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-   -   Devastated - told weeks!!! (https://her2support.org/vbulletin/showthread.php?t=38224)

ElaineM 03-03-2009 02:58 PM

Devastated - told weeks !!!
 
Just thought I would check in to see how you guys are doing. I was pleased to read you talked the the doc into trying something else. It might help.
Also I with the folks who suggested milk thistle and beets. My naturopath prescribed both a long time ago. I still take milk thistle and eat fresh beets.

Barbara H. 03-03-2009 03:01 PM

I just came home from work and logged on to hear the news that you have been given hope with the a prior treatment that worked for Caryn. My thoughts continue to be with you and your family, and I have a positive feeling that this combination may work.
Best wishes,
Barbara H.

jones7676 03-03-2009 04:48 PM

I am glad to hear you have such a good physcian. I am glad to hear it worked so well before. I am hoping, praying, and believing it will work again for her and I will be watching closely (as I am sure we all will) to see how it works out. It was wonderful to hear your good news.

Cannon 03-03-2009 04:59 PM

Great News, Eric. Thank you for sharing with us, and know that we are all sending you and Caryn and your family love and healing.

Rebecca

nitewind 03-03-2009 07:14 PM

Eric, I was so relieved to hear that your doctor hasn't given up and is trying this treatment. Please know that you and your wife and family are in my continued prayers.
Hugs

Soccermom 03-03-2009 07:23 PM

Dear Eric,
Just another Her2 sister hoping and wishing for a miracle,

gentle hugs,Marcia

harrie 03-03-2009 11:14 PM

Eric, just wanted to add my prayers for you, Caryn, your kids....
take care.

Maryanne

MJo 03-04-2009 07:08 AM

Eric -- I am praying for healing to Caryn's liver. Glad you have a good, aggressive doctor. Beet juice and milk thistle tea - sounds good, but maybe not together. Please keep up posted.

chrisy 03-04-2009 07:26 AM

eric,
I'm holding thoughts of you and your family. Praying for God's love to enfold you and sustain you all,
much much love to you

Mary Anne in TX 03-04-2009 10:58 AM

Eric and Caryn, I'm prayin' today too! Much love, ma

Terri B 03-04-2009 11:16 AM

Eric, nothing but positive vibes for you, your lovely wife and beautiful children.

Shobha 03-04-2009 01:52 PM

Praying for your family! God bless you all and guide Caryn to receive the right drugs and heal her liver and regain her strength!

Happy to hear that low dose of herceptin has been added!

Believe51 03-04-2009 02:28 PM

Dear Eric, I usually do not log on to this site on weekends but something made me give in to the temptation. I heard of this news Sunday and I have been snowed in since then; I could not wait to respond to this news and to let you know I am right here too. Candles are burning for Caryn and the entire family during this hard situation. Please know that prayers have been revised for her and repeated since I read this.


I admire your strength and devotion to this sweet woman. Also know that I have been saying special prayers for you. Eric, I wish all the best for both of you but need to remind you to please take care of 'you' during this balancing act. Although our stories are different, I too am a caregiver to the best person I know. And with that I just need to send you a big hug. I cannot even imagine how you are digesting this news.

Stay strong My Friend and remember we love you both.>>Believe51 and The Mighty Oak

PS: The hardest thing about reading your post was hearing what is happening to a very special friend. Love to you Caryn. Please just do your best and we will do the rest. We all love you so very much!!

madubois63 03-04-2009 03:02 PM

Dear Eric and Caryn - I am really sorry to read your sad news, but am glad that the doc hasn't given up. I've been in liver failure twice, but not for the same reasons. I was actually green with weeks to live and no chance of a transplant. Besides other treatments, my onc put me on heavy steroids to help my liver. Has this been suggested at all???? Also - Milk thistle helps cleanse the liver. I take it in a capsule form. My other suggestion is dandelion. Dandelion has long been used to cleanse the liver. it comes in pill form, tea and of course the real thing. I grew up on it (Greek) so I am use to the taste. I have to warn you it is bitter and an acquired taste. Best way to cook it is to boil (like spinach), put olive oil, lemon, garlic and salt & pepper to taste. Save the water. Strain it good and add sugar/honey or sweet-n-low. Caryne should drink several cups a day. The tea bags are easier, but I think fresh from the actual plant has more of the stuff she needs. Please tell Caryne about my story to give her what she needs most right now- hope. She already has determination (your 2 kids and you), but just remind her of that. Good luck and God bless...I believe in miracles because they have happened to me.

flynny 03-04-2009 03:13 PM

Dear Eric, no words are going to make this any easier for you, but just know she is in our prayers as you and your children our. May all the angles above guide you and take care of you.

lexigirl 03-04-2009 08:47 PM

Hi Eric,

I am so hopeful that the herceptin and gemzar will take care of Caryn's liver. Thinking of Caryn and your family tonight.

Hugs and Prayers,
Lexi

eric 03-04-2009 08:51 PM

The fight continues...
 
Caryn met with the dr today to formally discuss the treatment plan, if she chooses to move forward with it. As mentioned, he proposed Herceptin/low dose Gemzar plus he's adding Carbo. He made it clear that if her bone marrow can't bounce back from the chemo onslought she may need to be hospitalized within 5-10 days after treatment and then it's just a matter of sleeping away her few remaining days in a hospital as they manage her pain. If her body can handle the chemo and it works that it can potentially add months (and possibly more in my book). My feeling is that if it can add months or help turn her liver functions around, then that opens the door to other possibilities.
I worked very hard at not "influencing" her decision but she already knew that I'm not ready to give her up yet. Well, this evening she announced to my kids and me that she's moving forward with the treatment. I'm scared but happy with her decision. I continue to be awed by her bravery!!! I also feel like because of all of you there's always a chance for that "miracle". I kind of feel that if there's enough voices yelling out than the chance of someone listening goes up. Well, the voice I heard from all of you wonderful people was loud and clear! I only hope the powers that be do as well.
My gratitude and love to all,
Eric

hutchibk 03-04-2009 10:08 PM

Wow, Eric. Words cannot express. You and Caryn are beyond the pale with courage. I am in awe and I am praying hard that this treatment turns everything around...

Mary Anne in TX 03-05-2009 03:59 AM

Eric and Caryn, may the herceptin and gemzar do their duty for you. What amazing courage and love. I'm believin' for powerful, positive results and more that months to come. I send you my love and prayers and gratitude for who you both are. ma

Pam P 03-05-2009 05:46 AM

You and Caryn and your kids are in my prayers. I'm praying that this treatment will be your miracle for better news. You are couragous and strong. Such inadequate words for what I'm feeling for you both.


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