Re: FREE Brain MRI FREE
 

Celeste, Congratulations...thats wonderful news. :) I know what a good feeling that is when you get the all clear. YEAH!

I'm going to email them and see if they "might" consider letting me in this study...I meet all the criteria except that I'm a little further out then the 36 months. It certainly can't hurt to email them...so off I go. lol Thanks for letting us know they might accept people outside their criteria...I for one apperciate it. Again... big congratulations.

Chelee

Re: FREE Brain MRI FREE
 

I called again and left another message stressing that I'm quickly coming up on the 36 month out date, so need an answer on whether they are interested in my participation. So, I'm hoping for a response soon.

Re: FREE Brain MRI FREE
 

Maybe I missed finding it, but was it accepted for outside of Chicago.?

Re: FREE Brain MRI FREE
 

Hi Charlotte, Yes Joe said they are accepting people out of the Chicago area. I've emailed them twice & have heard nothing back yet? I think it's time I tried calling them & see if I can find anything out that way.


Chelee

Re: FREE Brain MRI FREE
 

Still no answer here either Chelee, but I'm thinking maybe she's on vacation or something. I haven't give up yet.

Re: FREE Brain MRI FREE
 

Brenda, Thanks for update. I'm not going to give up yet either...I'd really like to be accepted for this if at all possible. Keeping my fingers crossed.

Chelee

Re: FREE Brain MRI FREE
 

I did call today...at least the study still seems to be up & running since the menu option 8 did explain the study and asked if your Her2 & stage III or IV. I left my information so I will continue to keep my fingers crossed. I don't think they would still be accepting names for this study if it was full.

Brenda, it was mentioned by one member here that they are considering even some woman that might be a bit out of the criteria...so don't worry about being so close to the 36th month cut off. I'm past the 36 months but I'm still going to give it a try. Worse that can happen is they will tell me no.

Chelee

Re: FREE Brain MRI FREE
 

Chelee, I didn't get a menu option at all?
Just voice mail, leave a message.
I used this number- (773) 250-0422 Office

Re: FREE Brain MRI FREE
 

Hi Brenda, When I went back over Joe's orignal post about this to read the criteria...I noticed the number that was given was different from the office number. I'll paste it below. Once you hit option 8 it asks if your Her2 & stage III or IV....then to please leave your information so they can get back to you. Good luck.

Chelee
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Re: FREE Brain MRI FREE
 

Thanks Chelee, I totally overlooked that.
I called and left my info.

Re: FREE Brain MRI FREE
 

I also have been having problems getting to give the people my info.In all probably, I will not make the grade,,, too far out.. We will see.Charlotte

Re: FREE Brain MRI
 

another question... would this test encompass folks like me?I have IBC( 4th stage).. also, I am only taking tykerb and xeloda. on a daily basis.
would like to participate in this study if possible.
Thanks, Charlotte

Re: FREE Brain MRI FREE
 

Charlotte, I left my info with them on Sept 21st and haven't heard back from them yet.

Re: FREE Brain MRI FREE
 

I've also phoned & e-mail and haven't gotten a response.

Either they're swamped or they have enough people for their study.

Re: FREE Brain MRI FREE
 

I'm guessing they're just slow. Don't tell them but shortly after Joe posted this, I called, set up a time (scheduled myself to get to work late) and then didn't hear back. They were apologetic but I decided to wait to see what happened here (before scheduling anymore time off from work). It seems like not a well organized study (or maybe it's just really slow or there are other limitations and they are just doing the best they can).

Re: FREE Brain MRI FREE
 

I've called twice and left my information...& I have also emailed them. I have not heard back from them by phone or email and it's been a while since I contacted them. If there study is full you would think they would post that some where or at least have someone get back to us.

I have a brain MRI set-up for Oct. 6th at my cancer center now...so it doesn't matter to me. I thought being in the study would of been nice, but now that I've had a recurrance I'm not waiting. I do hope they eventually let people know if it's full or not. Good luck to those waiting.

Chelee

Re: FREE Brain MRI FREE
 

E-mailed them with info on 10/20/09. No response.

Re: FREE Brain MRI FREE
 

It's been more than a month for me, so I'm giving up on this trial.