HER2 Support Group Forums

HER2 Support Group Forums (https://her2support.org/vbulletin/index.php)
-   her2group (https://her2support.org/vbulletin/forumdisplay.php?f=28)
-   -   A Visit with Dr. Pegram (https://her2support.org/vbulletin/showthread.php?t=28017)

Barbara2 04-28-2007 05:01 PM

A Visit with Dr. Pegram
 
Sorry it took me so long to get this done, but now I'm glad I spent the time transferring our discussion (in Dr. Pegram's office) from the little digital recorder to paper. Thanks to the person who suggested taking a recorder along. What a great idea. Had I not done that, a lot of information would have been lost.

http://www.her2support.org/barbara.htm

Mary Anne in TX 04-28-2007 06:07 PM

Barbara, I know that it took time to do this for all of us. Thank you for making your precious time with the doctor available to us. What a wonderful gift! ma

Liz J. 04-28-2007 07:04 PM

Thank you
 
Barbara,

Thank you so much for taking the time to share this with us. It was very informative and matter of fact. Much appreciated.

Sincerely,

Liz J.

Erin 04-28-2007 08:06 PM

Wonderful! Your are right, the tape recorder was a brilliant idea. Thanks!

Bev 04-28-2007 08:15 PM

Thanks Barbara and Dr. Pegram. Great questions from The Her2 gang. The answers give me hope. BB

Connie Jean 04-28-2007 08:19 PM

Thank you so much for typing this up and sharing! It was so helpful. I, too, saw Dr. Peagram and he very kindly consulted with my oncologist about my treatment.
I'm NED two years from diagnosis of stage IIIc BC. My oncologist says my chances of long term survival go way up when I pass this anniversary. I have all my scans in May to make sure I'm still NED. I'm praying for good results.
Thank you all in this group. You have been so encouraging and knowledgable and helpful to me through this incredible journey.

Linda 04-28-2007 08:20 PM

Dear Barbara:
Thank you so much for taking the time to relate all this information to all of us. Your visit with Dr. Pegram was really informative and full of helpful (and reassuring) information for me, and I'm sure for lots of others.
THANK YOU
Linda

Becky 04-28-2007 08:46 PM

Barbara


What a wonderful thing you did for all of us. I know how much time this must have taken you. Thank you so much.

Joy 04-28-2007 09:33 PM

Barbara
 
I got as many "smart bumps" (my phrase for being impressed by smart people) from your questions as Dr. Pegrams answers. What an amazing job you did of putting together great questions, making the appointment, getting there, asking the great questions and recording the great answers two times. Thank you from the bottom of my heart. And it sounds like you can begin to get on with life, huh?! THAT is the best part. I'm very happy for you!

lexigirl 04-28-2007 09:39 PM

Barbara,

Thank you so much for taking the time to share your visit with us. It was very informative.

Lexi

chrisy 04-28-2007 09:42 PM

Wow! Thanks for sharing this!

Jean 04-29-2007 02:35 AM

A true gift...
 
Dear Barbara,
You have given all on the site on a true gift...many heart felt thanks.
I am so glad that you followed your instincts and went for the second
opinion. I knew you would gain great information which would address
your concerns.

God Bless you for a job "Well Done"

Jean

KellyA 04-29-2007 03:54 AM

Barbara,


This was such a wonderful start to my Sunday morning. So many questions I have wanted to ask were answered. I am going to copy this and keep it with me. Thank you from the bottom of my heart for all of the time and effort that you put into this.

Love, Kelly

Mary Jo 04-29-2007 04:53 AM

Thank You
 
Hello Barbara,

Wow..........I can't thank you enough for sharing all this wonderful information with us all. I sat at the computer this morning, with my coffee, and read it all to my husband.

Hugs to you and once again, thank you.

Mary Jo

saleboat 04-29-2007 05:30 AM

Thank you! That was a very kind thing of you to do. I'm sure that visit brought you tremendous peace of mind.

Jen

JEANB 04-29-2007 05:54 AM

Barbara,

EXCELLENT! Great job putting this together..so easy to read and informative. Thanks for doing that!

JeanB

nancy d 04-29-2007 06:17 AM

Thanks
 
I am recently diagnosed, in the middle of chemo and wondering if I can take much more. Your article is one of the nicest things that I have read recently. Thanks Nancy

Andi 04-29-2007 06:18 AM

Great job Barbara, thanks for doing this for all of us.

Lolly 04-29-2007 08:08 AM

Thanks from me also, very interesting and VERY encouraging!

