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-   -   Brain MRI Today!! ?? (https://her2support.org/vbulletin/showthread.php?t=58963)

NEDenise 09-09-2013 05:38 AM

Brain MRI Today!! ??
 
Hello Friends,
I'm headed out in a few minutes for my latest brain MRI to check for...
new lesions (God Forbid!!)
changes in the radiation necrosis (like it's almost gone would be my hope!!)
and I imagine I'll have a chance to check in on "mickey" too!

As usual, I'll request my own disk, so I can self diagnose before seeing the surgeon tomorrow. Probably not a good idea for most people, but it's served me well. It's always better for me to know, than to not know things.

I don't have a strong gut feeling one way or the other this time. Unusual for me. I guess we'll know soon enough.


Please pray, focus strength and golden healing energy... share some spare good karma... whatever you've been doing... it's working!!
Love to all of you!
I'll update as soon as I know something!
Thanks for checking in and caring about me... it means more than you probably realize.

Denise

PatE 09-09-2013 06:04 AM

Re: Brain MRI Today!! ??
 
Sending every ounce of healing energy and love your way today!

Many blessings to you
Pat

nsebesta 09-09-2013 07:34 AM

Re: Brain MRI Today!! ??
 
Sending healing prayers and praying for God's healing touch.
Nancy

'lizbeth 09-09-2013 08:13 AM

Re: Brain MRI Today!! ??
 
NEDenise,

You need your head examined 'cause your hanging out with us!

Wow, that says something when you learn how to read your own MRI scan. I am wishing for the best for you.

It always feels like someone puts me in a tube and bangs on the outside with sticks for a brain MRI. Then grabs the entire machine and shakes it. Kind of like rolling the dice . . .

it is time for you to come up a winner!

caya 09-09-2013 10:24 AM

Re: Brain MRI Today!! ??
 
Denise sweetie I am sending good vibes for great results on your brain scan.

Let us know when you can.

all the best
caya

Shobha 09-09-2013 10:43 AM

Re: Brain MRI Today!! ??
 
Sending prayers and good wishes for good news!

hugs,
shobha

JillaryJill 09-09-2013 11:28 AM

Re: Brain MRI Today!! ??
 
Denise,
Heading up to Mayo this Thursday for an echo associated with the trial. Will be praying for you at the Catholic shrine is LaCrosse. We are stopping there on Thursday. It's a really inspirational place and they have an area dedicated to prayers for those that have cancer.

cienna 09-09-2013 01:46 PM

Re: Brain MRI Today!! ??
 
Sending positive energy and prayers!

love, cienna

dawny 09-09-2013 02:46 PM

Re: Brain MRI Today!! ??
 
Sending out good vibes to you, my friend!

Dawn xx

Lovemyboys3 09-09-2013 03:10 PM

Re: Brain MRI Today!! ??
 
Sending prayers and positive energy your way!

Paty 09-09-2013 03:36 PM

Re: Brain MRI Today!! ??
 
Prayers, prayers, prayers going your way Dennise. Love,

Paty

Jackie07 09-09-2013 03:53 PM

Re: Brain MRI Today!! ??
 
Sending prayers your way ...

europa 09-09-2013 03:56 PM

Re: Brain MRI Today!! ??
 
Sending prayers chica.

Andrea Barnett Budin 09-09-2013 03:57 PM

Re: Brain MRI Today!! ??
 
Love, positive energy, healing vibes, prayers and a radiant white Light for you to bathe in... As always, Denise...

Time for you to catch a break. You're a really good kid with an attitude unlike any other, but it's enough w/all the dumbness you keep getting blasted at you!

XOXOXO,

Andi
PS -- I POSTED A NEW THREAD WITH "YOU" AND A FEW OTHERS ESPECIALLY IN MIND...

you must be exhausted hoping and praying, maybe this SIMPLE SOLUTION thread can help you get a hold of a way to alter outcomes and change the future! (Worked for me...)

KDR 09-09-2013 04:10 PM

Re: Brain MRI Today!! ??
 
