Re: Kadcyla & Perjeta, Thank You, But It's Over Now
 

Sending positive thoughts to you Karen - hoping the new cocktail will be successful in getting you back to dance with NED!

all the best
caya

Re: Kadcyla & Perjeta, Thank You, But It's Over Now
 

Hi, I'm new to my diagnosis (Stage 1, 6 tiny Her2 tumors, the largest is 3 mm, tons of DCIS, no ER or PR, no nodal involvement) so I don't know if my situation can "speak" to yours. That said, I have gotten 3 different treatment recommendations: TCH, TH, and a brand new trial (here in Boston) of T-DM1 (kadcyla) for small tumors (it's been FDA-approved for larger tumors). Don't know if either of the last two might be relevant to you, but maybe??? Wishing you the best, and knowing that your spirit WILL help, Nancy

Re: Kadcyla & Perjeta, Thank You, But It's Over Now
 

Oh Karen,

So sorry about your met, that trial looks interesting. I've been wondering what is next . . . and I think you are one of the first to answer this question.

You are so optimistic and this just seems perfect for you. I'm praying it takes you to a permanent NED!

Re: Kadcyla & Perjeta, Thank You, But It's Over Now
 

Karen,

So sorry you have to deal with another challenge, but I know you will face it with aplomb.

Prayers coming your way.

Re: Kadcyla & Perjeta, Thank You, But It's Over Now
 

Karen, Sending good wishes as you find the next treatment to bring you back to NED. Enjoyed your link to Paul Miller. Praying for treatment successes for you.

Re: Kadcyla & Perjeta, Thank You, But It's Over Now
 

I hope this is not a met but necrosis. I had necrosis show up in my brain met area several years after the met, and had to go through a year of worrying and watching and am learning that the docs/scans/tests don't always know the story.

I'm with you on this:
"I personally believe immunotherapy and inhibitors are the future, along with precise custom treatments."

Sending very positive thoughts your way!

Re: Kadcyla & Perjeta, Thank You, But It's Over Now
 

Hi Karen,

Add me to the list of women who care about you. You are an amazing, resilient woman. Please do keep us posted. And yes, the immunotherapy is the way of the future. My onc even said so.

Take care,

Jackie