HER2 Support Group Forums

HER2 Support Group Forums (https://her2support.org/vbulletin/index.php)
-   her2group (https://her2support.org/vbulletin/forumdisplay.php?f=28)
-   -   Keep Me in your Prayers (https://her2support.org/vbulletin/showthread.php?t=46889)

Sheila 09-28-2010 05:23 AM

Keep Me in your Prayers
 
Last week i was taken off everything, Herceptin, chemo etc...no longer working. I have been on increased meds for heart function...Today, I sign paperwork and see if I can qualify for TDM-1 Expanded Access Program...CT's Blood work etc....I know I was having a problem with my Liver enzymes from the Methotrexate, so hoping they are down and progression shows on the CT's...its pretty obvious in my neck. I am losing my hair yet again from the Cytoxan....the oncologist said if the liver enzymes are still up, large doses of steroids are in my future. I am having alot of numbness in the left side of my face from the nodes, so I need some magic soon!
If all is good, I will be on TDM-1 in a week....feel like I have been waiting forever for this drug...hope i can get it and it does its magic on me! The best part is they have it where I go for treatment.....that is a gift in itself!

Lien 09-28-2010 05:34 AM

Re: Keep Me in your Prayers
 
May the TDM-1 kick those pesky cancer cells to where they belong! I really hope this will work for you.

Sending good vibes, healing energy and tiny poisonous arrows aimed at the unwelcome cancer cells in your body.

Hugs

Jacqueline

Ellie F 09-28-2010 06:37 AM

Re: Keep Me in your Prayers
 
You got it! Can't think of anyone who deserves a break more than you Sheila.
God bless you are in my prayers.

Ellie

Emelie B 09-28-2010 07:38 AM

Re: Keep Me in your Prayers
 
You are always in my prayers. I am keeping my fingers crossed and wishing you a very positive, cancer killing response on TDM-1.
Take good care of yourself and try to stay positive.
We are all in your corner.
Emelie

Darlene Denise 09-28-2010 08:29 AM

Re: Keep Me in your Prayers
 
Sweet Shelia: May the TDM1 Gods smile on you! I hope things line up in your favor on this. I just started TDM1 on the 8th and go for my second infusion tomorrow. A blessing indeed that it is available at your back door! I have to travel from Va Beach to Nashville. I am able to do it in a day with the help of Southwest non-stop service to Nashville.

Sending you all the best!! Stay strong...Darlene

mimiflower07 09-28-2010 08:45 AM

Re: Keep Me in your Prayers
 
thinking about you...sending you some vibes along with some magic!! hang in there drugs on the way.
suz

nitewind 09-28-2010 08:57 AM

Re: Keep Me in your Prayers
 
I will, surely, keep you in my prayers, as always. I'm just sending up a few extra now. This has to work for you, you so deserve it.
Hugs

Mary Anne in TX 09-28-2010 08:59 AM

Re: Keep Me in your Prayers
 
Sheila, I'm prayin' for lots of magic for you...
I can't wait to hear that you are on TDM1 and it's kickin'
the socks off those problem mets.
Much love and constant prayer, ma

ElaineM 09-28-2010 09:46 AM

Re: Keep Me in your Prayers
 
Count me in your cheering section !! You deserve T DM1 big time !! I have all my fingers and toes crossed for you. Take good care of yourself during this next phase of your treatment. We will be thinking of you. Let us know how it goes when you can.

tricia keegan 09-28-2010 10:35 AM

Re: Keep Me in your Prayers
 
Dear Sheila, you so deserve to qualify for this and I'll be praying very hard you get good news:)

Jackie07 09-28-2010 10:57 AM

Re: Keep Me in your Prayers
 
Sheila,

We are praying for you and sending you good vibes.

mmoons 09-28-2010 11:27 AM

Re: Keep Me in your Prayers
 
You are always in my prayers also. But just said an extra, very specific one that your get the TDM1 soon, that your discomfort is minimal and that we soon read a post with the great news of successful treatment.

You are amazing!

Sending you love, Sheila

Maureen

hutchibk 09-28-2010 12:47 PM

Re: Keep Me in your Prayers
 
I am praying hard for you sister. (and will be initiating my TDM1 paperwork next week, too).

caya 09-28-2010 01:14 PM

Re: Keep Me in your Prayers
 
Sheila dear I am sending you big hugs and prayers up to heaven from Canada.

all the best
caya

Barbara H. 09-28-2010 01:22 PM

Re: Keep Me in your Prayers
 
Hi Sheila,
I hope that you get on TDM-1 soon, and that it will bring you to NED. My thoughts are with you.
Barbara H.

