Re: TDM-1 side effects
 

Waterdreamer, you're a dream!


KDM

Re: TDM-1 side effects
 

Karen, thank you for all your support and what kind words - you touched my heart.
Thank you
Fern

PS Here is the link for Novalis for those that are not familiar with it. http://neurosurgery.ucla.edu/body.cfm?id=408

Re: TDM-1 side effects
 

Dear Fern -
Hope the Novalis will be soon. Your CEA behaved just like mine, Christine and a couple others here - indicating brain mets. And it was ONLY the CEA that was moving.

Sorry you have such headaches with that met, but it will all be over soon. Keep dreaming of NED!

Re: TDM-1 side effects
 

Hi Steph,

How quickly after doing the gamma knife for the brain mets, did your CEA levels drop? What are your CEA levels now that you are NED?
Wishing you a lifetime filled with NED! :)

Best wishes
Fern

Re: TDM-1 side effects
 

I have now been on Kadcyla for over 2 years, and my last CT scan was clear (except for the permanent damage to some bones - which means I will never be declared NED) and the brain met which was radiated (Novalis style) in March was nowhere to be seen on my last MRI.
Life is busy, got remarried to the most incredible man, I am raising a 7 and 11 year old and keeping too busy.
I will post soon on my side effects after being on Kadcyla for over 2 years now.
Best wishes in this fight to you all,
Fern

Re: TDM-1 side effects
 

Dear Fern -
Well, getting remarried is one of the more interesting side effects of Kadcyla!

All the best of everything. You asked how soon after my brain mets treatment did my CEA drop back down. It was quite immediate, and I recall Christine had the same effect after her brain mets were treated.