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Nothing to offer about chemo options but does a HUGE, yet GENTLE hug count for something? Hugs and prayers for you Pam. :-)

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Pam, I am praying for you everyday!

Isn't there a cancer group in MN that raises money for cancer patients to go to other states to try new treatments?

I know a fellow sister who traveled the country for 8 years with triple negative dx and drug companies paid to have her put up and air fare to try new treatments and or to come to there seminars to here about new cancer drugs. Unfortunetly her fight ended in May or I would ask her for some names of companies and groupshttp://her2support.org/vbulletin/images/icons/icon9.gif.

On the other hand maybe there is another sister on this site from MN that may know some or could help locate them. Just trying to help. I will try to find something out also.

Gods blessings to you!

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Are the financial resources available to travel for trial or any distant treatment sites? I never heard of any. How would I find out? Today with all the budget cuts it might be one thing that has been discontinued?

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Pam, I think Brenda would know...seems Chrissy posted about this...

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Hi Pam, I'm still working on finding info. for you!

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Hi Pam, I haven't tried these yet. If you want to look into these, I know how important it is to feel like your doing something. There are so many! I have others checking for drug companies. If You want I can start emailing you through private messages. Gods blessings!


www.greatguys.org

ww5.komen.org

Free Air Travel for Breast Cancer Patients/Facebook

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Sorry to hear about it.Hope & Pray everything will work out fine

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Ishey Lacey - Thank you so much for helping to identify travel expense help. I won't know until I see the doc on 8/18 what direction of chemo he wants me to go, but if it means travel then maybe I can do it now. Pam

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Pam, I see you are in MN. I am in Iowa and my oncologist says there is a doctor in Cedar Rapids, IA who can get TDM-1. Also do you know that you can stay for free at alot of hospitals that have hotels associated with them. For me in Iowa City (20 min from Cedar Rapids) we have the Hope Lodge (a Ronald McDonald house for adults) and then inside the hospital there is a hotel and the rooms are $15/night!!!! Please look into those types of options, I'd hate for you to miss an opportunity to get that wonder drug.

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Thank you Kristin. If I can qualify for tdm1 I will check this out.

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Sorry to be redundant, but here is a portal to Hope Lodge's all over the country! http://www.cancer.org/Treatment/Supp...opeLodge/index
There are two in Minnesota even!
I met quite a few people staying at them when I was receiving radiation, they were staying there during the week for treatments then going home over the weekends- they said it was really nice.

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Pam there is also free air transportation thru..

http://angelflight.com/

Hope Lodges are all free...

I used them 5 years ago...wonderful experience and people!

Marcia

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Hi Pam,

I'm so happy with all the help your getting! let me know if there is anything else I can help you with. I'm still looking. I'm interested in seeing what your dr says next.
Gods blessings!

Nancy

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Hello again Pam, We hit the jackpot! go to the group forum "clinical trials" read the post (by Chrissy) "TDM-1 eap Good news for those in tdm1 eap who need to travel.
at the bottom you will notice a great list of resources! Is this Support Group great or what?!!!!!!

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Hey Pam,

Just wanted you to know I'm thinking of you and sending positive thoughts your way.

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Pam, I hate that you have to go through more of this. I am hoping for some good news along the way & sending good thoughts your way.

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Just saw all the TDM-1 information. What a great group!