Denise
Late in chiming in, busy today, and YOU keep busy until you get your GOOD news!
Love
Karen

karen z 09-09-2013 05:02 PM

Re: Brain MRI Today!! ??
 
Good thoughts coming your way.

Laurel 09-09-2013 05:09 PM

Re: Brain MRI Today!! ??
 
Hoping your noodle is clear and Mickey is fading away, a "minnie" Mickey (get it?) now. Love to you, Girlfriend!

SusanN 09-09-2013 08:46 PM

Re: Brain MRI Today!! ??
 
Have you tucked in my heart with prayers Denise!! Huge Hugs!!

JennyB 09-09-2013 11:21 PM

Re: Brain MRI Today!! ??
 
Hugs, prayers and lots of love xx

Vicky 09-10-2013 06:42 AM

Re: Brain MRI Today!! ??
 
Prayers for the waiting, for the hoping and for grace and love to surround you! I have my 3 month brain mri on Thursday and get results Friday the 13th :)

Pamelamary 09-10-2013 07:00 AM

Re: Brain MRI Today!! ??
 
Hoping all went well for you, and sending positive vibes your way - all the stronger for coming from New York at the moment!

Rolepaul 09-10-2013 08:50 AM

Re: Brain MRI Today!! ??
 
Waiting to hear how the results turned out. Nina is still clear on her MRIs for the brain and Spine. She was diagnosed November 2, 2009 with a large lesion on the brain, and December 15, 2011 with 25 to 30 lesions in the spine. I hope to hear that you do not have any disease progression into the CNS, but I want to give you hope that this is not the end of the fight. Zap them with Gamma knife, pull them out with surgery, or chemo them. Or better yet, don't have them get into your head. You can win.

Paul

Andrea Barnett Budin 09-10-2013 05:41 PM

Re: Brain MRI Today!! ??
 
Loving, sunshine-drenched powerful healing light beaming at you yesterday and today.

Awaiting word...

Much love,
andi

dearjilly 09-10-2013 06:29 PM

Re: Brain MRI Today!! ??
 
I've been thinking about you.
Let us know Denise.
My MRI is Friday the 13th too!
WOW....you guys get results fast in the states.
xoxo Jill

Mandamoo 09-10-2013 07:35 PM

Re: Brain MRI Today!! ??
 
Adding my love and prayers too my friend.
A xx

NEDenise 09-11-2013 06:39 AM

Re: Brain MRI Today!! ??
 
My Friends...
May I quote my neurologist?

"I am thrilled with the results of your MRI!"

Yay! Such a relief!
And this from a man who doesn't look like he 'thrills' easily!

So, ironically he didn't have access to the actual images yesterday due to a computer system issue. But he did have the report from the radiologist who read the scans.
And I, of course, had already viewed the images and self-diagnosed the previous evening. :)
Having never actually done a residency in either radiology or neurosurgery,
I was willing to withhold judgement until the actual medical professionals weighed in.
(Okay... so I've never done a residency in anything...
but I'd like to see one of these guys teach a 6 year old to read!
Or a 13 year old to gasp, "I love Algebra!" We all have our gifts!)


But I digress... the specifics...
~no new lesions

~dare I say it?... NED in the brain?

Oh My God!! Thank you! Thank you!
No one actually said NED, but they never do...
I'm figuring since in June all my body scans were clear...
and now two brain MRIs in a row show no evidence of disease...
don't I get to claim to be NEDenise again for a while?
If I'm thinking that through wrong...
someone please tell me before I get too excited...
only to crash back to reality.


~necrosis stable in size

~less dense, and not drawing 'extra blood'

~ Mickey (AKA my brain stem) looked a little less 'squashed' to me too

~theGoo Gobbler looked exceptionally happy (that's the grasshopper-y guy)

~and if can capture the image from the disk, I'll post it...
I swear there's a new player in the game that my son is certain must be my Chemo Ninja!
(I thought it looked a little demonic...
but my sweet son stated emphatically,
"Mom, what would a demon be doing in YOUR brain...
ninja's look pretty scary too."
Blessings on top of blessings!)


So... the plan is to go back to my ins co, and petition for more Avastin.
Since it's working, I'm hoping it won't be a stretch.

