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-   -   Oh yeah, and about that bad leg... (https://her2support.org/vbulletin/showthread.php?t=55701)

NEDenise 08-31-2012 08:58 PM

Re: Oh yeah, and about that bad leg...
 
&%$#@!!!

It never rains...unless it pours! Geez Louise! And I thought I was having a run of bad luck! Like you didn't have enough on your plate without a nice juicy abscess that needs draining! Criminy!

I hope you know, you're in my prayers every day anyway...but I'll be adding a few extras tonight...and tomorrow...and every day, until you are firmly on the road to being happy, healthy Chris again.

I'm so sorry your long weekend is going to be spent feeling lousy. And...NPO?...that just sucks! Except that...on the bright side...hospital food isn't what one would call delicious anyway.

sending love and hugs your way
Denise

michka 08-31-2012 11:53 PM

Re: Oh yeah, and about that bad leg...
 
Chrisy, you are in my thoughts. You went through enough. You seem to have a very good team of Drs around you and I hope they can "fix" that leg real fast. I also hope that meanwhile, the path to Petuzumab is opening up for you. And fast also! Hugs, hugs. Michka

KsGal 09-01-2012 01:17 AM

Re: Oh yeah, and about that bad leg...
 
It's sad that we are in a situation where I am relieved to hear you have a giant cyst in your leg full of infection rather than something...else. Of course, I wish you had no problems with your leg whatsoever, but you know what I mean. Having said that..make the most of your stay. Get some rest. Somehow I picture you in my mind just going going going every day. Read, watch TV and RECOVER! You really are having a rough month here..Im sure sending you my prayers every day and lots of positive energy. Big cyber hugs to you, and please keep us updated.

Bunty 09-01-2012 06:13 AM

Re: Oh yeah, and about that bad leg...
 
Chrisy, I always love reading your posts - you have a wonderful spirit, and great sense of humour, even at times like these! Anyway, prayers going up from down under and sending you lots of good vibes....
Cheers Marie

Lori R 09-01-2012 07:09 AM

Re: Oh yeah, and about that bad leg...
 
Chris,
Certainly sending out a prayer for this difficult time.

I do, do, do believe in angels and the karma of the universe. You can count on them and they have already shown to you they exist.

A mantra that is comforting to me when slowly breathing in and out is that, "I am in his hands". It just says that things are how they are supposed to be. We don't have the full picture so we just have to trust that we are on our life's specific path, and all will be as it should be.

I will PM my prayer as I am not the most eloquent. A little shy for all you brainiacs on the site...but it will be heartfelt.

Keep up the fight...Love you.

Lani 09-01-2012 08:45 AM

Re: Oh yeah, and about that bad leg...
 
bit confused by the timing...

when was injury/what happened

did you take the cipro before or after the initial injury...did it get worse anytime after you took the cipro (can happen quickly or much later, I understand)

See if you can get lots of your doctors involved ("sign a petition") to help you get the Perjeta either from your insurance or from Genentech. Lots of doctors looking at Genentech's handling of this may help, but they are probably afraid to give it to someone whose history does not match its indications "It is not yet approved for that indication" I can already hear coming from their mouths.

If insurance won't come around and Genentech takes that position, kperhaps compassionate use may be the only way and I don't know if that allows those for whom the approved indication is not there ie, the legal implications.

Let's all keep brainstorming!

Ellie F 09-01-2012 11:21 AM

Re: Oh yeah, and about that bad leg...
 
Prayers being said and sent from across the pond, firstly for an accurate diagnosis, secondly for the right treatment plan and thirdly for a speedy and complete recovery.
Hugs
Ellie

Andrea Barnett Budin 09-01-2012 11:29 AM

Praying, believing and praying some more...
 
http://cdn-cf.aol.com/se/clip_art/pe...ips/hands-clip http://cdn-cf.aol.com/se/clip_art/pe.../godsmile-cliphttp://cdn-cf.aol.com/se/clip_art/pe...clip1-blessyouhttp://cdn-cf.aol.com/se/clip_art/pe...ingforyou-clip

I am with you, Christika in California...

I believe in YOU and I thoroughly believe in PRAYER!!

Much love, Andi

SoCalGal 09-01-2012 02:05 PM

Re: Oh yeah, and about that bad leg...
 
Sending prayers, love, hugs...

kklouisiana 09-01-2012 03:22 PM

Re: Oh yeah, and about that bad leg...
 
Praying for you in Louisiana......
Ask, Believe Give, Thanks, Receive

Jackie07 09-01-2012 03:28 PM

Re: Oh yeah, and about that bad leg...
 
Sending prayers your way...

Jean 09-01-2012 07:08 PM

Re: Oh yeah, and about that bad leg...
 
You got em....healing prayers are being sent.
Hugs,
Jean

chemteach 09-01-2012 08:22 PM

Re: Oh yeah, and about that bad leg...
 
My prayers. Many many prayers!

chrisy 09-01-2012 08:53 PM

Re: Oh yeah, and about that bad leg...
 
