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-   -   update I hate to give (with a little more positive spin) (https://her2support.org/vbulletin/showthread.php?t=57731)

Laurel 04-15-2013 01:04 PM

Re: update I hate to give (with a little more positive spin)
 
Thinking of you, kiddo. Wearing my rally cap!

dearjilly 04-15-2013 01:13 PM

Re: update I hate to give (with a little more positive spin)
 
Chrisy,
I'm rubbing my buddha's belly for you.
Sending you hugs.
Jill

BonnieR 04-15-2013 02:05 PM

Re: update I hate to give (with a little more positive spin)
 
Beginning the week with good thoughts and prayers. Keep the faith today and always
With love.

europa 04-15-2013 05:56 PM

Re: update I hate to give (with a little more positive spin)
 
Thinking of you dear friend.

jml 04-16-2013 01:53 AM

Please NO!Re: update I hate to give (with a little more positive spin)
 
Oh Chris!
NoNoNoNoNO! That is all I can hear screaming in my head as the shocked,
frightened, heartbroken tears run down my cheeks. I'm sorry I can't put on
braver face right now, but I am devastated, selfishly devastated by this news.
I have been away from the boards for a few weeks now, dealing with all the
minutiae & frustrations of this stupid disease so to learn this, 10+ days since post - I'm in shock.
I wish I could be more eloquent right now and express the millions of things that are in my heart and head, let you know how important you've been to me in so many ways, for all of these years and how I wish we could have met in Book club or Garden club or just about any other club in the world so that we be connected...
You have been not only my inspiration, guide, educator, mentor, comic relief, but my Sister in Arms and I am not ready to let you go.
Regardless of what I want, what I really want it is whatever YOU want-prayers, peace, comfort for you an your family, anything, everything.
I am still Keeping the Faith, my friend, my sister,

Jessica

ps-we've spoken before briefly about my Traditional Chinese Medicine doc in San Anselmo, Marin County, who has guided me with my complimentary meds through the ~11yrs of my dx-his name is Michael Broffman at the Pine Street clinic...please turn to him for help & guidance if you are so inclined & able. He is available by phone and completely up to date in the new BC drugs, just approved and what's coming down the pipeline.

alicem 04-16-2013 05:51 PM

Re: update I hate to give (with a little more positive spin)
 
I too am late to this news, not having checked in for a while. This is beyond crap on a crapstick and I really am at a loss for words. Is it okay if I just say DITTO for what Jessica just wrote? I so appreciate your sharing this with all of us, because you mean so much to all of us. Now its time to go find the kleenix...

My friend, I'm sending you warm hugs, special prayers and loads and loads of love.

~With Love, Alice

Adriana Mangus 04-16-2013 06:15 PM

Re: update I hate to give (with a little more positive spin)
 
Dear Chrissy,

I'm so sorry, I have no words to express my feelings and emotions, can't find the right words to tell you how much I
wish this wasn't happening. It seems there is still a drug to help you out - stay strong and think positive, - I know you can do it!

Love and light, hugs.

Adriana

Midwest Alice 04-17-2013 06:54 PM

Re: update I hate to give (with a little more positive spin)
 
Christy, thinking of you tonight. have a restful evening. Sending a hug

Bill 04-17-2013 06:59 PM

Re: update I hate to give (with a little more positive spin)
 
Hi Chris! Just sending a hug your way. I hope you're having a good day.

sassy 04-17-2013 07:54 PM

Re: update I hate to give (with a little more positive spin)
 
Still sending up lots of prayers and good, healing thoughts to you Chrissy.

Mary Jo 04-17-2013 10:05 PM

Re: update I hate to give (with a little more positive spin)
 
Think of you every day, Chrissy!

Peace to you, my friend,

Mary Jo

Andrea Barnett Budin 04-18-2013 10:41 AM

Re: update I hate to give (with a little more positive spin)
 
Yes Chrisy every day. Often throughout each day. YOU are in my head.

Hoping to receive word from you. Believing in your coping skills, your imaginative way of moving forward, your open mind and your loving Spirit, Chrisy.