(Even the dreaded tumor board agrees with me now!
In fact I've authorized my neurologist,
who BTW chairs the committee and has been a truly unwavering advocate for what I want/need...
he has been commissioned to convey the message, "Ha ha - ha ha ha... I was right".)

The key now is to pray that the Avastin keeps working...
that Herceptin and lapatnib keep working...
that my heart/EF stays above 50%...(it was a little too close for comfort this time)
and I finally say goodbye to dex for a while.

Still a lot of 'stuff' to bug The Big Guy about... but it seems to be working!
The very best of good luck wishes, and LOTS of prayers headed out for all of you with scans coming up!
I'm so touched by your prayers and good wishes for me. Trust me when I tell you that when I count my blessings... I count you guys twice!!

Love to all!
Denise

PS - Andi... I thought you were joking... but maybe my name really is inscribed in "The Book of Life" this year!!

Cath 09-11-2013 06:53 AM

Re: Brain MRI Today!! ??
 
I am so happy for you!!!!

Pamelamary 09-11-2013 07:14 AM

Re: Brain MRI Today!! ??
 
Hooray!!!!!!!!!

Vicky 09-11-2013 08:13 AM

Re: Brain MRI Today!! ??
 
So grateful NEDdenise is backkkk!! Doing a lil' happy dance and flooded with pure joy this morning at reading your news. Prayers work! Enjoy this beautiful day!

Lovemyboys3 09-11-2013 08:14 AM

Re: Brain MRI Today!! ??
 
That's Wonderful news!!!

nsebesta 09-11-2013 09:07 AM

Re: Brain MRI Today!! ??
 
God is good! Thanks for letting us know. Enjoy dancing with NED!!!

CarolineC 09-11-2013 09:14 AM

Re: Brain MRI Today!! ??
 
Excellent! I too am thrilled with the results of your MRI! Let the healing continue!

StephN 09-11-2013 09:21 AM

Re: Brain MRI Today!! ??
 
NEDHEAD rather than DEADHEAD - but you may still listen to "The Grateful" if you want!

'lizbeth 09-11-2013 10:02 AM

Re: Brain MRI Today!! ??
 
NEDenise,

That is amazing news. I am thrilled for you.

yanyan 09-11-2013 01:45 PM

Re: Brain MRI Today!! ??
 
Very happy for you !!!

jaykay 09-11-2013 01:46 PM

Re: Brain MRI Today!! ??
 
wonderful news!

Andrea Barnett Budin 09-11-2013 01:59 PM

Re: Brain MRI Today!! ??
 
http://cdn-cf.aol.com/se/clip_art/gs...eerleader-jump http://cdn-cf.aol.com/se/clip_art/pe...ts3-title-clip DENISE, I AM SO PROUD OF YOU! STABLE. STABLE. STABLE. NED IN THE HEAD.

I remember one onc telling me, I guess we can say you're in cautious remission. Paul and I lunged at that. Stable was the best any other onc could muster. And no one ever uttered NED. And I remained on Herceptin for 9 1/2 more yrs...

Well done, NEDenise!

BTW, I would never joke about being inscribed. It will be a sealed deal by sundown Saturday!

To keep my EF above 50% I took/take 2 Dr. Best's ARGENINE -- slow release and immediate release. That stuff works great! Just saying... Vitacost.com is among my best buds.

LOVE YOU, dear Sister! http://cdn-cf.aol.com/se/clip_art/pe...s/yeahyou-clip !!!!!!!!!

Andi

PatE 09-11-2013 01:59 PM

Re: Brain MRI Today!! ??
 
Yay Yay, hope you have given up your normal walk for a NED dance for good. Such awesome news!!
Love and heres to many,many more blessings your way
Pat

SusanN 09-11-2013 02:10 PM

Re: Brain MRI Today!! ??
 
YEAH Denise!!! Truly God hears our prayers...we've just got to keep knockin' on Heaven's Doors!! <3

ammebarb 09-11-2013 02:11 PM

Re: Brain MRI Today!! ??
 
Yes! Yes! Yes! You've made my day, Miss Denise!


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