Re: OH what to do???
 

Sorry to hear you are under the weather. Please try to keep your spirits up anyway you can. Eat whatever you can when you can. The body needs a little fuel once in awhile.
I have my fingers crossed that your radiologist is right about getting rid of that pesky cancer in your menengies. Sorry about the spelling. Medical words are sometimes nasty to spell, but I know what part of the body you are having trouble with. I have a tiny totally benign tumor in mine that has been there most of my life minding its own business and not any causing problems, so we are leaving it alone.
Take good care of yourself.

Re: OH what to do???
 

Lots of prayers and positive thoughts. ((hugs))

Re: OH what to do???
 

The results from last week were even more promising. They show no more active sites in the spine, the sites in the brain are indistinct, no tumor cells in the spinal tap or blood, and overall it looks like we have turned the corner. The radiation at Christmas had similar effects on my wife in terms of a sore back and not feeling chipper. Her back is still sore, there is pain in her ankle that is due to the lower back nerve cells (doctor's assessment). They reduced the topotecan to once per week and the navelbine to once every two weeks. The doctors are preparing the MRI results and treatment plan for a paper in a journal, and to get funding for a new large clinical trial. I hate that others are not seeing progress in their treatment. I hope that you see the same success in yours. Please note, under 50 mg Herceptin per week has not seemed to be effective in the cases that I investigated. at 80 mg per dose, the hospital bills this at $US1800 just for the drug.

Let me know how you are doing.

Re: OH what to do???
 

To all,

Jacqui (Kiwigirl) passed on last Tuesday after a tremendous fight. Please send an email to her husband Greg in New Zealand at gregdrag@gmail.com to let him know the support that this site can give and the strength Kiwigirl showed.

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So sad to hear this. I emailed Greg.

Re: OH what to do???
 

I am praying for Jacqui, her Husband, family and friends. How unbelievably sad! She fought with the best. I'm so sorry and so sad.