Andi

turbo 04-18-2013 07:37 PM

Re: update I hate to give (with a little more positive spin)
 
Thank you for being an inspiration and always positive ..you have inspired many. prayers are out for some more magic and time.

karen z 04-19-2013 08:28 AM

Re: update I hate to give (with a little more positive spin)
 
Chrissy,
Sending along thoughts and prayers to you. I am thinking of you every day.
Love,
Karen z

ammebarb 04-19-2013 08:37 AM

Re: update I hate to give (with a little more positive spin)
 
I too think of you often and pray for you daily, Chrissy. Sending gentle hugs.

Barb A.

KsGal 04-19-2013 10:07 AM

Re: update I hate to give (with a little more positive spin)
 
Still praying and sending positive energy. ((hugs))

SoCalGal 04-19-2013 11:10 AM

Re: update I hate to give (with a little more positive spin)
 
thinking of you. sending love.

Vicky 04-19-2013 11:41 AM

Re: update I hate to give (with a little more positive spin)
 
Chrissy~ just wanted to add my prayers and voice to all the others. As I scroll through the list of all those leaving such encouraging and loving words- I am reminded of all the love and hope, wit and intellect, you shared with us. You've profoundly influenced so many and I pray you fully feel how much of an impact you've had. Blessings and love to you.

ElaineM 04-19-2013 01:51 PM

Re: update I hate to give (with a little more positive spin)
 
Still thinking of you and hoping you are doing well.
Keep putting one foot in front of the other and keep going no matter what.
By the way, have you ever considered milk thistle or dandelion for liver detox? I have taken it everyday since my diagnosis and believe it has helped my liver stay healthy.
Take good care of yourself. Let us know how you are doing.

chrisy 04-19-2013 06:24 PM

Re: update I hate to give (with a little more positive spin)
 
Hey guys, quick update still along growing. Tour posts - and suggestionsare much appreciated and on the radar should we accomplish the goal of keep ongoing my liver function while under such rudest. Mouth sores afr mob main buggabo right now. I'm basically on a liquid diet but not enough to really get ahead. Trying my best.

I LOVE you all and am sending you this cyber hug

chris

Laurel 04-19-2013 06:43 PM

Re: update I hate to give (with a little more positive spin)
 
So happy and relieved to see your post, Chrisy! I am afraid I have no suggestions, except for milk thistle in large doses and protein (whey added) smoothies or milkshakes.

Prayers continue. Love you.

Bunty 04-20-2013 01:09 AM

Re: update I hate to give (with a little more positive spin)
 
Chrisy, so good to hear from you - I've been praying for you every day...... I know I bang on about it, but if you are able to access it, maybe try acupuncture.

You are amazing, and sending you lots of healing love.

Marie

NEDenise 04-20-2013 03:48 AM

Re: update I hate to give (with a little more positive spin)
 
Chris!
Thank you! Thank you! for the update!! You truly are a ROCK STAR to check in with us!
Couldn't love or admire you more, my friend! You have made my day! No, my whole weekend!

Still banging on heaven's door...shhhh....I think someone may actually be listening....but I don't want to jynx it...

Oh...BTW...you mentioned way back, that the 'fat lady' had not sung...well I checked with Adele, the only 'fat lady' worthy of singing for my dear Chris IMHO...and she's booked solid for the foreseeable future, sooooo looks like you'll have to put that whole thing on hold anyway. :) Good to know...right?

