wrote a book on breast reconstruction, and she said they were the best.

Maybe they can fit you in this summer. I hope you can make it work. You are better off with someon who has done a lot of Dieps, like the Nola surgeons, as this is a tricky operation.

Re: Cancelled reconstruction
 

Thank you.

Re: Cancelled reconstruction
 

I may be way out of line here but I am sensing a lot of uncertainty. For a lot of different reasons you have not been able to have this procedure yet. I just feel uneasy. Like the roadblocks had a purpose. The surgery sounds daunting! I noticed that I posted quite a while back a saying of my husband. "Sometimes the situation is smarter than we are"
Your last line was about hating to wear a prosthesis. Could that really be the issue that you need to address? Finding a solution to the prosthesis problem? There are always new and better ones being developed. I hope I do not sound negative or inappropriate. Just expressing my reaction. I hope you find the answer
Keep the faith

Re: Cancelled reconstruction
 

I had a tram flap done 2 years almost 3 years out and it was the best thing I ever did in this roller coaster cancer ride. Gods blessings to you my friend

Re: Cancelled reconstruction
 

I wasn't here for a while but I do appreciate all the comments and advice.