Update, kinda long, some parts might be TMI so skip that part if you want. Basically things going in the right direction today, feeling better and they are letting me eat now. Seems the dinner menu so far is stew, white or brown every day.

A very fun day at Casa Parnassas! I've completely lost track of how many doctors I've seen now, but my favorite one has to be the anesthesiologist who, while discussing the risks, says that although theres the liver mets, I was very YOUNG and healthy my risks of anesth complications was really low. I want some of whatever he's juicing!

First, thank you so much for the prayers and messages of support. I feel awash in love, which always makes me cry.. The good way.

CAUTION, ICKY PART This morning I had a procedure where they drained a big abscess, which hopefully give the antibiotics and my own immune system more of a fighting chance. And reduce some of the pressure and related pain in my calf. Of course there is still a ton of inflammation in the tissue so lower leg still swollen and painful...before considering the actual original offending injury!

So will be more hospital days and long recovery but hopefully we can knock out the infection and get back to focusing on the cancer thing. Talk about one step at a time (for you, Flori!).

GOOD NEWSIES
In their test ordering frenzy, my oncologist ordered a brain MRI, the only thing they didn't have current. Looks like the MRI shows I still have nothing going on upstairs! And I have finally achieved a goal, actually falling asleep in the MRI, being jolted awake when the noise STOPPED! Strange days, indeed.

Lani - original injury, torn planaris muscle/tendon was around April 15. Stepping off a curb. Cipro was I think in last week in June. Reinjury was August 11, definitely plantari but as you know I do not yet have current MRI. So the reinjury, while having clear source event, might have been also fueled by the cipro

AND THE PERJETA OFFENSIVE IS STILL ON, JUST NEED TO FUEL THE TROOPS (ME). So thanks for the suggestions - I intend to load up the arsenal!

Love to all
Chris

KsGal 09-01-2012 10:58 PM

Re: Oh yeah, and about that bad leg...
 
A lot of your news was great!!! YAY!
Ummm..brown or white stew every meal? BOOOooooo. Two thumbs down. I feel like I need to ring up Pizza Hut and tell the delivery guy it's an emergency situation...Pepperoni STAT! :)
Im so glad you are feeling better today. Hopefully every day gets better and better. Lots of hugs and prayers to you.

Paula O 09-02-2012 02:53 AM

Re: Oh yeah, and about that bad leg...
 
Hooray for the good news and your progress, Chris!

Something that brings me comfort is to think about how God mentions in the Bible that He cares when sparrows fall out of trees and has counted every single hair on our head (and knows all about the losses from chemo too). He thought you up, designed beautiful you just exactly as you are, and knew every detail about you before you were ever even conceived in your mother's womb. He loves us all beyond our wildest dreams according to my lifesource--Scripture.

I am praying on your behalf to the One Who says He can do EXCEEDINGLY ABUNDANTLY ABOVE all we can ask or think. I know this is a really tough time and my heart goes out to you. Be watching for His Fingerprints. Sometimes extraordinary blessings come wrapped in packages that we don't immediately recognize as the good gifts that they are.

Hugs,

Paula
"Prayers are instantly noticed in Heaven. Wherever there's a heart big with sorrow. Or a lip quivering with agony. Or a deep groan of sadness, the heart of God is open." Charles Spurgeon

NEDenise 09-02-2012 04:50 AM

Re: Oh yeah, and about that bad leg...
 
Chris,
So glad to read good news! And...so glad to "hear" your voice when I read it too! I love that none of this crap has dampened your spirit!
Sending more prayers and love from my coast to yours,
Denise

Pray 09-02-2012 07:05 AM

Re: Oh yeah, and about that bad leg...
 
What an amazing trooper you are! Gods blessings to you and I'm praying for you.

Andrea Barnett Budin 09-02-2012 11:00 AM

Re: Oh yeah, and about that bad leg...
 
I hear you!

I remember one doc telling me about my recurrence. Slowly, morosely and stammering he said,What you have is inoperable. Incurable. And -- you will be on long term chemotherapy -- for the rest of your life. He was desolate and stricken by my turn of events. I thought he was going to cry.

Wereas, Doc #2 told me, You are young. I was then 53. I laughed. And in good health. I thought, Seriously? Except for the canser thing throughout my liver, I'm fresh as a daisy. Oh, and not having surgery is probably a good thing, he went on, cause then you'll be stronger to take the chemo. Incurable?, he proceeded. canser is a chronic disease, with occasional flare ups. We fix you up, and then you're good to go.

So, your anesthesiologist sounds like my kind of man!!!!Hold on to that one...

Storm the beach and get your Perjeta... Damn the insurance company. You are unstoppable.

Even with all your bad news (like white stew????) etc., you never fail to make me smile. You're full of Light. Divine!

I'd say, One step at a time, but with your leg, I am hoping you are a good hopper... Bet you are!
Andi

sassy 09-03-2012 05:04 PM

Re: Oh yeah, and about that bad leg...
 
Chrissy,

I haven't posted but I've been keeping up with you.

Keeping you in my thoughts and prayers.

How about a little Tex-Mex with a side of Mole sauce to replace that stew thing you got going on?!!


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