Sheila 09-28-2010 01:43 PM

Re: Keep Me in your Prayers
 
Just returned from a day of tests and paperwork...my bloodwork was back to normal, seems a week off of Methotrexate did the trick. My echo showed LVEF at 50-55, whereas the muga showed 39...so I am a go there also, now just waiting for the neck, chest, pelvis and abdomen CT's...this is the first time I WANT to see progression on my scans, so I can qualify! I will know Thursday, and then if I am a go, I will begin TDM-1 EAP Next Wednesday.....hoping this WILL BE my golden ticket!
Thank you all for your prayers!

tricia keegan 09-28-2010 02:39 PM

Re: Keep Me in your Prayers
 
Looking good so far Sheila and praying even harder:) xx

bejuce 09-28-2010 03:11 PM

Re: Keep Me in your Prayers
 
Praying that you'll be getting your golden TDM-1 ticket soon.

You're a rock star and an inspiration to us all. Keep us posted!

Many hugs,

Marcia

Midwest Alice 09-28-2010 03:13 PM

Re: Keep Me in your Prayers
 
Praying for you Shelia!

Pam P 09-28-2010 03:37 PM

Re: Keep Me in your Prayers
 
You are definitely in my prayers for tdm1 and relief from all of your symptoms. You've been through so much ... you deserve a great miracle to happen NOW!

chrisy 09-28-2010 03:53 PM

Re: Keep Me in your Prayers
 
Sheila, you are ALWAYS in my prayers. This has been a heck of a year for you; you are overdue for a string of GOOD luck.

Hang in there sister

CourtneyL 09-28-2010 04:24 PM

Re: Keep Me in your Prayers
 
Huge, huge prayers coming your way, Sheila. May you get the T-DM1 magic soon and may it be your miracle. It can happen, you know.

karen z 09-28-2010 05:07 PM

Re: Keep Me in your Prayers
 
Sheila,
I am praying for you too.
Love,
Karen

DiDi70 09-28-2010 05:55 PM

Re: Keep Me in your Prayers
 
You and my sisters on this journey are always in my prayers, always....sending you warm hugs.

Didi

joletta 09-28-2010 07:51 PM

Re: Keep Me in your Prayers
 
Sheila,
Your in my prayers! sending love & good luck your way!
Joletta

sassy 09-28-2010 08:37 PM

Re: Keep Me in your Prayers
 
Keeping the prayers coming. So far so good--going get better!

Laurel 09-28-2010 09:03 PM

Re: Keep Me in your Prayers
 
Ditto what Pam just said, "great miracle to happen NOW!" As hard as it is to ask for progression, I am, but I have couched that request with the caveat "of just what is needed to get into TDM-1!!!"

Hang in there. Believing for a miracle!

Jean 09-28-2010 09:12 PM

Re: Keep Me in your Prayers
 
Dear Sheila,
Always in my thoughts and prayers. This will be your week, I am having positive thoughts for you.

Waiting to hear your good news.
Huge Hugs,
Jean

Shobha 09-28-2010 09:59 PM

Re: Keep Me in your Prayers
 
Adding my prayers, Sheila. Praying and wishing you get into the TDM-1 asap and it does wonders for you!

hugs,
shobha

MaryAn 09-29-2010 10:56 AM

Re: Keep Me in your Prayers
 
Prayers here too. May god watch over each of us with his love and kindness

Becky 09-29-2010 04:15 PM

Re: Keep Me in your Prayers
 
You know that I am praying about you and all these prayers must have done something so far with your Echo coming out good!

We await news of your golden IV ticket tomorrow.

Sandra in GA 09-29-2010 07:39 PM

Re: Keep Me in your Prayers
 
I am adding my prayers for the TDM1 and the healing it will bring to you~

Cal-Gal 09-29-2010 07:43 PM

Re: Keep Me in your Prayers
 
Dearest Sheila--thinking of you and praying for you.

Paty 09-29-2010 09:44 PM

Re: Keep Me in your Prayers
 
Praying for you dear Sheila and keeping my fingers crossed for the TDM-1 Trial. All my love and hugs for you.

Catherine 09-29-2010 09:59 PM

Re: Keep Me in your Prayers
 
Dear Sheila,

Sending prayers to Heaven for you and prayers for getting into the program. It is your turn for a break. Your team is with you.

Hugs, Catherine

Mary Jo 10-01-2010 07:46 PM

Re: Keep Me in your Prayers
 
Praying for you Sheila.

Mary Jo

Unregistered 10-13-2010 09:04 PM

Re: Keep Me in your Prayers
 
Just checked in for the first time in quite a while. I have been so busy rehabing my shoulder following a total shoulder replacement and tending to sick parents as best I can. Sheila sending you prayers and thoughts that this new protocol is your miracle. You deserve a huge break and I am truly hoping this is it. I admire your strength and perseverence. Think of you often.

Terri B 10-14-2010 05:41 AM

Re: Keep Me in your Prayers
 
Sheila, good luck, girl.. my prayers are with you too. You are an inspiration to many on this board!

TriciaK 10-14-2010 02:36 PM

Re: Keep Me in your Prayers
 
Sheila, you are one of my inspirations! Definitely in my thoughts and prayers! I watch for your posts, and am hoping this all works out for you---you certainly deserve the best! Hugs, TriciaK


All times are GMT -7. The time now is 11:06 AM.

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021