<3 Lolly

lkc Gumby 04-29-2007 08:15 AM

Hi Barbara,

Thank you for posting and doing such a great job in asking Dr P such relevant questions.
It's wonderful, to cut through all that speculation that out there and really hear some clear concise accurate info!
God Bless you.

Linda

Margerie 04-29-2007 08:44 AM

Barbara,

Bravo! You and Dr. P sure make a great team. Thanks for thinking of all of us and posting his comments.

LAURIE 04-29-2007 09:22 AM

Wow, Barbara , amazing. thank you so much. Your (and our) questions helped reconfirm a lot of things for me.

Karen Weixel 04-29-2007 09:44 AM

Barbara,

Thank you very much. This information has been very helpful.

Karen

Hopeful 04-29-2007 10:12 AM

Barbara,

Thank you so very much for all of the time and effort you put into this, and for sharing it with all of us.

Hopeful

harrie 04-29-2007 12:19 PM

Barbara, thank you for taking the time to write up your consultation. I am sure the information you obtained will help many of us so I am very appreciative to you for sharing it with us. My consultation with Dr. Pegram was the last step in my final decision to do chemo and I don't think I could have found a better person to consult. I found him much more personable and easier to talk then what I had expected. Did he do the online recurrence score evaluation on you like he did on me?

Harrie (maryanne)

Julie2 04-29-2007 12:34 PM

Barbara,

Thank you very much for a wonderful job you did. They are very helpful.

Julie

Christine MH-UK 04-29-2007 01:23 PM

A big thank you!
 
It confirmed my suspicion that the HERA 1 and 2 year arms probably weren't statistically that different (and updated my knowledge: if anybody asks about the 2 year arm, I can tell them that the announcement date is pushed all the way back to 2009).

I am thrilled to bits that they are looking very prudently at shorter herceptin courses.

Thank you again,

Christine MH

Rupali 04-29-2007 01:49 PM

Thanks a ton Barbara. It was great.

Grace 04-29-2007 03:41 PM

Barbara,

Thank you. I've been fixated on my tumor markers (which just make it into normal range) despite reassurances by my oncologist, so it was wonderful to hear the same things again, and also about scans. So, thank you many times over.

mslinda 04-29-2007 04:19 PM

Thanks so much Barbara for doing this. You have provided many answers for me, and now I should stop being concerned about what the future holds for me.

Thank you again for all the work you put into this.

Linda
S. Mississippi

Diane H 04-29-2007 04:40 PM

You're just wonderful to share this information.....
 
Thank you, great information. Hugs, Diane

caya 04-29-2007 05:41 PM

Thanks Barbara for sharing this information. This really gives me much hope for remaining NED, as my own oncologist and I discussed many of these same issues with similiar responses from Dr. Pegram.

All the best
Caya

Soccermom 04-29-2007 08:31 PM

Many thanks from me as well,Barbara ! Thanks also for taking the time and energy to post the consult.
Marcia

harrie 04-29-2007 09:04 PM

Barbara, just got done reading your consultation. EXCELLENT job!!! Your questions were great and the information gathered so valuable. Thank you for taking the time to write it all up for us to benefit from.

Harrie

Shell 04-30-2007 06:24 AM

Barbara-

Thank you, thank you! How nice to get this updated info - oftentimes I read the summary of a topic, and wonder if the results hold up over time - you, and Dr. Pegram, answered some of those questions for me.

Regards,

RhondaH 04-30-2007 07:41 AM

Barbara...
 
Thank you SO much. This brought a smile to my face. BIG Huggs

Rhonda

suzan w 04-30-2007 08:19 AM

Ditto to everything that everyone else has said!!! I feel like I was along with you for your visit and it has given me great Peace Of Mind!!! And peace of mind is what it is all about! Thank you so much!!!

Debra 04-30-2007 06:12 PM

Thank you Barbara
 
Barbara -

You don't know how optimistic you made me feel tonight! Thank you for taking care of all of us! Bless your for sharing this with us and speaking for all of us!

SusieQ 04-30-2007 09:51 PM

Wow! Outstanding information! Thank you so much!

SoCalGal 05-01-2007 09:31 AM

Barbara,
Thank you so much for transcribing your consultation. You answered so many questions that I always obsess over. I think his last statement is the most important for you - try to breathe out, and just live your life as if you will live to be 100+. You deserve that!
Flori


All times are GMT -7. The time now is 09:38 PM.

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021