Love and a gentle hug coming across the country! Drink up!
Denise

caya 04-20-2013 07:36 AM

Re: update I hate to give (with a little more positive spin)
 
Thanks for checking in dear Chrisy.
Still sending prayers, hugs and lots of love.
Keep strong, keep up the fight, Warrior Woman.

all the best
caya

karen z 04-20-2013 09:04 AM

Re: update I hate to give (with a little more positive spin)
 
So glad to read your post Chrissy. I don't have great advice for some of the specifics but just wanted you to know I am thinking of you constantly and sending my best thoughts, many prayers and returning that big cyber hug.
love,
karen z

BonnieR 04-20-2013 01:06 PM

Re: update I hate to give (with a little more positive spin)
 
So happy to hear that you are keeping the faith! Sending you prayers and love
Bonnie

Ceesun 04-20-2013 04:54 PM

Re: update I hate to give (with a little more positive spin)
 
Chrissy, .......and the greatest of these is love......Ceesun

Andrea Barnett Budin 04-20-2013 05:50 PM

Re: update I hate to give (with a little more positive spin)
 
The light shines even in the darkness. The darkness has not overcome it...


Love and Light,
Andi

suzan w 04-20-2013 10:29 PM

Re: update I hate to give (with a little more positive spin)
 
Thinking of you tonight!

Paula O 04-21-2013 05:49 AM

Re: update I hate to give (with a little more positive spin)
 
Nice to hear from you Chris. I hope the mouth sores clear up quickly.

Hear's to great success of your treatment plan!

Paula

Mary Jo 04-21-2013 06:14 PM

Re: update I hate to give (with a little more positive spin)
 
Cyber hugs back at ya, Chrissy, my friend.

Mary Jo

Laurel 04-21-2013 06:17 PM

Re: update I hate to give (with a little more positive spin)
 
Thinking of you, Kiddo.

sassy 04-21-2013 06:52 PM

Re: update I hate to give (with a little more positive spin)
 
Love to you Chrissy.

mamacze 04-21-2013 06:57 PM

Re: update I hate to give (with a little more positive spin)
 
I too am thinking about you tonight Chrissy. I love the image of all these beautiful women holding you fast and tight in such a world wide cyber hug. I hope you feel the love and peace.
XO
Kim (from CT)
ps Caphasol mouth rinse has been a miracle cure for my chemo induced mouth sores; can they order it stat for you?

karen z 04-22-2013 07:05 PM

Re: update I hate to give (with a little more positive spin)
 
Hi Chrissy,
Thinking of you today and all days.

Love,
karen z

Adriana Mangus 04-22-2013 11:14 PM

Re: update I hate to give (with a little more positive spin)
 
Chrissy,

Love you too sister, hang in there please.

Adriana

karen z 04-25-2013 09:06 AM

Re: update I hate to give (with a little more positive spin)
 
Hi Chrissy,
Just saying hi and that we all love you.
karen z

BonnieR 04-25-2013 09:48 AM

Re: update I hate to give (with a little more positive spin)
 
Adding my thoughts Keep the faith. We love you

SoCalGal 04-25-2013 12:14 PM

Re: update I hate to give (with a little more positive spin)
 
Thanks for the update...one thought:
Have they mentioned a feeding tube? An acquaintance of mine was resistant to a feeding tube---as I imagine I would be, too. But--the tube allowed them to keep her nourished while her throat healed from radiation. (She had a bad throat cancer sitch). That was over a year ago. She is fine now, they removed the tube once she could eat again.

Don't know if you considered that but thought I'd mention. Perhaps a matching tube, depends, hearing aid, reading glasses and a cane. I know you're fond of the cheese whiz. Maybe you can get a custom color match to cheese whiz orahnge. I think it's basically Tang orange with a 10% screen back. Also the neons are really big right now!

In my google research I see a picture of a dog wearing the cone of humiliation and a feeding tube. I am not sure if he ate the tube, as Rocky would, or if its for medical reason. Don't know if its on its way in or out. Perhaps the cone is because he eats feeding tubes. He looks quite healthy not counting the cone and the tube.

Well, sorry for the long post when you are no doubt too tired to read all this crap on or off the stick. Sitting and getting my infusion today.
Sending love and big hugs. And prayers. I think of you all the time...
Flori

BonnieR 04-25-2013 12:54 PM

Re: update I hate to give (with a little more positive spin)
 
Flori, good idea. Why not just administer Cheez Whiz directly thru IV?
Seriously, thinking good thoughts and saying prayers. Keep the faith


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