Re: This wk things could change, I'm nervous.
 

I'm there in your corner Chelee. I am sure your scans will show some improvement. Keep us posted.

Re: This wk things could change, I'm nervous.
 

Will you be bringing that funky walker to your appointment?

Re: This wk things could change, I'm nervous.
 

Chelee,

Wondering how you are this morning. Hope you post soon.

Amelia

Re: This wk things could change, I'm nervous.
 

Chelee
Thinking of you. Hugs. Michka

Re: This wk things could change, I'm nervous.
 

Becky, I don't want my scans to show "some" improvement...I want them to show TOTAL NED improvement. lol ;) I'm not asking for too much am I. My last TM's were down again...they have dropped to 23 which is good. So adding the Navelbine has helped...I just hope it's done a good job?

Lori & Ellie, I'm glad you both caught my question about the best approch for attacking when your stage IV? It seems to me they "use" to hit it hard...but now they all talk about how it's not curative at this point so it's all about the QOL. Which that is important to me...but it would be nice to hit it hard enough that I could get lucky enough to have some NED time again. I've also been hearing they like to save the big guns for later if it becomes necessary. My main concern is not going so easy on "it" that it gets more time to spread. Has anyone else heard their onc feelings on this topic? Especially once stage IV.

Rich, No I won't be bringing my funky walker. lmao I'll have you know I've moved up to a funky cane! :) It comes in handy for hitting people. lol

Tomorrow is the big day...don't forget to be sending those good thoughts & prayers...I sure need them. My scanxiety is off the charts today...I can imagine how I'll feel in the morning.

Chelee

Re: This wk things could change, I'm nervous.
 

Chelle,

Have I ever told you I love your picture? Sometimes I feel just like that all day long! lol

Praying for your scans tomorrow.
Hugs and blessings, Alice

Re: This wk things could change, I'm nervous.
 

Good luck tomorrow Chelee.

all the best
caya

Re: This wk things could change, I'm nervous.
 

Chelle Good luck tomorrow. I am praying for good results.

Re: This wk things could change, I'm nervous.
 

Sending you positive vibes for a NED scan tomorrow!

Re: This wk things could change, I'm nervous.
 

No walker? I guess you graduated. You make it sound like you're "House MD".
If need be, you could reasonably add Xeloda to Navelbine. Maybe some Femara as well, since having Herceptin may have bosted the "weak" ER side of things. Could also go for a Her 2 blockade by adding Lapatinib. Might be worth asking for a serum her2 level and cell search to get a view on things.

Navelbine (w/Traz, liver friendly, w/Cap)
http://her2support.org/vbulletin/showthread.php?t=42261

Letrozole
(monotherapy, with chemo, w/Sorafenib, in er-, immuno-synergy, on-off strategy resensitizes)
http://her2support.org/vbulletin/showthread.php?t=43285

ER/Her2 crosstalk (combination therapies etc):
http://her2support.org/vbulletin/showthread.php?t=38998

Lapatinib/Herceptin combination (Her-blockade, Lap passes BBB)
http://her2support.org/vbulletin/showthread.php?t=41397

Circulating Tumor cell test (interpreting, vs marrow)
http://her2support.org/vbulletin/showthread.php?t=41709

Re: This wk things could change, I'm nervous.
 

Hi Chelee,
It's the big day. Have you in my prayers today.

Re: This wk things could change, I'm nervous.
 

Adding my prayers for you, Chelee!

hugs,
shobha

Re: This wk things could change, I'm nervous.
 

Chelee,

I also have a pet/ct today...hoping we both get fabulous news.

I agree, the liver pain could have nothing to do with cancer - the only time I EVER had any was right after my first TDM1 dose - and I'm convinced that was screaming cancer cells

Holding good thoughts for everyone...
chris

Re: This wk things could change, I'm nervous.
 

Chelee and Chrisy,

Hope you both have good results today.

Amelia

Re: This wk things could change, I'm nervous.
 

Ditto Chrisy.
Rooting for you both!

Re: This wk things could change, I'm nervous.
 

Chelee and Chrisy, just wanted to add my prayers and good wishes for a good result for both of you:)

Re: This wk things could change, I'm nervous.
 

Today is the day and I'm thinking of you, Chelee. Expecting the best, but no matter what I know you will be out there, raising Cain and keeping the medical staff on their toes.

Re: This wk things could change, I'm nervous.
 

Chrisy, I'll be keeping good thoughts that TDM1 will continue to bring you clean scans. Which I bet it will. :)

The guy that was going to do my PET/CT came out to get me...and I told him how I wanted my Power Port accessed for this scan. I told him no one ever wants to use it. This lead up to me finding out my onc "only" ordered a PET scan this time. She has "never" done that! I wanted and expected a PET/CT especially since I recurred to so many areas. I wanted to see exactly what the Herceptin/Navelbine/Zometa was doing? Why would she not order the CT too?

I thought my onc was back from her vacation Feb. 2nd. But now I find out she won't return till Feb. 8th. No way am I waiting that long for the results.

Chelee

Re: This wk things could change, I'm nervous.
 

Rich, Thanks for putting all the great links together...read them all. I appreciate it...thanks again!

Chelee

Re: This wk things could change, I'm nervous.
 

Dear Chelee -
Guess your onc just wants to see how "hot" you are. I hope your PET was cold as a fish! A salmon in the Yukon River.

Too bad the lady was not there to double check on the scan orders. Mistakes do get made along the chain, as many of us so well know.

We'll be waiting right along with you. BTW - great news on the tumor marker drop. Your CA27-29 is almost the same as mine!