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harrie 03-03-2009 11:19 PM

Joy, I just found this thread! SO....that means my prayers for you will be prayers of thanks and gratitude!! Way to go Joy!!

Rich66 03-04-2009 01:07 AM

Joyous news indeed. Have they a way to check for circulating estrogen? Just wondering about putting the brakes on another potential food source. Any chance of spheres, LC beads or an isolated hepatic perfusion approach (closed loop chemo)?

MJo 03-04-2009 07:05 AM

Yippee, Joy. When you and Becky start driving south for that trip to Mexico, you will find me hitchhiking by the side of the road. Last week I looked into running away to Spain. Mexico will do.

Hopeful 03-04-2009 07:59 AM

Joy,

So happy to hear your good news. Best of luck to you with your new tx.

Hopeful

Joy 03-04-2009 08:42 AM

Thank you All and Becky, Mary Jo...
 
brush up on your Spanish cause I like the way you are thinking!!!

Colleens_Husband 03-04-2009 09:00 AM

Joy:

I am so sorry to hear that cancer has taken such a toll on your spirit. It is perfectly alright to have down moments and down days. I am confident that you will be back and ready to kick some cancer butt in due time.

There is a thread in the 'Keeping your mind off BC' forum that Bill started called "The Campfire" that I believe has some relevance to the way you are feeling. Please feel free to join us there.

Please know that you are not alone. We are here for you. Remember that you are in our hearts and in our prayers.

Lee

lkc Gumby 03-04-2009 09:25 AM

Great news, So happy to hear.

Shobha 03-04-2009 09:44 AM

Great news Joy! May God continue to bless you with good results and help beat this!

love,
shobha

mts 03-04-2009 10:09 AM

Superb results... Way to GO !

By the way, If you do go to Mejico- I will be your translator !

Maria

SoCalGal 03-04-2009 04:02 PM

!Hola Joy! DING DING DING i'm chimmin' in
 
Fresh off the PET/ct table myself.

I started on Tykerb-Xeloda at stage 4 dx - April 2007. Stayed on Tykerb thru all changes, additions, etc but NEVER w/Herceptin until switching Onc's in Dec 2007 (just over one year ago.). I did a wash-out (gotta love that crapola term) in Nov 2007 while I got my ducks in a row.

So basically I've been on Tykerb since 4/07 and added in Herceptin December 2007. Improvement. Then added Avastin in March 2008. More improvement. (tykerb/herceptin every 3 weeks - no pre or post meds). Then Zometa (every 6 weeks). Lungs were clear at the last scan. Markers are stable, much lower and near "normal". And sternum was stable on CT w/some discussion on PET results. I'll know more tomorrow after my results are in from my scan today.

Joy- when I saw Dr Glasby at UCLA last Dec 2008 he explained to me that there IS synergy between Ty and Herceptin. He used a roadblock analogy, saying if you put one road block in the road and cars are going around it, don't remove that block, just strengthen it - add to it. He said "they" (whoever they are) feel that there is definately synergy.

My current Onc agreed with him and that's why I switched up my regime.

Way back when the Tykerb Tigers & Diarhia Diva's started, we all used to take our Tykerb first thing in the AM. I still take mine first thing with my coffee. The only other advice is to start out gradually with Tykerb - (3)pills for 3-4 days then (4)pills for 3-4 days and then go to full dose - (5) pills a day on EMPTY. I think that really makes a difference in keeping side effects to a low roar. Brenda can also chime in - she's on Tykerb-Herceptin, too, but I'm pretty sure she takes (4) tykerb a day.

Hope all this info helps. Stay present Joy. It's the only way to deal with this stuff.
xo Flori

julierene 03-09-2009 06:14 AM

I feel you honey. I just went through my own progression scares. But finally, an old treatment was tried and started working. I felt the same way about burning through all these great medicines (Navelbine and Gemzar!!!), and they weren't working! I felt like I was about 80 years old with the mets in my back. Anyway, this old treatment was changed up just a little bit with the Abraxane instead of Taxol and it's working! Next, he has Avastin approved, and some other drug I forgot the name of that I haven't ever had any class of... He is trying to prepare me for the idea that Herceptin and Tykerb are ineffective. But I have a little ways to go yet.

hermiracles 03-09-2009 06:26 AM

Bet that bought a big smile to your sweet smiling face Joy. Hope you keep getting more reasons to smile Sis.Blessings
Hermiracles

Joan M 03-10-2009 05:12 AM

Joy,

Great news on your scan results.

Joan

julierene 03-10-2009 06:03 AM

It's time for an updated signature JOY! :) Wooo Hooo!

harrie 03-11-2009 12:14 AM

Joy, I just wanted to tell you that the other day, I thought of you at the end of my yoga practice and I dedicated my practice and positive energy to you.


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